Thank you. I have done quite a bit of research, but it is a lot to take in and try to make sense of. I appreciate any help I can get in understanding this....
Hi all, I am new to this forum. I frequent the Fibro and RA forums. I have a questions regarding my mother. She believes she may have Crohn's Disease or something similar. She does have Fibromyalgia...
Good morning, I will make this quick, because I am at work. You are not alone. I see my sister in law a handful of times a year. If she sees not feeling well at one visit, she will make a comment at...
Hey Maggie, I am live in Lafayette, LA. I am about to take a long, hot, epsom salt bath. Afterwards, I plan to do some research. There are not many Rhuematologists in this area, but it seems that I...
Thank you. I get so frustrated sometimes. Im 27 and this isnt going to away. Thats a lot of years to live with a doctor Im not happy with. Its that rollercoaster ride that happens.....when you just...
Sherrine, Thank you for that information. I wrote it down on a sticky pad and placed it in my medicine cabinet, next to the Pepto-Bismal, which is an essential in this house. This will all come in...
Hi, I think it is awesome that you have remembered all of that, in order to post on here. My husband tries to remember what happens with me, but the medical records are getting thicker and thicker....
I can relate to this as well. I work full time as an Office Manager and assistant. I have been out of work most of this past week. I usually dont miss work. I hate missing work. I also need to work...
Thank you all for your advice and recommendations. I had a chance to talk to my husband about these issues and wants me to get a list of all Rhuematologist in a 50 miles radius, so we can see if...
I wander if he is in it for the money though. I thought he was, but he takes insurance and has a therapist in his office so that patients who need therapy can see the therapist at each appointment,...
You are not crazy. All of us felt this way before our diagnosis. The diagnosis is a mixed feeling. Relief of having a name for it, but sadness for knowing what to expect and having to admit that it...
Thank you Debbie. My mom wants me to see her doctor, but he has a bad reputation of being one of those doctors who just writes prescriptions for whatever you want. She tells me that he is not like...
My Dr. doesnt intimidate me in the slightest. He is a wonderful Dr. from what I can tell. I have only been seeing him for a couple weeks. His nurses, on the other hand, seem to give off a vibe that...
Hello everyone, I recently began seeing a new rhuematologist in my local town. I was previously seeing one at a teaching hospital 2 hours away. I loved my old dr, but she no longer works for the...
Thank you all for listening. I think I needed to get that off of my chest. I will let you all know the outcome after my follow up....
Hey everyone, I had my Rheumatology appointment yesterday with my new doctor. He reviewed all of my records from Ochsner and all of my labs. He proceeded to do a test where he put two pen marks on my...
Thank you for your response. I am injecting 40 mg every week. Regular dose. The mtx wasn't helping at all and I was still flaring on every other week. After the first month of being on humira it was...
Hurtful, I started out similar to what you are describing. Ill admit that heartattack never crossed my mind. I grew up with a disabled mother, so I instantly thought heredity. After my diagnosis, I...
I actually googled it and found it. I ordered one to be shipped to me before I leave. I dont know if the mods will remove this link, but I hope not because it is a pretty awesome heat thing. It is...
Thank you. I dont fly enough or take road trips enough to know what to expect. I just know that I wont feel as "normal" as usual. I dont want to say as good as normal, because we wouldnt be on this...
Hi all, I will be going out of town for business Saturday, to return the next Friday. I cannot fly with my meds, so my husband and I will be driving to St. Louis, MO and I will fly back home. We are...
Tired... I have very very similar issues on MTX. I have been off of it for two weeks and I am still having the issues with the bumps on my face and chest. I had the vomiting in such a bad way,...
Good afternoon, My swelling is always worse at night. If I avoid sodium, that helps. Bottom line is, for me, I swell more if I am active. So by the end of the day, my body is tired. I find that if I...
Update: I checked with the airline I am flying and a few others. I cannot fly with my medicine. It is the syringe, not the pen. I can fly with it if I remove the needle and fly with just the syringe...
I believe one of the side effects is increased bruising. Check your insert. If you don't have it anymore, let me know and I'll check for you. I have mine on the kitchen counter....
Pretty much. It can be done in a way to not cause pain. I am sometimes sore after a massage but to a point that I barely notice it....
Every other week was helping during month two but slacked off. I asked for a change of meds to either that or enbral. They suggested this bc it did help for a bit. I was wandering if it increases the...
lol. I like your analogy. It is true though. Also, that muscle, if I understand correctly, connects to your hip bone. The tighter it is, the more it will pull your hip down. There is another muscle...
I was told it was an SI Belt. I will have to check the box when I get home. Someone else has mentioned earlier that if they would have stopped getting massages after their first bad experience, then...
I know this is stearing away from the original topic, but were you happy with laser surgery? I have the money sitting in my Health Savings Account, but I just havent called for a consult yet. I think...
I just got a phone call from my pharmacy to tell me that my insurance company authorized stopping Methotrexate and increasing Humira to every week instead of every other. I couldnt be happier to be...
I think the part that bothered me the most is the fact that she diagnosed me, seemed to understand my condition, and I really liked her. She was real, calm and always knew what to do to encourage me...
One more thing to add: I have had deep tissue, in that area and others. It almost always made me worse. Sometimes the pain from the massage would be so intense that I would vomit. I wouldnt go back...
I know about most of what you are describing from my own experiences. That weird stimulating machine thing...It has been used on me before. It is suppsed to increase circulation, like you said. I...
Thank you both. I have never had a doctor push me off on a parter or try to take me from a parter. Your case must have been interesting for the one trying to steal you. I was hoping to get a letter...
Good Afternoon, My doctor recently changed my Humira from every other week to every week. In doing so, my insurance company will only approve this if I am taken off of MTX. Is anyone else prescribed...
Hello All, I was referred to a Rheumatologist in May of 2010. I was told by the doctor I was seeing at the time that I needed to go to a teaching hospital because he felt that I was a complicated...
I also heard that you go into remission during pregnancy. I also heard that it comes back twice as bad after giving birth. Did that happen to any of you?...
I joined a gym a few years ago that offered land and water classes, as well as machines and PT. When I am having a flare, I find the water (walking, jogging or swimming) allows me to excercise and...
Good morning everyone, I have a question about Humira side effects. I was diagnosed with Ankylosing Spondylitis a bit back. I am currently taking Methotrexate and Humira (in addition to a few others)...
Thank you all so much for the information. Once this flare up is over, I'll try to eliminate one food group at a time and track how it all effects me. I really hope it helps. I'm willing to try...
I have suffered with migraines for as far back as I can remember. No pattern for me and they are never the same. I vomit with almost every migraine but there is never relief. I only have one know...
Is there a way to click on that link? I don't know if it is just me and my insomnia or if I really am not able to click on it. If there is an obvious answer to this, my apologies. I havent slept in a...
Lucy, Is there a website or something that you know of where I can get a list of these things not to eat? I have been thinking of trying this type of diet to see what effects me. Thank you...
Thats exactly how I felt after my first Humira injection. I hope it works well for you....
I have nothing in my area. I live in Lafayette, LA and my doctor is in Baton Rouge, LA. She told me that there is nothing in this area for AS. This forum is the best. It is nothing like talking to...
I laughed as well but these god awful diseases have caused our joints, stomachs, intestines, eyes, hearts, liver, kidneys and who knows what else to inflame, so it could be possible. maybe thats why...
Maybe you can call around and ask some of the therapist if they have any experience dealing with patients in your situation. Do you know anyone in your area who has experiences like yours? I found my...
For me, a very large number of test added up to the diagnosis. There is no difinitive diagnosis for AS. It started with lower back pain about ten years ago along with a few other odd symptoms. My...
Momto3: I went through Premature Ovarian Failure at 20 and so many times I have thought that it was the beginning of my system trying to fail me. It wasnt long after that I was diagnosed with AS....