I have been on plaquenil for 25 years with no side effects. I do get eye exams regularly and haven't shown any signs of problems. Good luck to you!...
Thank you Vickie so much for posting this info. It is a good reminder that not everyone gets what we deal with on a daily basis to cope. Whenever I am in really bad pain or sick I go "into" myself...
White Beard thanks so much for your concern! I talked to both my Rheumy and PCP and I have an appt for Wed with the PCP just to be on the safe side....
Had a really weird weekend. I've been in extra pain this last week in my hips so decided to stay low for the weekend. Saturday night as I was going into our bathroom I had some sort of seizure....
I agree with Susie that the hip thing is probably setting you back. I had multiple level lumbar fusion last Oct and was doing really well with my walking until I fractured my rt hip and sacroiliac...
Being unjustly identified as a drug seeker is so heartbreaking! This could have been written about my son the difference being he is still with us. He has suffered so excruciatingly with the...
I've been on plaquenil for 15+ years with no side effect. I also get the eye exams which have all been clear. I was put on it before a clear diagnosis but I did have some inflammatory arthritis going...
I also have the same problems in multiple areas. The cortisone shots have been the most helpful and seem to last quite a while for me. Aqua therapy has also been very helpful. Good Luck!!!...
Hey Lovenotes, Welcome! I've had the same reaction to the sun on Neurontin. I have olive complexion and have never burned in my life until I started that med. I mostly get the rash and burn on my...
Barbara, I am so very sorry for your pain and suffering! I will be praying you get some relief sooner rather than later and that your cataract surgery goes well and doesn't cause more of a flare. I...
Thanks guys for the love and support! My Ortho said I need to wait 2 more weeks before starting the aqua therapy. I will try and be patient which isn't my strong suite :) I'm kinda freaked out about...
First of all I need to apologize for not being helpful to others and showing my support the last month or so. I've been here reading and learning so much from y'all. I just haven't had the energy...
I had similar pain that started about 6 weeks ago. I had L4 through S1 anterior/posterior fusion last October. I first had a cortisone shot in the right trochanteric bursa. That helped some but...
Rocckyd I am so sorry that you are going through so much. My son had a gj tube placement because of severe gastroparesis due to his diabetes. It helped tremendously with the vomiting. I am also so...
So sorry to hear of this recent episode but glad to hear you are going home. I hope you have a very restful 4th!! Also a low pain day :smile:...
Oh Vickie I am so sorry for your horrible experience!! It sounds excruciating. So glad that you are getting some relief now. I know some medicines can wreak havoc on and off of them :mad: Hoping you...
Arizona I'm so sorry to hear of your pain! I had lumbar fusion surgery in October which helped the leg pain. I still have a lot of back pain but the nerve pain is covered now by the Neurontin. I hope...
Wow that is great that you responded so quickly to the Humira! I've been on it for 3 months and just now seeing a little improvement. I hope this now allows you off of the prednisone. That is my goal...
So glad to hear you got this sorted out! It is so comforting to have those numbers when you need them!...
I heard back this morning...wahooo!!! I actually had to call yesterday and of course they hadn't gotten the referral. So that got the ball rolling. I just had a feeling something wasn't right because...
I HATE waiting for the doctor's office to get back to me!! I'm now waiting for the referral nurse to call me about my appt with the ortho for my bilateral hip stress fractures. I hate putting my life...
About a month ago I woke up with severe right hip pain. I waited it out thinking it was the RA raising its lovely little head but when it continued I went to see my PCP. He thought it was...
My father was diagnosed with RA in his late 50s and my mother in her 60s. I've had it since I was 25. We do have a significant amount of autoimmune diseases on both sides of my family....
I've had many injections in the small joints of my fingers. Don't look at the needles because they look huge!! BUT they only have to go in a little ways and it doesn't hurt nearly as bad as say a hip...
This is a great thread!! I'm like Tina in that laughter and never taking myself too seriously has gotten me through many trials. I have a quirkiness that goes along with it that sometimes gets me...
Had an incredibly busy weekend. My son and his family were visiting and my daughter and her family were over most of the time. I was cooking for 12 all weekend and forgot how exhausting and painful...
Qt-that is great news! Sometimes all it takes is having a little success to keep us going! Keep up the good work....
I had a painful Saturday and ended up in bed most of the day. I wasn't too surprised because I overdid on Friday :nono: I woke up yesterday feeling awful but made myself get going and by midmorning I...
I've never had it as bad as you have but I have experienced achy legs mostly at night. The only thing that has helped me when it is like that is to take a hot bath. It is very uncomfortable. I hope...
Too funny y'all! Vickie I had to really laugh about the exercise videos. I buy those often and with every good intention I watch through them so I'll know what to do. But do I??? Nope!...
Yep should have never told my hubby about the pumpkin in the brownies :) I'm usually careful about things like that because I like to throw in tofu whenever I can as long as they aren't looking! I'm...
I called my rheumy and she had me start on folic acid which did help with a lot of the stomach pain. I still have to be careful with what I eat or it really gives me heartburn....
Thanks all for the support, grins and giggles!! Thankfully my husband likes me with some fluff :smilewinkgrin: I've decided I need to really make a change and go back to the good eating habits I had...
I am so frustrated!! My arthritis and back pain has been horrible. I had my prednisone tweaked up and now I've gained 10 pounds. So not only do I hurt but I feel awful about how I look. Thanks for...
Another thought is to try a half size larger. I started doing that this winter and it has made a big difference. I also have inserts that I got from a Podiatrist and that has helped a lot. I sure...
Thanks everyone for the encouragement! Years ago I did water walking and it was great! We moved and it just wasn't convenient. Now I live closer to a Y and that is where my therapy will be held. The...
I had anterior/posterior spinal fusion from L4-S1 last October. My doctor didn't prescribe any PT following so I was on my own. I finally got his PA to send me to therapy and today after just 2...
My rheumy added Arava to my drug "cocktail" mix to help with Humira. Ever since I feel like my stomach is absolutely tore up. It goes from a burning feeling to an absolutely ravenous feeling....
Thank you all so much for your concern and extra info. I should have made it more clear but my husband and I have been doing extensive research on ALL options and discussed these in depth with our...
Thank you all so much for your kind replies. We are fortunate that although we live in a rural part of the north US we are close enough to excellent medical facilities. We have access to both Mayo...
Thanks David for your reply and encouragement. I don't have the percentages-knew I would forget something! We are going to possibly speak to a radiation oncologist also but frankly we just want it...
We finally had our doctor appointment this morning to find out the numbers from my hubby's biopsy. We knew it had come back positive but didn't know anything else until today. It showed bilateral...
Thanks so much for sharing your story. As a wife it shows me ways I can help my husband psychologically and to feel good about himself. He has done so much for me this may be a way I can give back :)...
Peggy I'm so sorry you are in such pain! I have a little of the same kind of pain you have had the last couple of weeks. Unfortunately other than the heating pad nothing else has really helped. I was...
Thanks guys so very much. Yes I am going in with a list of questions :wink: I have a notepad going as I read this forum and things I think of myself. We have dealt with a lot of medical issues for...
Thanks so much for the words of encouragement and advice. I have learned so much about this on HW and so very thankful! I found this site a while ago for myself so was so glad to find this forum for...
Thanks littlenm for your support! Yooper fixed my signature :smilewinkgrin:...
My sweet hubby had his biopsy done last Tuesday and today the doctor called and said he indeed has cancer. She had told us on Tuesday that she would call with the basic results but would make a 45...
I just have to reiterate with others have said. On the days that are more painful you have to really rest and take care of your body. I have very similar pains to you and got myself in a big mess by...
I have no words of wisdom just that I am so very sorry that you are in such pain and distress. I have never been where you are physically so I can't say I know how you feel but I can say I have...