I do. At the moment both are elevated slightly even though I've had surgery for my Crohn's and it's well controlled. So I would assume it's due to my arthritis flaring. I don't have Rheumatoid, I...
Thanks Gretchen, I appreciate the advice and well wishes :)...
Thanks for your reply Gretchen. I have a copy of the MRI report right next to me, but it gives no indication of what is causing the problem. I also have a problem with tingling, and numbness from...
My Rheumatologist told me that I am experiencing L'Hermettes sign. He sent me for a series of MRI's - brain, c-spine and lumbar (no contrast used). It came back as normal in the sense that there was...
Hi Aussiegirl2008, I saw my Surgeon last week and will be having a total colectomy with a permanent stoma. He recommeds removing the rectum and making the stoma permanent due to where the disease is....
I have had both my SI joints injected twice, unfortunately for me it didn't last more than a few weeks. So it's not worth continuing with. I would definitely recommend trying it though - I know many...
I've asked this question of my GI and he basically told me that it takes at least 6 hours for the food to pass from your stomach through your bowels and be digested, but on average it's 24 hours. So...
Glad to hear your surgery went well and that your pain levels aren't too high. Also very happy that your stoma is only temporary - my surgeon has told me that I'm better off having a permanent one...
My arthritis is in my spine, so when I developed small joint pain and swelling when on Humira I was concerned. After having a severe immune reaction and stopping Humira, the pain went away. Then I...
I had similar pain when on Humira, then Simponi then Remicade. With each of them it was drug induced Lupus. I suggest getting your Doctor to run some blood tests to rule it out....
Hi Aussiegirl2008, I am in a similar position to you - I've just come home last Saturday after being in hospital for a week with a bad flare (been sick since October). I've become pred dependant and...
I had extremely high elevated liver enzymes due to methotrexate. This was picked up when I started to flare at the end of October. My levels took a long time to come down after stopping the mtx, and...
Hi, I am in Sydney and see Professor Les Barnsley at a public clinic at Concord Hospital, and he also has private rooms at Concord Medical Centre. He is an Associate Professor of Rheumatology at...
I've applied for disability twice and have been rejected, due to changes in the eligibility requirements that the Labor government brought in, I think they came in to effect last year. When you are...
I know many people on TNF meds for AS and/or Crohn's disease and they are absolutely fine and suffer no side effects. Not everyone will get sick from them. You may try them and be fine and it help...
I take 5mg of folic acid every day except on the day of my injection. I have very little side effects and I think it's because I'm on such a high dose. Maybe try taking a higher dose? With the...
My GI does rapid infusions at the Hospital where he is based. Apparently it's becoming more common here in Australia and it's already being done in Europe. Interesting article....
I am another that would agree with the previous posters, if she has had an allergic reaction there is no reason why she shouldn't be able to try Humira. In fact, it's quite common here in Australia...
I'm on 25mg mtx weekly, by injection. I take 5mg of folic acid every day except the day of the mtx. It has no effect on how much hair I lose - I still lose heaps. Having said that though, I don't...
I take 5mg of folic acid every day except the day I take the mtx. I used to take my tablets at night with food, this helps with the nausea and any possible effects on the stomach. For a while there I...
I just had my first infusion of Remicade yesterday and was told that you can have a reaction up to 2 weeks after the infusion. Also, from my past experience with Humira and Simponi, I wouldn't...
I take Valtrex every day and have for over 12 months. Every time I come off it I develop shingles, which is a herpes virus. It never causes any flares for me, or any other side effects. Maybe my...
Thanks for your well wishes. The only alternative treatments I've tried is acupuncture, which didn't work for me but may work for others. I tend to be very careful about what I take in to my body in...
Sorry to hear you are in so much pain. Are you seeing a Rheumatologist and taking medication for your sacroiliitis? Have you had more scans done since your first one? I'm surprised you're in so much...
If you go to Humira's website, there is an instructional video that explains how to self inject. I got taught by my Dr's Nurse, and she said to press it firmly against the skin, press the button and...
I had a similar issue with fatigue and excruitiating joint pain whilst on Humira. Tests showed I had developed drug-induced Lupus. I would have your treating Doctor test you for that....
I take 25mg of mtx as an intramuscular injection weekly to treat my crohn's. Unfortunately alone it does nothing for my AS. But my Sister in Law has Rheumatoid and mtx has helped her gain remission...
I am also taking this for my AS and it seems to be helping my Crohn's. Over in Australia, it's covered under our Medicare system and I get it monthly. Personally I'd be concerned about your GI...
I agree with others suggestions of seeing a Rheumy. I was diagnosed with sacroiliitis in 2007, before I was diagnosed with Crohn's, and if Feb 2012 the diagnosis was changed to AS. Apparently it's a...
Interesting. I'm in Australia. I've never left the country. Never eaten anything made in Mexico. I only buy fruit and veges grown here (not that I eat many). And I don't drink milk as I hate the...
I have the pain in the joints that your describe (ankles, wrists etc), but mine is from drug induced lupus. So if you do have lupus then I'd be more inclined to think your pain is from lupus. As far...
Hi, I have Ankylosing Spondylitis but was originally diagnosed as having sacroiliitis. The shooting pain that you describe, going down your leg, is a common symptom of sacroiliitis. I have tried many...
I don't consume a lot of sugar or products that contain sugar, but I do know that my body can't tolerate fructose, the same way my body can't tolerate fibre. I agree with you here NCOT. I am happy...
Not only does the OP's post seem unscientific, it's contradictory. On one hand he's saying he eliminated all processed foods and sugar from his diet and is leading a healthy life, and on the other...
Hi pink1. I take Simponi for my AS, and as a trial to see if it helps with my Crohn's. I also take mtx with it. TBH I have no idea if it's helping my bowels as I was already in remission when I...
As someone who lives in Australia, I wonder firstly who your Doctor is, how he/she feels about you stopping all medication and what sort of magazine would publish something like that? I think that...
I've had CD since a teenager, but only started on the pill 5 years ago, so I don't see any correlation between my CD and the pill. But, my GI wants me to stop the pill due to the risk of blood clots....
Thinking of you all in Sandy's path. We've had quite a few destructive cyclones and storms here in Australia so we understand. I hope that you're all safe....
There is absolutely no reason not to take folic acid on the day you take you mtx unless you are being treated for cancer. Both my Rheumatologist and my Gastroenterologist have told me that if you...
Because mtx is a folate antagonist, if you don't get enough folate supplement in to your system then the side effects of the mtx will be worse. The maximum recommended dose of folate, depending on...
Hi Lu, Glad to hear you survived the trip! To answer your question, my AS was relatively controlled with Humira until I had a severe immune response to it, pretty much like an allergic reaction but...
Lu, have you had any scans recently? Your back and leg pain sounds exactly like what I was suffering for years before I was diagnosed with sacroiliitis in 2007. That diagnosis was changed to...
Pottsy, not sure where you are in the world but here in Australia, if you have mild disease then it's fairly common practice to be started on something like Salofalk first. If that fails, they then...
Hi Momof2teens, I'm a Mum of 3 Girls and it can be very tiring having 3 kids and a chronic illness (lucky me, I have 2). If I wasn't on any meds I don't think I could function. The inflammation needs...
I was on Humira fortnightly for 3 months, when I suddenly started to get what was thought to be injection site reactions. But every time I injected, they were more severe. I would take pictures and...
I agree that a biologic is probably better to help with the fistula. Having said that, the side effects you've described can also be attributed to budesonide so personally I wouldn't give up on the...
I have the exact same pain as you describe. Over the years it seems to be getting worse. My GI has never seen anything on my scopes so we have no idea what's causing it. It lasts longer than a few...
I take 25mg of mtx a week, and take 5mg of folic acid every day except for the day that I take the mtx as they react when taken together. I have so far suffered no adverse effects other than nausea....
I agree with the above posters, I'd stop the 6mp. I was successfully taking 6mp for almost 3 years when out of nowhere my WBC count started to drop. One week it was a little low. 4 weeks later I was...
Hi, congratulations on your impending arrival. I live in Australia and over here many women including myself do not see an OB but a Midwife, albeit through a Hospital. The only time I saw an OB was...