:shocked: Well May 6th RA doc started me on Humera pen!!! No skin infection this time but still feel aches,will wait and see.Have to do pen twice a month on 40 mg. Sorry was waiting to get back to...
My remicade has stopped working! Had infusion April 1st and on day 7 had a 6 day flare up and still aching now. Got sick on the 13th with head cold that turned into bronchitis that I have now. Before...
So had my infusion yesterday. I woke up sick anyway feeling like i was going to puke but went in anyway. Then found my weight is getting higher!!! WHAT??? I have been low carbing it for two weeks?!...
msOuchie... Wow 5 years!!! yeah! Last two days my left elbow is locked and before that my knees. That is on week four after infustion and today at 2:00 I get infusion :) . I was getting a dose of 500...
So there is hope!!! :) Much love to all... MiMi...
Thanks Chartreux Staying on my Remicade and go Wed. for another round. It works for me but seems to last only 4 weeks and I go every 5 weeks. Maybe this time I can go longer,but those 4 week are pain...
Well did some reading on rawarrior.com/rheumatoid-arthritis-remission,looks like this question of remission is up in the air. Some say yes with meds,some say this and that. Wish they would find a...
Thanks I'll check it out...Wed is infusion my knees are hurting to walk and on fire...I tell my husband "I'm on fire" ...he get's the wrong thought!!! Then starts singing Lady Gaga's I'm on the edge...
Does remission mean your pain is stopped from your meds as long as you keep taking them? Or is it you don't need your meds anymore?? :confused: How does one know they are in remission? I know...
:turn: You people are funny and happy and happy the auto-injec is working. When I was at first doing the Enbril I felt great after the 2nd shot, so glad you found what works for you. Wish I cound...
I have the same thing and my RA doctor said carpal tunnel & RA. I had surgery 20 years ago on both hands for carpal but I guess it comes back esp. with RA. I get it bad in my right hand where it goes...
Well last week my knee started to hurt and getting worst,not as bad as before but still letting me know " I'AM HERE!" Sop April 1st is my infustion and can't wait. I know :smhair: who really gets...
Was on both MTX (which I stopped doing with the needles :eyes: ) didn't do anything but make my hair fall out. Started with that and Enbril auto-inject that left me with skin infection,but after...
Sorry sorry my friend for your pain but don't give up!!! I have been where you are where moving was too much and sleep felt like I was on rocks. I'm on Remicade infustions every 5 weeks now at 200...
Getting infustions now every 5 weeks of Remicade at a lower dose now. Was getting 500mg but now because it's chaged to every 5 weeks get 200 mg. First time since summer I have had NO pain!!!! :turn:...
I also have the samething along with the sores that itch ...then I pick at the scaps till I bleed.. :smhair: It's never ending...I use WEN shampoo and try to only wash my hair once or twice a week...
So very sorry about your husband CL...so hard. Well had my infusion and back back again April 1st :turn: said that's April fools day! Asked if they would make my infusion mix in colors and can I have...
Thank you Chartreux I will do just that. And I really need to look up remisson? Because I asked and not sure of some of the answers. Not sure if it means you feel okay as long as your getting RA...
Well thank you but me inspirational?? :tongue: If you would have seen me the other day...I was in bed all day crying with a flare up,yes crying like that helps! The bed felt like small rocks,even my...
:turn: Some of your answers make me laugh...with this much pain I have to say thank you for that. We should do this more offen... :tongue: So sick about talking pain so let's laugh alittle now and...
Thanks for your feedback. People on here talk about numbers which I don't understand . All I know is my whole body hurts and my RA Doctor said I am severe at my first visit after blood work. So yes...
Yes I have RA was never told my numbers only that I'm high. My RA hit's every joint I never knew was a joint!! I get inflamed all the time everywhere. I read some have it in hands only or other...
Thanks for feedback...feel like the Remicade is what will do me in before the RA... :smhair: Going in every 5 weeks now and waiting for months for new hair to come back :eyes: Wonder if my hair...
I go next Wed the 25th for my next Remicade infusion. How does one know when or if you go into remission? Is remission a real thing with RA? If so how long can it last? Just asking. Much love to...
Pain$herlock Thanks been off mtx for two months now.Love your Live long and prosper/ May the force be with you...makes me smile.. Much love to all......
I also have hair loss from Methotrexate so I stopped it all together. I started out on Embrel injections but ended up with skin infections.But I loss handfulls of hair before I found out I had RA in...
The color of my skin is a what you would call a pale sick person that looks like I have the flu. No white patches just sick looking. In fact my sister who was always fair skin or never in the sun...
Just had two cortisone shots in my hips on Jan 19th because I'm walking like I'm 90 years old. My Dr. said you didn't even feel the shots? I didn't because the pain everywhere else was so bad. My RA...
When the pain gets bad so does my BP ...I know it's from the pain..But no not on BP meds....
So sorry ((( HUGS ))) me and prednisone never got along, I would see things that were not there,could not sleep and and had confused thoughts. I refuse it always even when they beg me to take it I...
I have not been on in awhile and hope some remember me. I had the two brain Annie's and the friend with breast cancer Julie. Well Oct after two rounds of Remicade I had to stop due to cost. The out...
Was only told I had RA never heard what the lab numbers were. I had alot of swelling when I saw her and was told I was had high lab results. Wanted off MTX because makes me feel awful for days and...
Reading many post and seeing many people are just on MTX alone. So why am on Remicade infusions also and not just MTX? I was never given the change to only be on one thing,it was just you need to...
For head sores am on CLOBETASOL 0.05% SOLUTION two times aday for two weeks. Asked him what can I take for hair loss said I'm taking biotin and he said "everyone runs to that" " there is nothing you...
Hi Peppermint Patty, I see derm doctor today about sores on my head and hair loss. I also had hair loss before starting any meds. The Metho only makes it worst as far as hair loss. I was taking...
I'm so new to this all you are the pro's to me. All I can say is I hope things go well and give you much love......
Neenaa thank you so much...My doctor is asking me if I'm willing to take 2cc's of Metho I told her I'll think about it..She had me on 7cc shots. Because I have trush infection have not taken any...
I have first time Thrush from chemo. Started out as burning and pain in my mouth going down my chest and very sick. I'm on 100 mg of Fluconazole for 14 days also a liq. 200 mg with...
Chartreux thank you for prayers for my friend. Her cancer is the worst you can get. Any cell left makes a new tumor. She has had 4 surgeries,loss the use of her left arm is so cut up and a dozen more...
Thank you RA friends. Just came back from Doctor and I have a fungal (spelling?) infection in my throut (spelling) and scalp said reason I don't feel good. Talked me back into getting infusions...
Was on Enbrol auto-inject for a month had to stop due to skin infection. Also Metho 7ccs once a week and had two Remicade infusions. So saw my RA doctor today and she said you look sick. I said...
Was on Enbrel auto-injection and feal better after only three treatments. Had to stop because of site injection infections and now have to have Remicade infusions, my 2nd one will be on Oct 23rd....
Duh found search.I see many putting what they have and meds they take under the post. How do you do that? I'm just at the beginning of Remicade infusions every two weeks and take .7 mil Methortrexate...
I had swelling of the joints and felt like I had a fever. After going to my doctor he looked at my elbow swelling,hands and did a blood test. The blood test showed I had RA. He said he knew just by...
I'm looking into orangic hair dye or some other kind of dye. I feel bad enough and letting the gray come in will be worst.I'm taking biotin 5000 infusion nurse told me to buy the hair/nail/ skin with...
Thank you Don and couchtater for your words. I have to say this RA scares me more then the two brain surgeries. Tomorrow I take my MTX shot and was thinking about not doing it. But will listen to you...
Hi I'm new here but so happy I found people dealing with RA. I just had my first Remiade infusion a week ago,been on Mtx for over a month. :smhair: Had reaction site using auto-injection 4 times...