I would definitely get him to resubmit it. From what I have been reading the test isn't widely used but has been around for a while....
It's a test to measure the inflammation in your body. It is mostly used to determine how active RA is...
That is insane! My rheumatologist swears by it. So far my insurance company covers....
I was on it years ago and it gave me no relief. My new rheumatologist put me back on it 6 months ago. It does take time to get into your system. So far I have not had any side effects....
I think you should try to get to a rheumatologist. They can give you meds that can slow down the progression of the disease. Good luck....
What have your doctors told you about getting the flu shot? I got it last year and was sick almost all winter. I really don't want to get sick again. Thabks!...
Oh no. I hear the test is expensive. I am on the same boat with all my blood work being normal. This was my second vectra. The first one was low. This one was 45 and it says high. This whole process...
Thanks. I am still waiting for my rheumatologist to return and go over my results. My feet have been swollen for weeks now. I also am in pain and exhausted. My appointment is in November. I can't...
Thanks Susie. My rheumatologist is out having surgery. They told me 2 weeks until he may be able to read the results and get back to me. From what I have been reading, my results show high disease...
Has anyone had a vectra d blood test ordered? My rheumatologist loves this test especially for RA. I have seronegative ra and chronic pain. He thought my suffering right now is from the chronic pain....
Thanks. I just wish everyone here gets lucky with a good doctor. It's a shame that more doctors aren't good listeners. The rheumy I went to for my second opinion, they said to me "If you are getting...
Long story short, I have been suffering with chronic joint pain, muscle pain and other symptoms for over 3 years. A low positive Ana got me over to a rheumatologist. After all other labs being normal...
I was just diagnosed in July. Similar to you. 3 years and 3 rheumatologists later. I still am not sure that all my symptoms are just fibro. I do get a strange sensation through my calves. It almost...
True. My thoughts were it could help if there is something going on the doctors can't find it so they say fibro instead of searching deeper....
Were you put on any maintenance medications for the UC? That is a chronic condition that can easily come out of remission? I also have UC and been in remission for years. I had a positive ana and...
My liver was affected when I was taking sulfasalazine. My red blood count had dropped and white blood count was high. Took a few weeks off the medicine to reverse it....
Has anyone heard of this new blood test for fibro? don't believe insurance covers it. Also not sure of the cost. A gal on a facebook page posted about it. Her insurance would not cover it and she did...
I am asking around for a 3rd rheumy. I did start taking the arava again. It definitely helps a bit. My pain is now between 6 and 8 on a scale of 10. I am also going to find a new primary doctor. I...
Thanks. I actually started taking the Arava again per my GI doctor. I seem a bit better with the pain. I was re-evaluated at aqua therapy today. He said I am showing improvements and hopefully in a...
My GI didn't say Humira. He was working with me and the rheumy to find one medication that can keep UC in remission as well as treat my pain. The new rheumatologist said to go on Humira if the GI...
I was on Lialada. I was lucky that my uc is only in a small portion on the left side. My GI does not believe the pains I have are from UC....
My first didn't diagnose me with ra. He is leaning towards ra based upon my symptoms. He is ultra conservative and slow to change medications and has not ordered any tests. That is why I went for a...
The new rheum thinks I just have fibro. I am suffering a lot especially worse since I went off the arava for 6 weeks. I am so confused and frustrated. My joints are so bad especially my knees, elbows...
My GI doctor said whatever inflammatory medication my rheumy puts me on works for UC as well. So I just started up the arava again....
Sorry to hear that your are not feeling well Badday. Hope it improves quickly for you. Nice of you say hello Indu. I am doing a bit better pain wise but still have no clue what is really wrong with...
Thanks. I went back to the Penn doctor yesterday for a follow up. I have developed little bumps on the outside of my thumbs near where it bends. It is hard (almost feels like a bone) and does hurt a...
Thanks. I have been in remission with my UC since 2012. No issues whatsoever. I was taking lialida to keep it in remission. In 2015 is when all my joint pains began. Since I responded well to...
Hope you are are well. Long story short, I have ulcerative colitis since 2005 and it went into remission 2012 and thankfully still is. Around 2015 I started developing massive joint and muscle pains,...
Thanks. I have tried Migrelief which is herbal for the migraines and it did nothing at all for me. I would love something other than amitryptine. I have read some nasty side effects. Thanks for the...
Congratulations!!!!!!!...
Thanks. I do have otc drops which help a little. All my labs are from 2015-present. They didn't recheck Ana or antidsa . The only xray I have gotten is of my knees. She said it came back fine....
Thanks Susie. My GI and first rheumotologist do not feel like my UC is causing any of my symptoms since it is in remission. I even went for a colonoscopy again to make sure. I went to Penn Medicine...
I will try to keep this short. Been having joint and muscle pain for the past 3 years. Symptoms: positive Ana, joint swelling, pain in joints and muscles, hair loss, mouth ulcers that come and go,...
My cousin didn't get diagnosed for years. She went to so many specialist. She found a great one in Arizona. She is convinced I have it since it runs in families. It is a shame that with all the...
Rockson, Thank you for such am informative post. My cousin has EDS as well as fibro and other issues. I have asked my doctors but they say that since my skin is not elastic and I don't dislocate...
I use heat especially when driving. I did ask her why she wants me to come back if she feels it is just fibro. She said they get too many inflammatory cases to take on fibro. The doctor who consulted...
Thanks. I am only in the pool for an hour session 2 times a week. Plus it is shared with others and I am constantly moving. I drink before it and after it. I did see the Rheumatologist at Penn again...
I have not tried an inversion table. Lucky for me, my back is the only part of my body that does not hurt! My brother in law used one for his back and he said it helped a great deal. As far as...
Coach Patrick, I agree that fibro sufferers never get their life back. I am slowly coming to terms that the me that once was will no longer be. I am a coward when it comes to pain as well. I am not...
Thanks everyone. When I was on prednisone, it was to see if I would respond to it. Since I did, my rheumy said I did not have fibro but inflammatory disease. I took it for a short period prior to...
Thanks Susie. I did get blood work done every 8 weeks on the Arava and thankfully my liver is fine. I just really have a gut feeling something other than fibro is going on here. A lot of my symptoms...
Thanks. I have been exhausted long before the amatriplyne . I did a sleep study and found I have mild sleep apnea. The doctors say that could be why but it is so mild that I didn't need to do...
Amitripyline was used as an antidepressant many years ago at high doses. My rheumy put me on it for Fibro. I have not received any relief from it yet except it helps prevent my migraines. I have a...
Thanks. I have not tried anything besides elevating my feet when they swell. It is not just my ankle that swells, it is my hole foot. My toes look like real little piggies!!!! I have tried over the...
Thanks. The rheumy told me to let the amitriptalyne work longer before changing anything. My feet seem to swell if I am on them too long or if it is hot out. My hands swell from heat and sometimes...
Sorry to vent but no one really understand but you wonderful people. I followed the orders of the second rheumotologist I saw. I stopped the arava and increased the amitriptiyne. Its been over a...
It is like you said. A positive ana alone is not enough to diagnose anything. Some healthy people have a positive ana and never get any autoimmune disease. Your ana simply means that there is...
So sorry for the way you are feeling. This disease is a life changer. It is hard to function day to day and even harder to work. I just got diagnosed as well but they still suspect an ai issue as...
Thanks Diamond. This rheumotologist is making me get blood work. They are checking sedimentation rate, CRP, Comprehensive metabolic panel, vitamin d. She marked all labs with fibro as primary and...
Thanks everyone. Still very confused and in massive pain right now since stopping the arava. Once I do the bloodwork, I will call the rheumatologist back and see what I can do. I has been hard on me...