Bless you KM2018. I hope you get them adjusted so you can feel better soon. Sounds like they do need adjusting for sure. Hugs my friend. Have a great rest of the week. 💜💜💜peggy....
Right! Me too my friend. I’m doing really well with my RA at the moment. I have always had fatigue with it but lately I have been doing much better with that as well. However, I am very tired as in...
Ohh my dear friend. I am so sorry. Please don’t hate your life. I can tell from talking to you that you are a good person who is good natured and cares about others. Life can be very hard I do...
Hey Weary yes I am so much better. I can do things that I wasn’t able to do and the pain patch is like a miracle for me. I am still having some problems but the pain is so much better. I had to go on...
Hey CaMama I’m doing well on the injections and the imuran. I have had to start taking glimepride for diabetes tho. It’s always something. Dr said it was due to the steroids I’ve been on for years....
CaMama I’m so glad you are doing good on that. My doctor was waiting on that drug to come out he just knew it was going to help Me as I’ve been on so many we are starting over trying some that I’ve...
I finally had to talk with my pain management doctor. He put me on the fentanyl patch to help with the pain. I’m thanking God for this because I feel so much better. Now maybe the acthar gel...
Yes I too would like to know about other sites. I know one is healingwell I’m on that one but not much interaction between folks going on there in the RA part anyway. I went to Rheumy today. My back...
Ms Ouchie I too have had severe RA for many years. I pray it’s not Pulmonary Fibrosis from the RA. He is sending me for a pft test as soon as I can get an appt. I’m sorry to hear you have that my...
Don mine is not hyperventilating it’s like when I exert myself. Most of the time it’s just walking Especially if I try to tote anything. Or if I’m changing clothes from washer to dryer. It’s crazy....
Hey KM2018. Yes I have a lot of weakness. Pain and fatigue as well. Ohh and the brain fog always. I know exactly what you are talking about when you say you feel like your legs are gonna give out...
Hey everyone I hope you all are safe and well. My meds have quit working for me so my RA doctor has put me on imuran 50mg. I have been on this for 3 weeks. I have steady got worse it feels like. When...
Don I’m so sorry for MIL. It’s awful for sure but sounds like she has surely been having a hard time. I hope they can find something to help her soon. It surely hurts very bad when trying to come off...
Don I am doing well with the methotrexate. I have just started back to because it caused my immune system to get so low I was getting all kinds of infections and catching viruses. I hope I’m gonna be...
So glad to hear you are feeling better. I have recently been put on metformin for diabetes. They say it’s good for helping you loose weight. I surely hope so. I could stand to loose about 60 pounds....
MsOuchie thanks for the reply. I’m pretty sure since I increased the dosage this time that the nausea has come from that. You just never know wirh these meds. I will be talking wirh my Rheumatologist...
My doctor just changed my dosage of methotrexate to .08 or on an insulin needle it is 80 units. I took it on Thursday at night. Woke up around 3am with nausea. No vomiting. I have been nauseated ever...
Thank you so much for letting me know that it did actually resolve itself. That is what I was worried about more than anything. My A1C was 7.2. I am on 7.5 of prednisone now. Trying to wean down as...
Thank you Weary. I do believe I have heard that before. I have been on 10mg for years and years. So when I dropped that to 2mg I had withdrawals. I misunderstood what my RA doctor told me to do. He...
Wow Melissa that is very scary. What happened to you. I surely don’t want anything life threatening going on with me if I can prevent it. My rheumy called today and made sure I went to 7.5mg. Not the...
I spoke with my RA doctor today and he is increasing my prednisone to 7.5. He said 5 was too much of a drop. That is why I have felt so bad. I am keeping watch on my sugar levels and so far right now...
Lanie thank you so much for all the Information you shared with me. I really do appreciate it. And you are so right. We have so many more tools and Information available than they did when my aunts...
Stray dog thank you for telling me that. My sugar level is 197 right now. However I ate a big lunch at 1:00 so maybe that is why. Plus I has good old sweet tea with it. I’ll check it again later to...
Thanks Lynnwood. I appreciate all you have explained to me. I’ll certainly call my doctor tomorrow and find out if he wants me to come in for that bloodwork. Hugs Peggy...
I know this was a very old post but I am facing diabetes due to years of steroid use. My A1C was 7.2. I’m trying to wean off of the steroids as I have RA and I haven’t been able to get off steroids...
Thank you so much for your reply. Very helpful. I was worried about maybe having to go on diabetic medication. Diabetes runs high in my family as well. My mother is insulin dependent and up until...
Lynwood thank you so much for telling me this. I will certainly try this for sure after I level off with the 5mg. I will be seeing my rheumatologist in September but I can contact him anytime through...
Hey everyone I am usually in the Rheumatoid forum. However I have been on prednisone for many years. I had my a1c checked the other day as my glucose has been running high. It was 7.2. Immediately my...
Have any of you become a diabetic due to prednisone? The last check on my a1c I was 7.2. Doctors wanted to put me on something for diabetes right away. My RA doctor said it was steroid induced. I am...
Hey Straydog I went back up to 5 mg this is day three and it has made a world of difference. Pain is better but more than that the fatigue is much better. So I think I have hit the sweet spot. Lol....
I am weaning off of or trying to wean off of prednisone. I went from 10mg to 2mg. I am pretty sure my Rheumy thought I was on 5mg. So he told me to go to 2mg. I realize I cannot do that. I have...
He told me the name of it but for the life of me I cannot remember it. He did say it was by the same folks that made I believe humira but he said it’s a totally different drug. I do take a 1mg folic...
MsOuchir my appt went good he stayed with me a good while. We talked about what I had been on and what worked the longest which I couldn’t remember and since they switched to a new system he don’t...
MsOuchie I think I am going to quit the sulfasalazine. I have been up with anxiety attacks and have had to take a Xanax every night. I don’t like having to do that. I know it’s the Medicine doing it...
MsOuchie so what are you on now? My doc wants to see me Wednesday has a lot to talk about. Thank goodness he told his nurse to get me in. I’m so thankful. He did send message back for me to start...
MsOuchie my doctor has his nurse send me a message today. Said my Simponi has quit working not to take anymore. I figured that was the problem. Usually is. Anyway back to square one as I have taken...
MsOuchie yes I call and get put on the cancellation list. But it’s almost impossible to see him that way too. He is in such demand because he is a good doctor that cares about his patients. And out...
MsOuchie thank you so much for your response. I actually sent a message to my RA thru the medical portal we have and told him how I am feeling. Hard to get an appt with him and my next one is about 4...
I am so tired. Literally. Mercy me I hurt sooo bad. My RA is raging. I have a sed rate of 92. I know different scales read different so mine ranges from 0 to 30. Gives you an idea of how bad it is....
I had the same problem. My rheumy immediately sent me to an oncologist. He did lots of bloodwork and said I was fine. So I have continued on with my biologics. I don’t want to be cripple and my RA is...
Hey Don I have been reading your messages. I too have been where you have been. My husband died suddenly right in front of my eyes three years ago. I have been coping with that and have been awfully...
I was on plaquenil for years. It started effecting my vision. Even tho the optomologist said all was good I quit taking it. Vision is about the same but it worried me. I can’t tell I’m off of it...
I too am seronegative (sp) lol. I have had the Vectra D test done. It is very expensive. However they have a form you can fill out to help pay the test. I had bcbs and it was with a very good company...
Oh Don I am so in the same boat with you. I too am trying to get on disability. I’m finally at the hearing stage. I have been so depressed and my doctor finally changed my citalophram to Cymbalta. I...
I am so very sorry for you. The flu is the devil especially when you have ra. My doctor jacked my prednisone up to 10mg a day until I can get the new ra medicine. So here I go with my eating and...
Just a quick question to you all. When my RA flares or my meds quit working on my I just give completely out. I mean go to bed and sleep and sleep kind of give out tired. Is that they way y’all feel...
Has anyone ever used Kevzara before and if so what could you tell me about it I will be on it as soon as my insurance approves it. Thanks Peggy....
Weary it starts out like a pimple then from there it starts getting infected. In the private area it feels like a hair gets pulled then it feels bruised. From there it swells then bursts. I am so...
I am so aggravated. I have no idea what is going on with my body. I was put on imuran for my ra. Of course I'm on plaqunil and 3mg of prednisone. Well let me back up I was on actemira. I took one...
I took orencia I had no reaction to it it worked for me good for maybe 6 months thrn it quit working on me. However in answer to your question I do think you can have a bad flare when you are having....