before biologicals were out, plaquenil was the only med that gave me relief. It is subtle as it works, but one day you realize how much better you are. I had some initial GI issues the first few...
Methotrexate is probably a good start. Did it give you any relief? If you stay on in, make sure to stay on top of your bloodwork to keep an eye on your liver functions. Also, drink lots of water...
that's awful! is there something that can help with the symptoms and pain?...
I know it's been a looong while, but how are you doing? Did you find a good doctor that helped you find the right medication?...
Michelle - hope you are doing well on Rinvoq. I had to stop. It ultimately affected all my lipids (cholesterol, liver enzymes, etc) I had to stop. It was an absolute miracle drug for me, but...
I'm not sure if you're saying I have blind faith in doctors or making a general statement. But a rheumatologist should have the knowledge and experience to know how to test and manage any prescribed...
Hi Stella, I know exactly how you feel, but I can tell you that your life is NOT over because of this disease. Yes, you'll likely have to start taking something for the pain and issues, but with the...
I hope the prednisone works. I know many people who get relief from it. I cannot take it - it affects me negatively mentally. Pain on top of pain is miserable - and I hope you find something that...
Trust me, you are NOT alone, but it can feel that way if no one around you seems to understand why doing the simplest of chores is like asking you to stand in for Atlas. I hope your doctor can find...
There is a connection. I'm told by numerous doctors that the three foods that affect inflammation are: gluten, dairy, and sugar. For a few years my inflammation was out of control - once I went GF,...
So, how have you been feeling? What treatment did you all finally decide on?...
i hope the night guard helps. have the decided what to do for the hypertension? any better since late July?...
Hi KM, I went through similar issues in 2015 - crazy vertigo and dizziness. They did all sorts of tests to figure out what was wrong. Every doctor said they couldn't find anything but inflammation...
Hi Lainy - so sorry to hear what you have gone through. It really stinks, and, yes, there are many here who can relate I'm sure. Are there pain support groups you can join in your area? Maybe find a...
Peggy- so sorry to hear you cannot take the med. There are so many new ones out these days, it is nice to have options. How are you doing with the injections and Imuran? I am now dealing with...
I'm glad to hear you're not leaving your family and I saw in another post about trying a new cocktail of meds. good luck! As for the flu shot - i started getting a yearly nasty flu every January and...
Thanks. Fingers crossed you get relief from the meds....
Yeah, my kids are a freshman and sophomore in college. My daughter commutes on public transit, so I'm really glad she's home. What did your doctor give you? Restasis? Xydrol? I got relief from both....
Thank you. Yes, the kids are home as well. It'll keep down the worry. A lot of folks already were at home yesterday at work, and for a moment I thought maybe it wouldn't be so bad to keep coming in...
Yes. It's been amazing when I can suddenly do something I haven't done in decades. Almost makes me cry. Yes. I see an ophthalmologist every four to six months. For the plaquenil checks and for...
Well, the Rinvoq has been a roller coaster - but mainly for good so far. Within 2 weeks I started to feel better. But, I have had some flares - they seem to revolve around weather changes, which I...
Sorry to hear of your pain. Have you tried seeing an orthopedic surgeon? Is it possible the arm pain is displaced pain coming from your shoulder?...
Hi Don. I already live in San Diego - so there is not much better than that, however, Az can have some nice drier climate certain times of the year, but I hate to see you have to leave your family...
Hi there, I've had a lot of ear issues with my inflammation and psoriasis. You didn't mention what kind of doctor you see - but I would suggest finding a good ENT if you haven't yet. Also, maybe try...
I'm so sorry to hear the struggle and the fact there is no help for single people in your state. That is crazy! I hope you are able to find some government assistance to get yourself proper health...
Hi JRBear, yes, you can have more than one type of arthritis. Did you find out if you have gout? The redness and swelling kind of sound like that. Do you take any meds for your OA? Does Tylenol...
Hi Don, Rinvoq is a daily pill. According to the nurse ambassador I spoke to, it's very sensitive and needs to be taken pretty much at the same time daily and kept in the original bottle as it's...
Yes, I have seasonal flares as well. It's a real thing. There are some books out there about changing your diet during your "bad" season (like making sure you eat non-inflammatory foods), but I'm not...
Thanks for the quick reply. Having only been approved and out for a few months, I can't find any reviews online about it. Hoped someone here has been on it to give first impressions. I will likely...
My doctor would like to have me try Rinvoq. Does anyone have any experience with this? It was just FDA approved in August and that scares me a little. I have taken Remicade, Arava, Humeria, and...
Sorry to hear you are struggling. I've been there and am there. Anxiety and depression are irrational diseases and can be difficult to control. However, if you're jittery and can't stop your brain -...
Thanks for the suggestion. Although I have most of those symptoms and had blood work show positive for sclederma, a series of tests i took 3 years ago indicated I actually do not have it. I do have...
A few years ago, I was stricken with severe reflux (even though I was already on Nexium daily), high BP, and panic attacks. I was told to try Zantac (OTC) as a more immediate relief help with the...
Hi Autoimmune, I'm so sorry you are going through this! :( Have they started giving you any medications? I had many of the issues you had, but I cannot tell you what helped what (it was forever ago...
I have the same problem! I never thought it might be the meds, but that would make sense. Someone told me recently that reflux can cause it as well, and I have that pretty bad as well (worsened by...
What medications are you taking?...
Hi Jade, did you get an answer to your questions? Methatrexate can help but can be difficult at the same time. You need to have your liver checked regularly (via blood test every month or every other...
Holy cow.....that is pretty bad! I was once bed ridden as a teenager...was in a dark room for a week or so. Finally, my fever spiked so high, my parents took me to the hosptial....apparently, getting...
Sounds like it wasn't for you. Good for you for being proactive on your own health. It's unfortunate we have to be our own advocates so often....
Oh geez! I feel for you. The best thing I can suggest is, don't let him dismiss you until you're ready. Make a list of everything you can think of to go over so you don't get flustered and make him...
I have psoriatic arthritis. You could have an autoimmune issue with it, or your body is just struggling right now with the adjustment. It is common to get feverish during a flare. I have immune...
It started to become so common, there was no need for calendar marking...I knew, once I felt that way that 'my time' was coming within the next 3 days....
YES! It is AWFUL! Awake for days with awful pain and insomnia! It seems to be related to how severe my PMS is that month. I started taking Evening Primrose to help w/PMS symptoms, and that did help...
It takes about 5-6 months to fully kick in. but, if you are not feeling well on it still, it may not be for you. It was just a few weeks of ick for me. make sure you take it with food (I realize I...
Good to hear! happy bday!...
I also take it twice a day - but not at exactly the same time. It takes about 5 days before I feel missing it...a dose here and there, I'm okay....but, if I miss a dose 'here and there' a LOT....it...
When you need it, you need it...and it's unfortunate that people judge. I hope you find some reliefe from your 2 year flare! /community/emoticons/shakehead.gif BTW, I have to ask, I was diganosed...
Hi Mom, last year I was tested at 19, was put on 50,000 units for 3 months and retested at 13! I even made an attempt to be out in the sun more - even though I (as most of us do) have issues if i'm...
hard to say - have you been to the doctor? It almost sounds like an infection, but it could be a severely swollen area too. I'm not sure what a TKR is.......
Wow...I took Remicade for 2 years before I stopped (i ended up getting non-stop respiatory infections). That is some scary stuff. Some things I attributed to the drug: I started waking up at night...