I said that I stay away from meds and will as long as what I am doing is working. I am not trying to tell anyone who is on meds to stop. I am saying that you can make things a lot better by eating...
Welcome, For the most part we all survive. Attitude, diet and everyday stress has to do with how well. I stay away from the prescription meds. I will do so when my staying away from flare foods and...
When I was 8 I had extreme pain in my legs. They did every test imaginable and finally decided that I grew too fast. My question is did you daughter grow extremely fast? It could be that. A lot of...
I can relate to you... I have sjorgrens and lupus. They diagnoses me with both and since I have been taking the supplements, I am testing negative. I still have the symptoms of both, but my pain...
I stay away from the prescription meds. I will do so when my staying away from flare foods and taking the proper vitamins. I take 3grams of omega 3 fish oil, 3 grams of evening in primrose, 2...
I have severe knee pain also. I also have braces PTO that keep my knees from going out of joint. I started with bakers cysts that were caused by a low GLA. I took 2 or 3 1300mg a day of evening in...
You should see an orthopedist to have your back and hip checked out. You shouldn't ignore the chest pain in case it is something serious. It could be your back referring pain to your breast bone. I...
HI Nancy, I take Hylaluronic Joint Complex by Source Natural...it is different than most joint things...for me it really works. I also started with 3- 1000mg Omega 3 fish oil, 2-1300mg Evening in...
I had a positive ana and started taking 2-1300mg a day and my ana went back to normal. If you have a low GLA (check it out on the web) your ana can be positive and you run the risk of having bakers...
I have the receding gums and use a braun electric toothbrush (soft) to brush and stimulate the gums. I also use Biotene mouthwash to increase the enzymes and moisten the mouth. They make a gum (as...
Cate55, I do not take meds and my hair is so thick it is hard to comb through it. It is very fine also. I will tell you what I have done...but you have to check with your doctor. I started out with...
When I was first diagnosed with Celiac Sprue I had a severe vitamin A deficiency. I had to go to and endo and they gave me such high quantities of A it would kill a normal person. I was under strict...
Lynnwood, I took my son at 14 to a medical neurologist because they concentrate on fixing the misfires and weird happenings of the brain. He has celiac sprue and this cause epilepsy. If you didn't...
I use Refresh drops and take 4 x1000 mg fish oil everyday and 3 x 1300 Evening in Primrose oil. This helps a lot. Remember to blink a lot so your eyes get refreshed. When you get intent on what you...
Itching can be normal with lupus or sjorgrens. I used to wake up trying to tear my face off. I actually had to put cotton socks over my hands to stop from hurting myself. I starting taking 3 -1300 of...
You can try Sarna sensitive for the itch. You need to talk to your doctor about taking supplements such as evening in primrose( I take 3-4) to bring your GLA up and fish oil (I take 4)to help with...
There are a lot of natural things that you can do. You need to work with your doctor and make sure that he/she approves your supplements. Read this book "Curcumin: The 21st Century Cure: Prevent and...
I recommend Extra Virgin Olive Oil...Costco, Santini, World Market or Trader Joes. It is good for everything and doesn't feel the effects of heat until 350 degrees. If you are cooking in a wok then...
Lupie girl...have you ever been tested for Sjogrens? It is a possibility. I take 4-1000mg of fish oil, 3 1300mg. of Evening in Primrose and 2-2000mg of vitamin D. You might have your doctor do a DHEA...
:idea: You might want to try fish oil. I take 4-1000mg a day. Along with my 1300mg of Evening in Primrose 4 x's and Turmeric Curcumin 500 4 x's. This helps to keep my eyes better (still use drops but...
Turmeric Curcumin 500mg 4-6 a day helps with the inflammation. You should check with your doc. or pharmacist first. I also take 4-1000 mg. of fish oil and 3-1300mg evening in primrose. The primrose...
Most the literature and test studies say that you can take up to 12 grams a day. I would not recommend this much. 3 grams is more than enough to lower inflammation and not cause any problems. You can...
I agree with you that Qigong and Tai Chi may not be your primary treatment. I have seen people with lupus open the channels in their body and lower their pain to almost nothing. I wish it worked that...
If PT is helping it is the track that you should pursue. They can teach you exercises and most of all they can teach you how to stand, hold your head and how to lift. If you are pain free at PT and...
Someone needs to make the Dr. aware of what is going on. He will make sure that this person is either put in a rehad programs or he will put him on something else and bring him down gently. My friend...
Do you know how to do curls? You lay down and make a tee pee out of your legs. Then you squeeze your butt together while pushing your back flat on the floor. While you are doing this you have your...
I also had something like this. The Doc said it was my back and gave me some exercises that works. When he poked my back as the same level of the rib...almost went through the roof. All he said was...
Since I started with my 3-4 1300 Evening in Primrose my hair thickness has double. My eye lashes have grown 1/2" and the downside is that I have to pluck my eyebrows for the first time in 20 yrs....
Antioxidants destroy the free radicals in our body that cause cancer and a whole host of diseases, including Parkinson's. The AI diseases attack our body and the attack can be misguided as we all...
What helps me for the leg and other cramps is drinking tonic water. I drink an 8oz glass a day until my body stops cramping. It is a simple way with no added drugs. Anytime you have heath questions,...
I use the Biotene mouthwash and also their gum. Walmart seems to be the cheapest for the gum and Costco for the mouth wash. The nice thing about the gum is that you take it with you. When you are out...
Actually, the Asian are afflicted by Lupus and it is usually more intense than the effect on a Caucasian. Checkout "Healing with Whole Foods" by Paul Pitchford. Nothing is 100% and people of all...
Proper nutrition and exercise...even moderate such as walking is great. The old adage, "if you don't use it, you lose it" says a lot. I have always eaten well, not I eat better. Dairy and Gluten...
Alikat87, Talk to your doctor and see if you can take 1300mg Evening in Primrose twice daily. It is good for you and will bring your GLA up and should lower your flares. Also, 500mg Turmeric Curcumin...
I am a vitamin person...I would try a couple 1300mg Evening in Primrose and 4 500mg Turmeric Curcumin. It seems to take down the inflammation and lower the body temperature. I actually take 3-4...
I have just recently change my GP. I asked my wonderful Rheumy for a recommendation. This way they can work together. My GP is also wonderful. When I needed to go to an Orthopedist, it was also my...
Have you dried to be dairy and gluten free? This will not change your test results and helps to lower the pain. I also take Hyaluronic Joint Complex by Source Natural 1 tablet 4x's a day. This will...
Hi Sayyadina, You are already fighting the enemy within. You need a new Rhuematologist that will work with you . I take 4 500mg Turmeric Curcumin, 3 Mega Primrose 1300mg and 4 fish oil 1000mg ea....
JeanFour, My mother had the dry eye with constant tears. There were always tears running down her face. The optomologist confimed "dry eye" diagnosis. On the other hand..mine were as dry as popcorn.....
leighb, I have had the plugs and it helps a lot. The problem is that they do fall out and you will not feel them go. My ophthalmologist charges $500 and will replace them as needed. Since I have been...
lucysgd, It takes 4000mg's a day to start to lower the pain. The side effect is that if you are taking that much it start to clear the plaque out of your arteries. Also, it is the Evening in Primrose...
It can be related to the Lupus when the nerves get inflamed, they lock up and it feels as if you are being stabbed with a knife. The safest thing to do is to call your rheumotologist office to make...
I had a rheumotologist like that once. I have moved on to a wonderful rheumotologist who asked questions and listens. I am with Lynnwood, you need to move on a find a doctor who will do what you need...
Hi Sunshine1948, It sound to me like you have Celiac Sprue. Try going gluten free and dairy free. If you have it your life will be sooo much better if you are gluten free. It is another autoammune...
Have you ever had a biopsy for Celiac Sprue. You don't have to have the classic diarrhea. Some people get dry eye and the same symptoms as Sjorgrens. It is not uncommon to have both. You can try...
I use the Puritan's Pride Coated fish oil 1000mg 4 x's a day and the same with Evening in Primrose 1300mg. This increases your GLA and helps with the muscle and joint pain along with lessening the...
I have never taken Plaquenil, but I do manage without it. I starting with taking 2 evening in primrose 1300 and then needed to go to 4. I also worked my way up with fish oil to 4 a day. For the...
Hi, I use four fish oil and four evening in primrose 1300. I also take 4 turmeric curcumin 500mg which helps to lower the inflammation while boosting your immune system against infection. It is...
Try to take fish oil and evening in primrose or borage oil. They bring your GLA up and can normalize your ANA. It worked for me. I take four puritan's pride fish oil and four Twinlabs Mega Primrose...