I took remeron, melatonin and seriphos for the insomnia. Once I gained remission, my insomnia dissipated, and I was able to sleep. I had night sweats, which may have been from fevers. I have read...
You may need to find a doctor who is open to learning about it. Print out the study by Dr. Montoya at Stanford and show it to him....
I have posted several times in this forum, but I thought I would share my story, so it would be visible to more people. My hope is that all of the research and time I spent trying to figure out CFS...
If your fatigue etc. is from EBV and other viruses, you can be treated successfully with Valcyte, Famvir or Valtrex. I had CFIDS caused by viral infection-- had it for 3 years, VERY severely; I...
Actually, my primary doctor gave me a lot of the pathogen tests. Anyone can do them for you. F&F Center is definitely not the only way to go. I really would look into Dr. Lerner. He specializes in...
Well, I hate to say this because it sounds ridiculous, arrogant, etc., but I think the folks at Mayo are wrong about anti-virals effects on latent EBV, latent HHV6 and latent CMV. Tell them to get on...
I went to the centers back in 2006/2007. All of my information on the centers is from that time period. They do not take insurance, except for bloodwork. You can file a claim with your insurance...
The CFIDS guy is WRONG!!! Mycoplasm is ABSOLUTELY a pathogen that causes CFIDS and keeps CFIDS going. I had CFIDS from EBV and HHV6 for several years; I never had any bacterial issues. However, my...
I went to those centers. That's who helped me in Atlanta. They are very thorough in testing, which is why is is SOOOO expensive. But you do need to get all of the testing to know what you're up...
Minnesota- What viruses have you been diagnosed with? I had chronic fatigue for several years and got mine into remission.... and I had it VERY severely before. But I only had viral issues-- I have...
CHIA SEED!! I have had Sjogren's for 10 years. My worst symptoms are constipation and dry lung that results in my getting pneumonia. Like a previous poster, my constipation has been so bad that I...
It sounds like text-book chronic fatigue immune dysfunction syndrome to me. I'd buy the book "From Fatigued to Fantastic" by Dr. Teitelbaum in order to get educated about the condition and...
Mark: I've had lots of achiness since developing cfids, especially in my legs and hips. The only things that initially worked for me was bengay and hot baths, both of which were very temporary. I...