Saw the new Rheumy today and I'm flaring big time. Bad joint pain and fatigue like a train hit me. We're uping the MTX to 20mg a eek and the pred to 10mg a day for a while. Hopefully we'll kick this...
Well, after 4 years of diagnosis limbo, my new Rheumy at the Emory Clinic in Atlanta believes that all my issues are Sjogren's. It's hard to believe that the incredible amount of joint pain, the...
I used to get migraines from fluorescent lights, now with my new glasses that have UV block, glare block, and transition lenses as well as being on Topamax for migraines, that's no longer a problem....
/community/emoticons/cool.gif Greeting Everyone!! I'm back from Miami and Thank God! Think of the hottest you've ever been and multiply it 20. That's Miami in June. I set my Mom's A/C at 71 ad the...
Thans Lynnwood, Actually it turned iton a brief steam room when it stormed briefly, then it just started cooking again. Went to the store, got ice cream, snacks and dinner, came home and washed off...
Here's the latest folks. Turns out I've had Strep for, oh about 4 weeks. That explains alot. So at least I can look forward to feeling better soon and hopefully kicking the snot out of this flare...
/community/emoticons/turn.gif Well, Ya'll will be happy to know I'm taken it real slow. Didn't do much today. Coulnd't do much today. Movin' like a slug. Between sun sensitivity, MTX, pred and...
Well, unfortunately, I've got two big dogs and a cat that need looking after while we're gone, so we've got people staying in our house while we're gone. So, of course we have to clean before we go...
http://www.lupus.org/webmodules/webarticlesnet/templates/new_empty.aspx?articleid=3263&zoneid=99 This could be really good new guys. This is the first new drug in 50 years and it could be...
The other night DH and I had to stop right at the begining of you know what, couldn't even get started with lots and lots of KY. I hurt sooooo bad, never had pain like that before. I got those KY...
I hope you're feeling better today, Anne....
I'm sick of it too, if that's what they decide I have. It may just be a really, really severe case of Sjogren's Syndrome. Whatever... I'm tired of it too....
I take Tazadone, I can't say it's done much for my pain or sleep, but it's one of the few anit-D's that hasn't made me crash into a major depressive episode so I guess I'm sicking with it for awhile....
So nice to hear from you Carol, and like always thinking of others. See if they can can find you someone else, this lady sound too much like my 10th grade Latin teacher BLAH! Send smiles and hugs....
Well, here's the latest. My PCP, an angel by the way, said we've got enough documented on the chart for him to be ble to tak eover on the pain meds. I can have my 4 Lortabs a day back. WHEW. I really...
YEAH!!!! Gotta LOVE the good days!!...
Oh Sweetie, I have been there. I can't say it was an easy road and can't say that my husband stayed completely true. Mine became very interested in certain websites as my energy declined,...
I betterupdate my heat/sun intoleance reply. Yes I do still cook frm the inside ndall that, bu there is a bit more. I apparntly trigered the worst flare yet from chatting with a friend in a parking...
I really can't remeber, but I think it wasn't until after he was born. It was probably a good thing, because I was an emotional mess with preggy hormonnes anyway, I can't imagine that increased by...
You've got a lot of the same symptoms as I have. I also have a positive RF and the discoid, or actually they act more like hives, awful when they act up. I just wanted you to know that come July 3 it...
Well, Everyone, Still feeling pretty crappy. The hives are starting to fade a bit, but the joint pain is still pretty bad. Dummy pain doc has decided that there is no justifiable reason to continue...
How are you, Carol? I've been thinking about you and praying for you. Just wanted to check in and send you a smile :). Take care....
Dear Sweet Carol, please know how dearly we all love love and treasure your words. You inspire us, you give us courage, don't give up. I am sending you love and hugs and prayers....
Thanks guys, advice heard and taken to heart. Gonna try to find a side without hives to sleep on now. nighty night....
Yeah, Tell it to my kids. That's when it gets tough. My poor DH works all day in the hot sun then comes home to two boys that have have been cooped up with boring old Mom all day. My 2 almost 3 year...
Thanks Lynnwood. It was that blasted sun. Talked to a friend for 15 minutes in a hot parking lot and here I am. Dumb, dumb, dumb. Well, we'll get on top of this one and get back on top. I've been...
Thank you, Anee and Amy. Can you believe I'm still in diagnosis limbo? But at least I'm getting treatment. I had 27 wonderful day and I know the sun will shine if only metaphorically, I know I...
I certainly hope so, this one is certainly a bad one. I never get hives this bad unless I run out of Plaquenil. I would love to sit in an oatmeal bath, but I'm afraid I'd have 2 sea monster diving in...
Well Folks, I guess my 27 days of feeling of human are over for right now, but I'm trying to stay optimistic. I'm in the middle of a huge flare right now. My hands are really killing me, so I may...
No one truly knows do they. That's why I keep finding my way back here. You're the best....
Plaquenil took a good 4 months to start working for me and even then it wasn't until I stopped taking it that I noticed what it was doing....
Oh, well noting ever gets rid of all te pain. that's just something tat I've com to terms wit. The shots arereally seeming to help, I'm just nt sure how long it will last and how often I'llhave t get...
How're ya feeling, Lori?...
They really are pretty cool....
My PCP told me that 5mg is not so bad a dose to stay on indefineately. It really doesn't cause that much damage. Every time I've tried t cut back to half of that, I immediately get red swollen...
I REFUSE to ever stop taking my Plaquenil. When I do, it only takes about three to four days to feel like a trains has hit me with the fatigue and the hives from Hades start cropping up, I mean big...
Is it the morphine er? I was supposed to take the low dose of that as my round the clock pain med but the constipation was so bad I couldn't poop without exlax. AWFUL. Got off that one quick. With...
Sounds like you found a good on lifeispeachy. Lyrica didn't do much for me, unfortuneately, the Lortabs have always been what has helped me the most. Day 1 and 2 after the Kenelog shots are pure...
look ofr these things called Miracool cooling bandanas. You'll have to Google it. They are bandanas with these aborbant crystals inside you soak them in water and they puff up. You can wrap them...
Oh, there's no insensitivity with my friend, she's just not that bright. LOL...
Lori. I hope you feel better soon, but I'm so glad you didn't wait to get treatment. It sounds like you really made the right decision. Take care and get some rest....
I've been on Plaquenil for 3 years now and I never really had any bowel problems, but it never really did much for pain for me either. So I've always had to take some kind of pain medicine. If I go...
Don't give up, you know something is wrong, you feel bad. I was corrected on the Lyme results and I know that ANA and such can fluctuate as well. Keep searching for the answers and don't let anyone...
Hi Lori, Just wondering if you got a holdof your doctor today? This weekend is a big holiday and no one will be around. My doc left town yesterday and won't be back until Tuesday. I've been thinking...
You know Pat, I was reading that on the Migraine Forum forum, that people were actually calling it "Dopamax", that they felt drunk and silly while taking it. I have gradually working up on the...
Hey Everyone, I'm not sure how many of you were following some of comments in other threads about the migraines, photosensitivity and Topamax. I've been on it since April 12, 2010, my Neurologist put...
I began taking Zantac 5 years ago when I started Claritin for hives, it was added as an additional antihistimine, to attack the hives from another angle. When the cause was deemed to be AI and...
Don't they drive you nuts???? I still have a friend and a very close one at that, that still believes that I just need to get in the sun more and get more exercise....
Okie is right, the prednisone also will inhibit your ability to fight off infection. Take care and try to get some rest. Chicken soup and hot tea!! Take care....
Okay, so just a follow up on this new guy. So far I'm happy with him. He seems very knowledgeable and I really grilled him because some of his forms said to inform the doctor if you are allergic to...