Hey! Yeah, I've gone down from 120 of Dexilant to 30mg and am preparing to wean off of that dose too in the next few weeks. I still have occasional issues with a sore throat/LPR, but it's not as bad,...
Hey Phil, Thanks for the update on Endostim stock. Update isn't dramatic, but it's generally positive. I still get a touch of the sore throat a handful of times each week, but nothing terrible....
Hey, Things are about the same as the last update I think-- still feeling pretty good. Only occasional instances of a sore throat during the day, but not all that often. I had a scare where I thought...
Okay, another update: I'm eating the Swiss dark chocolate caramel and sea salt bar which I saved from Europe. Ate 1/3 this morning. Eating more now. Feeling good. Only had two cough drops today when...
Hey, So I haven't ever had terrible swallowing problems (that I can perceive anyway-- the manometry suggested otherwise). I can still tell that things go down a bit slower than they ought to, but I...
Hey there, So I'm still having the sore throat issues and this week a bit of chest pain/tightness as well. My concern is that my LES pressure started out in the high-normal range, and lately I'm...
Also, for any women out there who might eventually go for the alternate placement in the upper abdomen, I will tell you I wasn't prepared adequately for the nerve pain I had weeks 3-6 around my ribs...
Hi Everyone, Sorry for the long absence, but I was on a road trip through Yellowstone and the Tetons, and so I haven't been online much for a while. Update: I bumped down from alternating 120/60mg of...
Hi everyone, I'm trying to taper off of a high dose of Dexilant and was wondering what other people's experiences have been in tapering off. I went from 120 to 0 podt-endostim for a week (that drop...
Hey Angelcat, LPR was the start of my ongoing condition. It's come and gone and morphed into different things over time, including dysphasia, chest pain, some regurg etc... At first I cut out...
So I just got back from my follow-up, and everything is working the way it should. They did a double-check x-ray and barium swallow to make sure everything's still as it should be before sending me...
I know this might not work for everyone, but before I had reflux diagnosed a few years ago, I had the same chronic LPR cough that you guys had for six months. I did the inhaler thing, went to the ER...
Still have the LPR, Dan. Not much new to report, and I suspect you and I will have to be patient and give it time to see how it works over time. I still have a good amount of irritation around the...
Pink, the reza-band looks interesting-- hope it comes out soon and offers some relief for you! I tried to look up nude beaches around Munich, and found a Forbes article suggesting there are several!...
Howdy Pink, Thanks for asking! I just relocated to Munich, and I'm feeling a lot more stamina. Tomorrow I think I'll go wander through the city to see some sights for part of the day. I'm finally...
I asked again today about adjusting the device. My German doctor said that their current policy is to keep it at the standard 30-90 intervals for the first 2-3 years, and then afterward, they will...
Hey- yeah that about sums it up! Right now they have mine set for 30 minutes on, 90 minutes off for 24 hours, so 12 sessions a day. I'm not sure at what point they'd do more specific tweaking, but...
Also, to those who are interested- you can definitely vomit and burp. I've been doing plenty of burping, and I vomited once (from opiate-induced nausea) the day after the operation....
Hi guys- wow! Sorry I'd forgotten to check for a few days, and my email stopped reminding me that people had posted for some reason. Okay-- so as to the four weeks: it was part of what I agreed to...
Hi Speden, Thanks- I'm doing better each day now, but still moving slowly. My doctor is having me stay over in Germany for a four week follow-up, and I will also need to return to Germany for a six...
Hi, It's a laparoscopic procedure, so minimal cutting and also minimal internal scar tissue-- unlike the LINX, which works by digging into the esophagus and becoming embedded in a "capsule" of scar...
Thank you so much for your support! I'm improving every day, and I hope this will prove to be one of my better life decisions....
Hey guys-thanks for the well wishes! (spoiler: this is a repeat post from the Facebook Endostim/Linx page. I'll be posting identical threads there and here so that it can reach a larger audience)....
Sure! I sent it all in English. Endostim can be compatible with pregnancy-- currently the policy is to turn it off in the event of pregnancy (while keeping it in and ready to be restarted), but...
Sure- here's my symptoms run-down: Approx 4 years of periodic PPi use before they stopped working very well a bit over a year ago (5 years total since diagnosis). I'm a female, treated from age...
And by 20 year follow-up, I mean 10 year follow-up...
Thanks everyone! I'm in my hotel in Castrop-Rauxel Germany right now. One day of exploration, one day of hospital prep, and then the surgery on Thursday- wahoo! As to the Stretta, interestingly, none...
Hi Everyone, For those of you who don't know, I'm flying from the US to Germany to get the Endostim, and the time is almost here: this coming Thursday's the big day. I'll be posting some of my...
Yeah-- check this site out too. Seems like this condition can impact everything from blood vessels to the gut to the joints: http://www.ednf.org/eds-types Good luck....
Hey Linxcat, What's your doctor say? There's a few possibilities. I remember from other posts that this could either be rebound OR you somehow tore the capsule scar tissue leading to temporary...
Hey guys, thought people might find this interesting: I went into the orthopedic yesterday to see about an issue with my feet that's been plaguing me since my last half marathon (turns out it's been...
Hey-- thanks for posting! This is so good to hear, because I've got my Endostim surgery scheduled in a month, and I just found out the tendonitis I thought I had in my feet over the last year or so...
Thanks everyone! That's all really helpful!...
Opinions on safety/efficacy welcome! My doc suggested it, and I'm considering but reluctant to try it. Basically the 60mg seems to have stopped doing the job for me, and there is an end in sight, but...
Will do! I'm flying out there mid-August, so more updates after that......
I got it- thanks! I'll send you a reply once I'm back in town in a week from Sunday....
Thanks! Basically when I eat things like sandwiches this week, I can feel the bites if food moving down more slowly than they should. I'm on the road and don't have my report in front of me, but I...
Hello all, So, my esophageal doc said that based on my dysphasia symptoms and 40% normal manometry in the fall off PPis (not severe, but slowish swallowing when reflux is bad, which it often is...
Hooray! Congrats on the wine :)...
I say go for the alcohol. From what I've heard other linxers say, you should be good to go after the surgery! I feel like, also, when/if I get the LINX this summer, alcohol and coffee will be my...
Sure, speedygerd, here's a link to the facebook page: https://www.facebook.com/groups/201278776669716/ (you have to request membership, as it's a closed group) And my source, from the Brian Louie...
I'm 29 and trying to decide about the LINX. For what it's worth, you can now have MRIs that are given at low intensity (.7 teslas) and MRIs with LINX will probably become more feasible in the future...
Good for you for getting out and moving around! I think you're very wise. I hope your throat begins to heal soon. I just got the news that my insurance denied my procedure for the final time... oh...
Hi Linxcat, I've had the same story-- about 6 years of intermittent reflux and the past 9 months of unremitting reflux that breaks through even while on the highest dose of meds. I'm currently...
Beach-girl, have you had post-op tests to rule out reflux or a biopsy to check for esophagitis or anything like that? Forgive me, I can't remember what you'd had done in your previous posts....
Wow- thanks for recovering this thread! I just copied and pasted it all for myself! I thought I'd lost all this information......
Huh. Crazy that they make you pay that much for a trial run. I guess I'd always assumed that part of the benefit of a trial is you taking a risk, and not having to pay much for it......
Are they already doing this commercially in the UK?...
Hope this turns out to be the case!...
Thanks, Pat. That's really informative....