Hello, so sorry to hear about your stomach/GI issues - I have them as well. I think some folks with sjogrens have stomach issues while others do not. I belong to another forum where stomach issues...
Sorry to hear you are being refused a chance to see a rheumatologist. Could be due to the fact that they are so busy and overbooked or it could be that your insurance won't allow a referral to a...
Hello - so very sorry to hear you are struggling with your new diagnosis. For me, getting a diagnosis was a relief to me - then I knew what I had and could explain why I felt the way I felt and look...
So very sorry to hear that your pcp is not taking your symptoms seriously. You need to find a different dr or simply demand a referral to a rheumatologist. Although I am "lucky" to have positive...
Thanks for sharing info on potential new drug for sjogrens - I have been hoping some other medications would be approved at some point for treatment or management of sjogrens. I take Evoxac for...
So sorry to hear about your health issues and struggles. Welcome to the forum. I belong to a few other forums that tend to have more members who are more active but I do check in on this one as well....
I use evoxac (prescription) - it helps with dry mouth and salivary gland issues. I got the prescription from my rheumy after I started having issues with salivary glands/dry mouth. If you are not...
Jason - i would totally agree with MaggieMc-try to keep moving (although it may be tough at times). Have you seen a rheumatologist for an autoimmune panel yet? You can actually ask your primary care...
Paddicake 77-sorry to hear you are not feeling well and having difficulty obtaining a diagnosis...for me personally, this was very frustrating and caused me to almost give up entirely. I had to...
I am so sorry to hear you are suffering with excessive mucus/sinus issues. This was the first symptom I had over 20 years ago which NONE of my drs picked up on until 2 years ago I became excessively...
Hello so sorry to hear that you are having neck pain. I have a firm diagnosis of sjogrens but have recently started to have allot of neck and shoulder pain. I have asked the rheumatologist about it...
I do not encounter allot of sweating but sometimes night sweats - just not frequently. Are you taking any of the medications for dry mouth? Those can make you sweat and feel dizzy....just a thought....
Hi Ken - welcome. Sorry to hear you are having the symptoms you describe. Glad to hear however that they have narrowed it down or at least are starting to. Certainly sounds like "typical" symptoms of...
Hi Maggie - I agree with the others...sometimes bloodwork is not positive but you can receive treatment for sjogrens if you find a rheumatologist who is willing treat based on symptoms. Also many...
I would agree with others...do not wait to try the plaquenil. It does take time to build up in your system. The most important thing to remember when taking it is to be certain to have a baseline eye...
Wow - that is so very awesome for you that you have had no other symptoms. I cannot relate to that and have been sick for years in varying degrees. I think if you are feeling well and not displaying...
Okay so I had a much anticipated visit with an ENT on Monday for recurrent sinus infections and issues with salivary glands...what a disappointment. The ENT was a dud - totally arrogant, totally...
Just wondering if anyone has salivary/parotid gland issues and what they do to help ease the pain and swelling. Any suggestions would be greatly appreciated. Thanks!...
Hi Rorie - I am replying to this post, I know it is older, but I am currently taking cipro and experiencing an increase in panic and anxiety. I currently have a script for lorazapam (ativan) at the...
Hi OliviaJ -so sorry to hear that noone is taking you seriously. I would agree with Lynwood to see a rheumatologist again. I have sjogrens and was treated initially with a burst and taper of...
I was just wondering if anyone else out there has issues with bladder/kidney uti's? I have just started having issues in the last year, never had any issues before. Thanks!...
Hi lil gabby - I use aveeno products and have not had a problem with them but I also use eucerin creams when my skin is really bad (mostly in the winter). Have you checked with a dermatologist to see...
Welcome lolokonoki - sorry to hear you have so many autoimmune issues but glad you have found some support. Sending positive thoughts and prayers your way....
Hi Mexgal1 -welcome to the forum. Sorry to hear that you have the tendency toward sjogrens, but glad you found a forum where you can gain knowledge and feel support when needed. I agree that this...
Hi Butterflake - so sorry to hear about your increase in dry mouth symptoms and your sweating. I have heard that the sweating can be caused by the pilocarpine, but not sure because I do not take it...
Thank you Lynwood - you made me feel so much better about my situation and my circumstances. Thank you again. :)...
Hi - yes I am being treated by a rheumatologist for primary sjogrens - he seems to think the plaquenil should help with the brain fog, but it has been about 9 months now and it often does not. I will...
Hello, I feel a little lost. I was diagnosed with sjogrens in january of this year and have been lost. Everytime I flare or feel horrible, I start to panic and hence have been placed on ativan (only...
Hi all - Happy Saturday. I was just wondering what, if anything, helps folks with brain fog. It comes and goes for me, but it is OFTEN part of my morning and sometimes (if I am lucky) it lifts by 12....
Hi all - I was wondering if anyone was willing to share what medications they are currently taking for sjogrens and what symptom relief they are receiving from the meds (i.e. plaquenil has helped...
Hi all - I am newly diagnosed as of January this year with sjogrens. I was relieved to finally find out what has been causing me misery for some time, but sad to hear what sjogrens can do to you. I...