Like it's become the living embodiment of Murphy's law. ROFL - that has to be one of the best descriptions I have read!!! Thank you I'm sorry you've had to research and join in - I hope the DR sees...
We bought my mother in law a self cleaning litter box - at first the noise did bother her (mother in law, not cat) but it worked great and was more than worth what we paid, until she decided to wash...
I have seven daughters 14 to 29 years old - Just like when they were toddlers I still pick my fights carefully and let a lot of what comes out their mouths roll right off of my back ;)...
My 14 year old daughter has tried them all - they are GOOD, her brother and dad can't tell the difference As an added bonus we found them at the 99cent store - much better than our grocery store's $6...
Hi Cathy, I was diagnosed 8 years ago with auto-immune hepatitis, they tell me it's brought on by Lupus - at that time I was stage 4. I have had a few flairs and once I was on the transplant list -...
My room and office are on the second floor - I have a small kitchen set up in my office - I have spent days without leaving this floor during a bad flair. I have a huge balcony that overlooks Los...
I loved Sherinne's pool stair fix (placing step stones to make the steps closer) and was wondering what other people have come up with to get around Fibro? I have issues gripping things - a trip to...
I miss my brain processing and my quick wit sense of humor ;) I also resent having to select A or B when I used to be able to handle both plus C and D...
I can't remember the name but a friend of mine has vests that hold "ice packs" that she wears to her sons' football games in Texas, she swears by them, even if they're not attractive ;)...
Sorry - hit submit too soon Check with Children's Hospital for a support group - Los Angeles has one for families that meets each month with a different theme, from nutrition to how to talk to...
I'm sorry that you had to join us A few of my daughters have lupus, I didn't know I had it or that auto-immune illnesses ran in my family until I was done having children - Oh, the guilt While I can...
For several weeks my upper arms have been hurting BADLY 24/7 I know that driving my van causes the pain, as does carrying in groceries but haven't been doing either any more than usual Unrelated to...
Not being sure of the differences... It may not use your ICU brain but have you looked into nursing jobs that would allow you to telecommute? I see ads for nurse case managers, help lines, even...
You have been through the ringer!! You must be incredibly strong and determined!...
I've been thinking about you all day Barbara I don't post often but I do read here I'm glad you're feeling well enough to post, sorry things suck right now for you. Honestly you're leaving my worst...
I use old school wire and don't worry what others think any more ;) Sometimes just having one pod in place is enough for me - I discovered that on a day when I was too lazy to take out my hearing aid...
People laugh when I describe it as a scene from a horror movie in the 50's, the sounds enter my brain but don't stop, they keep bouncing around until I want to scream and pull out my hair Music and...
I have that all the time, different body parts - I hear mine is from thin skin (whether prednisone or illness induced we're not so sure) - usually when I rub/bump against something but not hard...
Major congratulations on a job well paced and done!! If you're serious about wanting to learn how to post pictures I can show you, it's pretty easy - all you really need is a photobucket (or similar)...
99% of the time I'm not sure which issue is causing what symptom and do my best to forget about those things, distract myself, find solutions or workarounds to make life doable. I've passed my health...
I'm sorry it hit you so hard but honestly, 7 days and every Disney park would do in anybody - My husband and offspring have annual passes and go to Disneyland several times a month, there are always...
Hi Lynnwood - no, I can't feel them at all - it took about 2 seconds per eye in the regular office, looked like tiny clear plastic squares on the end of her tweezers (but then I wasn't wearing my...
I'm on week 3 of 50,000 once weekly (vitamin D was 13) - I keep telling myself I feel better but honestly I haven't seen a difference yet - My PCP said it could take a couple of months......
A couple of weeks ago I had SERIOUS dry eyes, seeing double, EXTRA sensitive to light - Curtains were drawn and I was wearing dark sunglasses to read my computer monitors at work. My ophthalmologist...
Laundry is done and even put away - luckily I only do mine and DH's, not the entire family Kitchen is clean (hate waking to dinner dishes) Going to scrub the tub tonight so I can start my day with a...
I had been walking two miles daily (broken into four walks daily) until January's flair, since January I'd been trying to get there again - My Rumie wasn't happy at my appt last week when I announced...
I wouldn't bring on a flair intentionally - but I have enough on my own and don't need the extra - I average four hospital stays each year Her pediatrician and rhumie are pretty sure my youngest has...
My Rheumy sent me to an ENT for evaluation, from there an audiologist - no pain but I have hearing loss in only one ear - after the MRI verified no tumor I was fitted with one hearing aid - lately...
Hi Maddi, I used to be hot all of the time - spent winter nights with all windows open, fans blowing, sleeping in all cotton under one sheet while my husband was under a pile of comforters - Now my...
Does your insurance cover a nurse case manager? If you can get one they are awesome at helping to navigate and explain things - It's scary and confusing, you're already sick and tired - Accept any...
Succinct enough for two years' history - you've been through a lot After years of telling doctors that Imuran makes me nauseous & leaves a metal taste in my mouth (and doctors telling me NO it...
Hang in there Rei! There is hope for a normalsih life - I've been sick since I was 14 but not diagnosed with Lupus until a couple of years ago - It takes the help of my amazing husband but we have...
My 14 year old suggests LOTS of hand cream at night and sleep in gloves - she uses lotion all day long, says cream is too greasy at school...
My AIH also is treated with Prednisone and Imuran when I flare - when I was diagnosed in 2007 I made changes to my eating habits and still avoid fatty and fried foods even when I'm in remission...
Two of my daughters have that, it runs in cycles, callus, then peeling - not all of their fingers. Tea tree oil and gloves help one, but not the other daughter - their fingers and feet also turn blue...
I get red palms with my AI Hep but not blotchy or painful...
I've been on/off more on than off prednisone for almost 8 years - I've been on 40mg daily since the last hospital release (late January) for AI pancreatitis (a new to me disease) - I am not hungry,...
Last December the pediatric rheumy suggested gluten free for my 14 year old's stomach issues (not nesc for lupus) - she didn't want to go it alone so I joined in the fun - A horrible stomach pain I...
Ouch! I (literally) feel your pain I have have a stabbing/burning/constant/daily but more painful if I bend pain under my right rib cage for 7 1/2 years with no idea why but lots of why nots (not...
I didn't know I was sick when I had the offspring - I keep reading it's rare for a mother to pass Lupus to her daughter - I have seven daughters, three of them have been diagnosed (by different DRs)...
Relax and breathe - you're probably best staying for now and I know you'd rather be home, you will be soon, honest What are the doctors telling you and doing for you? I'm not well versed on liver...
I'm going to have to go in this afternoon - I've tried playing with the button to make my own adjustments and have succeeded in messing up the mask settings - now I have the constant ringing AND the...
For months I've been having burning/aching pain in both arms - upper and lower - worse when holding up my arms, folding laundry & driving our van... It hit me while sitting at red light yesterday...
Can you get in to see a rheumatologist? Mine (literally) was a life-saver - I started with AIH (stage 4 liver failure) recovered (with daily lifetime meds and follow up) but didn't feel "right" for...
Talk to your eye doctor yet? I had that happen for several weeks, always the same eye, no discharge but RED - Eye doctor gave me drops and Rumie gave me BP meds...
I just got home with my first hearing aid, only in my right ear - Does anybody have helpful tips for adjusting to wearing it? I have a hissing sound going on that might drive me batty - and yes, I...
Looks like it was high blood pressure - they always have to take it twice, telling me to uncross my legs and breath - unfortunately, that isn't how I live my life It took a five day nose bleed,...
Have they tested you for Auto Immune Hepatitis? In my case liver failure was the first time any of my AI were diagnosed (or taken seriously)....
It's my understanding that Lupus can cause high blood pressure and high blood pressure can cause nosebleeds - I actually just saw my ENT today (following up on a five day nosebleed) who tells me to...
/community/emoticons/turn.gif Glad your throat is feeling better today!!...