Helllloooooo MK - one of your oldest breast feriends reporting in! I've been doing this for 12 years now and it has been 10 since my transplant -- Can you believe it??? I think fondly back to our...
Hello! Your Herceptin lifer reporting in. Herceptin is very tolerable as I have been taking it regularly since April of 2000 -- Yes, 9 years. I just toojk a treatment of Hercepin/Avastin this past...
Hello Cathi -- I hope this post finds you well. You have always been one of the classiest breast friends that I have. I know that Hosice is a decision that we may all face at some time - I can hear...
Hi MK - of course you knew I could comment as I've literally taken them all. . . Xeloda has been doing a serios number on my nails, so we stopped it week. This week I took Herceptin and Abraxane. The...
Hit wrong smiley . . that should be smiles . . :)...
Well it's official . . after 17 years of teaching -- 11 with cancer -- last Thursday was my last day! I had originally planned on retiring on disability at the end of the school year but the past...
Good morning -- Yes, the fatigue does get better, but I can't say that you will every feel completely "normal". You have just finished a MAJOR assault on the disease and the body is still in shock....
It's Jackie, your bandlady, reporting in from Alabama! Good to hear from you all. In general things are plugging along. Jake and Shelby are now 13 & 15 and now in track season. Both are in the...
BC Lifer reporting in . .I have been a member here for a long time . . I am known by most as the "bandlady" I have been stage 4 since 1999 - originally diagnosed in 1997. I have taken pretty much...
Cyndy - I took the Tykerb a full two weeks before I had to stop to get diarrhea under control. Don't forget I'm starting it again next Thursday, probaby about the same time you do :) We'll have to...
Don't know why the thumbs down showed up . . I think Tykerb has terrifice promise I fixed your thumbs down to thumbs up. I used the edit pencil symbol. MK...
Hello old friend . . the question is do you remember me??? This is Jackie aka bandlady. I think I'm a fellow Bone Marrow buddy. June 18th I celebrated 10 years of survival/struggle with a phone call...
oops on kids age . . they will be 13 & 15 this summer...
Way to go Kathy! Our relay is May 4-5th. Last year I participated in the Relay for the first time in a few years. The survivor's lap has been very difficult for me but last year was different. First...
I have been taking chemo now since 2000 and during a long stint with Abraxane (form of Taxol) I developed major keratitis which gave me very blurry vision. It so bad I couldn't read well and had...
Hi Eleanor -- I may be wrong but am pretty sure that once you have been radiated most plastic surgeons won't do implants. I had reconstructive surgery with implants at the time of mastectomy and was...
Hi Jo-Ann, My email is [email protected] Hugs to all -- Jackie...
Hello ladies . . long time no hear from the bandlady of the board . . I am doing well . .still working, although I changed band jobs this fall, taking bi-weekly treatments of Gemzar/Herceptin (# 300...
Bertie --Every day is a new day with new hope and new treatments for this disease. As a 9 nine year fighter/survivor of this I know the sleepless nights and know that you can have peace if give this...
You are not gonna believe this . . 9 years following diagnosis, too many recurrences to count, my infamous online BMT, hundreds of treatments, 5 times bald and my doc calls today. Yesterday I had a...
I just took Hereptin # only God knows. . I have been on Herceptin either weekly or bi-weekly since April 2000 . . no joke. . . Port works just fine. Jackie...
Another old timer reporting in. . . I miss all of you lovely ladies. Keith and I had a wonderful dinner with Peg & Mike when we visted Maine. Just as I enjoyed great lunches with Jo-Ann in...
Hello Cath from a long term fellow fighter. I, too, am in the midst of it - Just took my bi-weekly Herceptin/Abraxane and bgan my 7 days on Xeloda but next week I have bothing. I am bald again for...
/community/emoticons/confused.gif Just got back from onc. Told him that apparently we are in recurrence . . oh wait . . did it ever leave?? I've been just on Herceptin since leaving Abraxane in June...
HI Carol -- My name is Jackie and I've been here a long time . . just don't post much. You know you are among friends here and someone can always relate . .My port insertion also hurt a lot after...
What an awesome piece! Is Donna one of ours? It was nice to see another multiple survivor. I often don't post because this is what I do on a daily basis year in and year out. But eight years of...
I have been watching Lapatnib for a while ... It is on Forbes list of drugs to watch! FDA approval is expected this fall. My onc said Avastin (which Julie Jar trialed for us) is expected to be...
Hi Di -- Thanks for checking in. . . I've been lurking . . of course our board losses always send me for a loop. I finished my semester in grad school last week and will finish my Master's degree in...
Hi Cyndy -- this is Jackie, aka has bandlady2 from ivillage! Didn't you have a BMT? I did in '99 . . went for treatment today and I checked . . this was Herceptin 218+ .. my nurse said it is probably...
Right there with you Cathi . . I am now bald for the 4th tiime and it finally didn't bother me. The first three were tough but this time what the heck. Of course I hate to see myself in the mirror...
Strawberries are high in iron and so are . . .don't gag . . . fried chicken livers. I never thought I could do them but with enough ranch dressing they are tolerable. They really help my energy...
Hey ladies . . . Well side effect #1 hit about 2 am Saturday. It has been so long since I took Taxol I had forgotten all about the bone pain, but boy I remember now. The problem I encountered was I...
Quick correction . . "the thing with dying was to try not to die . . ."...
Tonight I was reading Dogsong by Gary Paulsen (just a book my students read - on about the 5th grade level when I came upon a passage that helped keep things in perspective . . . "Yet the fear was...
Hello girlfriend! So good to see you posting. I often look at our pics from Las Vegas and Louisville just to see your smiling face. Hang in there and keep up the noble fight. You are an angel. Love...
As I seem to be my oncs resident "clinical trial" I begin Abraxane this afternoon. . .Little bit of whining there, however, I do realize that I was also his Herceptin "clinical trial" and am still...
Funny you should mention it . . I went to onc. today to talk about my options and this was one of his suggestions. I start this drug two weeks from now because it allows me to keep taking my...
Right there with you Cath on the "here we go again . ." After radiation in fall to shrink nodes under arm, I had a PET Monday only to find an "extremely suspicious area" in the right breast. No real...
Jen -- I don't post much, but I've been around a long time. I took Xeloda for about 4 months and unfortunately the tumor under my arm did not shrink, but everyone is different -- this may be your...