I need a little help...my insurance changed as of July 1st...I have had 3 infusion of entyvio with the next one coming up in just a few weeks...my infusions were covered by insurance before this new...
Thank you 73 Monte for your reply. I know I shouldn't have researched this drug. I guess I have to much time on my hands with every thing thats going on. I know all of the drug have nasty side...
Hello, my name is donna I was diagnosed16 years ago with mild crohns. Hope everyone is doing as well as can be expected with all that is going on around us. Recently had a colonoscopy and they found...
Alcie, Well you sound positive. I know it's hard to know what to do but living your life to the fullest is a step in the right direction. It sounds like you are stepping up and doing what you feel is...
Alcie, I don't post much, sorry I didn't get back on here until now. Sounds like you have figured it all out. We all have to make choices that feel right to us, everyones journey is different. Be...
Alcie, Have you had your vitamin D checked? I have osteoarthritis in all of my finger joints and my Dr. found my vitamin D to be very low, I thought she was nuts but was willing to try because I...
Jane, Sorry to hear about your DX, sounds like your being well taken care of. I took Herceptin for a year and had no issue at all from it. I would get aches and pains like I had the flu but nothing a...
Miracle, My husband did not take any pain meds after he left the hospital, he said the pain was not bad at all. The best of luck to you, I'm sure you will do well. You will be in my prayers. donna...
Hello Miracle, Congrat on your wedding. My husband is 4 weeks out from having his surgery. They did give him something to calm his nerves right before they took him in for surgery, it really helped...
Judy, I'm sorry I think I found your e-mail address but I'm not sure. I'm going to try sending a little something to make sure it's you because in my contacts it does not have a name with it. How...
Judy, I'm glad you posted , I have been going to send you an e-mail. Do you have e-mail at home or is it at work. I know your computer was leaving with your daughter last time I wrote you at home. I...
Janie, What kind of fiber are you using? Maybe trying a few different ones might help until you figure out what one works best for you. Steve used citrasil (sp?) They say they can work different for...
Good morning, Steve is able to eat pretty much whatever he wants, Doc gave him no restrictions. The doctor said he would be able to tell what was going to bother him and if it does don't eat it. So...
Janie, Wow a pile, did you ever think you would happy about a pile:) My husband (Steve) does not take anything. It's hard to believe how well he is doing. He goes tops 7x times a day. The surgeon...
Janie, We live in Penna. and my husbands surgery was in Rochester, New York about 2 1/2 hours from where we live. His surgery was in a teaching hospital and the care was wonderful. His also went 6...
Janie, Thank you for your quick reply. My husband does not have his energy back yet, he complains about being so tired all the time. He is going about 6-7 times a day and maybe only one is really...
Hope everyone is doing well. I don't post often but my husband just had a collectomy 3 weeks ago (after being found positive for hnpcc), he is doing very well far better then we had even hoped...
Sue, Thanks for your reply. Terminal ileum is intact as far as we know. We have been very pleased so far. We didn't think he would get to having bowel movements 5-6 times a day until he was 6-12...
Thank you for the replies, we do know about making sure that he is drinking enough but were concerned about any vitamins he might need to replace. His incision sites are still weeping from all the...
Posted awhile back because my husband has Lynch Syndrome and three doctors agreed he needed to have his colon removed. Well after an eight day stay we returned home from Rochester, New York after my...
ucRick, That's ok, thanks for posting. I think my husband will be able to handle this he just needs to give him self time and not be in a hurry. I just saw my onc. and he said my husband is 100%...
Elaine, Thank you for your reply, this is a new gastro for me and he started changing things around because I was having a lot of nausea , took me off Bental and put me on Donatal and added the...
I am from the crohns board but read over here because my husband has found out he has uc. My gastro has me taking Allign (sp?) and I really don't know what kind of change I should be seeing. This is...
Ohio76, We are not really worried about the colitis, the polyps scare me more then anything. This gene is nasty and like to move quickly if it strikes. I am all for lets do what ever it is we are...
Thank you all for your replies. We will see the surgeon again in March before he has surgery. He has a lot of questions he wants to ask and then we can go from there. I can't tell my husband what to...
ucRick, Thank you so much for your reply, don't worry about the graphics, I have crohns and now my husband has all of these issues so we are finding out a lot about that end of the body:) We just...
Judy, Thanks once again for your help. I'm trying to see if this is how it is for most of the people that have this done. It's more so the urgency that has him concerned now and he is wondering if he...
Could anyone help with a question my husband has about having his colon removed. He knows there will D but is there also an urgency? He is concerned and thinks he should also talk to the surgeon...
Thank you all for your help. It went down hill on the prep, I didn't finish but stay so sick to my stomach was still that way when I went for my test. During the test the Dr. said I was in such pain...
Thank you everyone for all your help, unfortunatly it didn't go well, I got so sick from the prep. I was still sick when I went for my test at 1:00thr following day. They took me in gave me meds but...
I want to thank all of you for your replies. I did not drink the last of it. Still not feeling well this morning and my test is not until 1:00 this afternoon. My stomach is making so much nosie and I...
Gail and lmills, Thank you so much for your reply, I think I am done there is no way that last glass will go down. Thank you this makes me feel better about not drinking that last glasses and I am...
It's been 5 years from my last colonoscopy and I am at the tail end of my prep. In fact one glass left and I have gagged on the last two and don't think I can get the last one down. When you say the...
Kelly, Thank you for the reply. I keep waiting for it to go away but it doesn't. Did you run a fever with it. I will be having a colonoscopy on Tuesday so I'll find out if it's the crohn or not. I...
Jo, thanks for your help, it's hard trying to figure out what it is or if it's even the crohns, not having had this kind of problem before. Thanks again donna...
Julia, Thanks for a quick respose. lots of gas, more bm's but not d. I wouldn't call it cramping, it's a pain it does come and go but I know it's there most of the day. Thanks for the help. donna...
I have had crohns for a little over 4 years. I have had a few abceses and then was dx with crohns in my teminal ileum.I have not had any issues since going on meds at the time of being dx. For the...
Judy, Thank you for your reply. I will e-mail you later from home. We live about an hour from Binghamton. That must have been a hike for you driving back and forth. Who was your surgeon if you don't...
Ohio76, I'm sorry I've told this so many times that I didn't realize I left that out. He is having the small intestine attached to the rectum. He is not a candidate for the j-pouch. I would...
I came over from the crohns board where I have been a meamber for 4 years. I need some help with an issue with my husband. He has been found positive for HNPCC (lynch syndrome) a nasty little...
charlotte, Thank you for your reply, we are in Rochester, New York. We are seeing the chief of the colorectal dept(this Dr. has studyed in Rochester MN at the mayo clinic). He said they have will be...
Gail, thak you for your reply. I just finished posting on the uc board. Hopefully they can give me some answers. Thank you for your time. donna...
I am from the crohns board but they thought I might get some answers over here. My husband is positive for lynch syndrome( we also have a daughter who is positive but doing well), which gives him an...
I have had crohns for 4 year but only read, don't post much. The problem is with my husband. He has been found to be positive for lynch syndrome(our youngest daughter is also positive and all clear...
crohnietoo, Thank you for such a quick reply, I knew it was a long shot but had my fingers crossed. Thanks for the well wishes for my husband. It's a scary thing this darn gene but in most cases it's...
I have had crohns for 4 years and don't post just lurk in the back ground but remember back sometime ago you posting something about the different stages of the digestive track, what each part did as...
matthew, kittikatt, and Amy, Thank you all for your input. I do have an appt. with a rheumy at the end of Oct. I don't know what good this will do if there is nothing that can be done. But I will go...
Linn, Thanks for your reply, I'm sorry you were in so much pain. I hope and pray it is better for you. One more wonderful gift from this disease. My best to you all. donna...
keeper, Thanks I will give it a try, do you know how much I should take, I have taken it in the past for cramping in the cafes of my legs. I am more then willing to try. Thanks for the help. Hope you...
Stephanie, Thanks for the help! I found the gloves yesterday and tryed them last night. My hands were very stiff this morning and a few joints that hurt quite a bit but there was a few that didn't...