Thank you all so very much for all the support you have shown me and my dad. I appreciate everything shared with me today. We are leaning toward active surveillance but haven't ruled out completely...
My goodness. I belong to the lyme disease forum and we are very supportive but man oh man, do you folks come thru with shining colors!! How awesome everyone is! Okay, here is my dad's tests results....
Hi there, I would love to hear from people who have had the seeding radiation done. He was diagnosed in June and was told he can make a decision by September whether or not he wants the seedlings or...
Hi there, Wow, when I read your post, I thought, "that is so me." How did I get here? I was so happy, so excitedy about my life. I had just moved from California to Pennsylvania 13 years ago to be...
I wish I knew what to tell you to do to get rid of them. All I know is that I get them sometimes too, but not bad. The room spins. I know when I am going to start that crap because my head feels...
Hi Stutterbug! Yes, please forward me what you have!! [email protected] . If you can too, please tell me a little bit about this doctor. The problem with this girl is she has been to two ILADS...
Hi Gary, Thank you! Please send me what you have! That would be great!! What I meant is the doctors did not have to be ILADS but of course they can be!!! This poor girl has been to three doctors, two...
Hi there, Since I joined facebook, I am coming across some really sick people. I am now trying to find a Lyme Specialist in and near Chicago, Illinois for another lymie who is really sick. Any...
Hi there, As a lyme sufferer, along with many infections that came from a tick bite, do not walk but run to your doctor. You demand antibiotics. If you saw a rash, and know what the rash of a tick...
We are having our say finally. The Infectious Disease Society really made a mess of things. How can they allow people to continue to be wrongfully misdiagnosed but the truth will prevail. Education...
I miss you too!!! Are you okay? I remember my doctor giving me estrogen cream and it did not do a darn thing. I had to "ride out that storm" and I hated it. You think for sure something is so wrong...
http://mvprolapse.com/article_seven.html Hi there! I feel for you, I really do. I had something very similar happen to me BUT when I was tested for yeast, tests came back negative. So, take a look...
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Hi Mik, When I initially heard of Plum Island and the animal/science studies being conducted there, well, I didn't want to believe that this is where it could stem from. It was all so much for me to...
Due to these so called tests, which are so unreliable, not weeks but months even years after being infected, millions are falling through the cracks because the tests are failing them. Take, for...
Thank you everyone that responded!!!! I loved every post!!! I had crazy brain stuff, but it was more like dimentia, spelling my name wrong, lost for words, say words that didn't fit what I was trying...
Hi there, I met someone on facebook who is really ill. I just want to show her that others are going through this and maybe some of you can post what you did about it. She said her brain feels like...
Hi Georgiagirl! Boy, I can relate. When I was first infected, I had horrible vision issues, blindness in one eye and it felt like the lights were really messing with me!! Little did I know it was...
I just had to post this!! I want everyone to keep their hope alive. I know its so hard for so many because of just how sick so many of us are. Excerpt from the e-mail I received: was selected as one...
Great post!! I love to see Lyme Disease Advocates like you!!! We all must do our share and those who are too sick, we must stand up for them and keep up a good fight!! Lyme Disease is horrific and is...
Hi there!!! I did research for this a couple of months ago. My aunt swears by it but she does not have Lyme Disease. She has diabetes. She also takes vicodin for the neuropathy so maybe the...
Lyme Disease. But the enemy is ignorance with many physicians as the tests used to detect can and in many cases be faulty. There is a myth that many people test false positive. The tests show...
Hi Ticker and Nexus and minerals: You are all awesome for trying to help her!! I will show her this post. Good point about babesia Ticker. I wonder what he is doing? I will forward this information...
Hi minerals, Thank you so so much. I have people coming at me from all angles, so sick. Here is what she is taking, as she wrote me about a week ago when I asked her what he is doing for her. She...
Hi to all! She wrote me and asked me to post this to see if anyone else gets this same feeling. She had tested pos. for babesia but once again, the doctor failed to give her her test results. Just...
WOW, that would be awesome!!! If you can make it, let me know and I will save a seat or two for you! My dad will be there early with my sisters so I can just have them hold two more seats!...
Hi Everyone! I will be greeting people as they come in the door. 550 plus doctors have been invited. For those wondering where Reading, Pennsylvania is, its about one hour outside of Phila. If you...
Hi Ticker, I just sent this link to the Infectious Disease Society asking them to please continue talks with the Attorney General because this is why. They will probably delete it. I am killing my...
Hi Jelaine P! I sure hope you are doing okay. I know I have not been on here much, its almost impossible with my schedule. Do you know that I often think about you and do recall when you wanted to...
Hi Martha's Vineyard. I read everything you wrote here and what struck me so hard was when you said "we were perfect for each other". I know EXACTLY what you meant. I am so sorry for your loss. This...
Ticker, thank you so much. You know, you remind me of her in so many ways. Time after time, year after year, when someone new joins us here, you ALWAYS give them such valuable information. You never...
Hi Everyone, AAAAHHHH, so I see that many of you were touched by Leslie too. Thanks for all the wonderful comments here. If there is anything we can do, its to support Tracie now. If you open up...
Thanks Alfers, If you have a chance, please go watch this video of her. She was my buddy, my support system. She was everything that the Lyme Disease community needed and now she is gone and I am...
I am having a very hard time writing this right now. Leslie passed away on Sunday. Leslie, one of the founders of Lyme Fighters.org ( www.lymefighters.org ) was truly a blessing to so many. Leslie...
Thank you so very much everyone! I love the support this forum has always given me and the help so many will receive because of people like you! Hugs, Robin O....
Hi Everyone! Someone contacted me and asked me about this physician. Does anyone know him? The reason being is back in January this young girl became ill, went to her Family Practioner, tested...
Hi Ann, If this helps you at all, I am not normally over here. I am on the Lyme forum BUT I was talking to a friend last night. She had to switch doctors and when she did that, the new doctor changed...
Hi there! That is truly wonderful! I have a friend with diabetes diagnosed 20 years ago on insulin since then. She is now 44. She is a single mother and about 5 years ago, her health turned really...
Thank you very much. I did do some research and found people with diabetes dealing with torn ligaments on several websites. There is a link but more funding needs to become available to study it....
HI there: My best friend has had diabetes for over 20 years, insulin dependent. Last year, her tendons and ligaments in BOTH shoulders (rotator cuff causing frozen shoulders for both shoulders)...
Hi there to all! I am normally on the lyme disease forum but I have been getting some weird stuff. I can deal with all over body pain and fatigue and even heart palps but when it comes to my...
There is a documentary to be released for all of those in the chronic fatigue state from lyme disease. Grab a cup of green tea or coffee and a box of tissues. If you do not think you have lyme...
Dear Sashi: I saw you had a question and I too thought I had MS and it was Lyme Disease. It took about 6 months of being sick and then it showed up in my blood work not to mention the fact that I had...