Though my illness became most apparent to me during 2008, I learned last month that my case is genetic. To manage it, I am on medications -- one to control my rapid heart rate and one to lower my...
I just wanted to let you know of this illness, as not many, including doctors, are aware it exists. Symptoms vary greatly from day to day and person to person, but I was only detailing my personal...
Hello, Just wanted to give an update now that I have returned from participation in POTS research. I found out that I have the Hyperadrenergic form, which means that both my heart rate and blood...
Hi, Lindsay, Have you ever looked into Postural Orthostatic Tachycardia Syndrome (POTS)? I am 21 and was diagnosed with it last year after six years of suffering and wondering. My primary symptoms...
Haha! When I first started searching for POTS, that came up and I had to laugh. I thought, "I'm preeetty sure that isn't what I have..." Thanks for the laugh! Hope you are well....
stkitt, I appreciate this. Also, let me add, it was not your responses or your actions I was referring to. You are only trying to help, as I am....
Not sure if I should include myself, but I have been tested for MS. Thankfully, I do not have it. If you don't mind, what is the POTS board you belong to? I may already be on it, but the more help,...
Traveler, With no disrespect, I am aware that all experiences and treatments are different. I did not suggest a specific treatment; I only tried to spread awareness in case people have POTS/both...
babygirl10150, I am glad to see this post! Not glad that you are ill, of course, but glad to know someone can relate. If you don't mind my asking, where are you located? Feel free to message anytime!...
stkitt, Thank you for taking the time to message and for appreciating my efforts. I just feel so much for anyone who has to suffer for any reason, so whatever I can do to help, I will do, even if...
Lippy45, You are welcome. I am sorry to hear of your struggles. I know the frustration and confusion, for sure. As for your question, my symptoms are with me every day. To help with the blood pooling...
Yes, justMe0138, please contact me if you wish. Take care......
Yes, Summer3, unfortunately that is the case for many. Have you had POTS confirmed? I am on my way from Ohio to New York today to participate in POTS research. Perhaps I will have more advice when I...
Hello, Felicia, I, too, have POTS, and posted information about it on here very recently. I have had it for at least six years but did not get correctly diagnosed until last November. Please, feel...
Thank you!! Some people have not been as kind or grateful for my posting this information, so I appreciate that you did not remove it. My best to you, also! Take care....
Silly me! I apologize. This should have stated "in addition to Lupus, not POTS."...
Note: Though you may see this post or a similar post on other sections of this site, this is not spam. Hello, all, Just want to inform you of a very unheard of nervous system disorder called Postural...
Hello, all, Just want to inform you of a very unheard of nervous system disorder called Postural Orthostatic Tachycardia Syndrome (POTS). I have it and was finally diagnosed last year after having...
Hello, I do not have Lyme that I am aware of, but I do have Postural Orthostatic Tachycardia Syndrome (POTS). I have come across several people who have both Lyme and POTS, as they are quite common...
I have POTS and am willing to speak with anyone who would like to chat. :) Thanks, and look forward to hearing from you! Take care....
I was diagnosed with POTS last year after six years of baffling symptoms and countless doc appointments. This coming Saturday I will go from my hometown in Ohio all the way to New York to participate...
LivingWellH1989, Do you strongly feel that you do have anxiety, or do you think docs are missing something? If you feel it is not anxiety, please, press on to find the answer you feel in your heart...
jr991, Have you heard of or looked into Postural Orthostatic Tachycardia Syndrome? I have it and can relate to all of the symptoms you described. Of course, I'm not a doctor, but it is worth looking...
Momof2kiddos, Please look into Postural Orthostatic Tachycardia Syndrome (POTS). It is a very unheard of nervous system disorder that prevents the body from being able to properly adjust to gravity....
Hello, scaredmom1994, How is your daughter doing now? I hope she has experienced improvement since your last post. Regardless, please give an update whenever you get a chance. I would like to chat...
Hello, Darryl, Have you ever heard of or considered Postural Orthostatic Tachycardia Syndrome (POTS)? I was finally diagnosed last year after six years of numerous appointments and complaints. I knew...
Hello, New to this site. Have those of you who posted on this forum ever heard of/considered Postural Orthostatic Tachycardia Syndrome (POTS)? It is a very unheard of nervous system disorder that...