I have had almost all of your symptoms at one point or another. I just posted this in the forum but I will copy/paste it here as well for you: Hello. First, I want to thank each and every one of you...
Hello. First, I want to thank each and every one of you that haave replied to my posts and offered support to me. I have been sick for over 18 months with an array of different symptoms. My primary...
I think there is definitely a lot to the diet connection. I had a couple of drinks last week and I could feel it the next day. It's a commitment to stay on the diet, but it has been so worth it. :)...
I am taking three supplements. The first I started with my diet and it is for GI support. It is all herbal. The herbs are designed to rebuild the gut, prevent leaky gut, and also to get rid of...
I was going to respond to someones comment but now it is gone. In answer to their question, I did not use the office that you mentioned. I did use a doctor in Cupertino although I don't think we are...
I think after all of the internet searches and chat rooms I have looked at, one thing I learned is that CFS manifests itself in many ways and can have multiple causes. It sounds to me like your...
I have been suffering from CFS for 14 months. As you all know, it is miserable. I have been to every kind of doctor on earth searching for answers and hoping for a different diagnosis of something...
It is difficult to obtain a trained service dog. The wait lists are long, especially depending on the need (i.e. blind, deaf, etc.). I work in veterinary medicine. Typically the average dog owner...
I also get white spots in my vision sometimes. They are like little white blotches that appear and disappear. I noticed it most when I'm typing or reading a text message on my iPhone....
Hello. I am 30 years old and got sick a year ago. Over the course of the last year, I have seen neurologists, rheumatologists, infectious disease doctors, etc. I became acutely ill last year in June...
Thank you for sharing your story. I have been sick for a year and was diagnosed with CFS a few months ago. I tried getting in to see Dr. Montoya but apparently his waiting list is four years...
Thank you!...
Are you sure they did a thorough evaluation to rule out a stroke?...
Thanks for the suggestions. I met the most wonderful guy and I'm planning to talk to him about it. I like the idea of giving him something to read--maybe a little print out from the Mayo Clinic...
Hello. I'm not sure if this topic has come up before, so I apologize if it is a duplicate. I am 30 years old and am single. I have had CFS for over a year and was diagnosed just a few months ago...
Candida infections can certainly be terrible, and they are unfortunately often overlooked. I have been on Doxycycline for a few months now and even though I normally don't get yeast infections (sorry...
I guess I should add that I had a Western Blot for the Lyme test......
As much as I'd like to do the Igenex testing, it is not in my budget right now. I asked my doctor to retest me for Lyme's as well as test for Bartonella and Babesia and he agreed. The testing was...
This might be the best I've found...all published by an LLMD and some of the articles include additional articles and studies. :) http://www.usmamed.com/publications.html...
Visit the Lyme forum...it was suggested to me in the CFS chat room and I am surprised at what I've learned about the inaccuracy of the tests, etc....
Hello. I've been researching the lab tests available at IGenX, Inc. I can see why the Lyme (Bb) testing is different there than at traditional labs. However, what about coinfection testing? Are all...
Here is one more article. It is not peer reviewedm but perhaps it may help: http://www.ilads.org/lyme_disease/B_guidelines_12_17_08.pdf...
I haven't had exactly the same thing, but I have had some redness over my knuckles and toes that comes and goes. My skin feels think and extra senstitive and red when it flares up. I've seen a...
Hello! Here is a link to Lyme specific articles that were published in the Journal of Infectious Disease:...
Thanks so much! I am definitely going to check into it. :)...
Thank you. I was able to get in touch with a lady that recommended a couple of doctors in my area....
Thank you both so much for the feedback. I'm going to look into the tests. I'm going to check in with my ID doctor and see if there is a way for my insurance to cover it. If not, I will likely move...
I've read a lot about the Igenix controversy online. It seems to me that the biggest issue is that they use a different reference range to determine a positive result than the CDC uses. And,...
Does anyone know of an LLMD in the Bay Area? Specifically, the East Bay? I'm in the John Muir Network with my HMO, but if there aren't any through John Muir, I'm open to suggestions. Thank you!...
I'm not sure in people, but I do work in veterinary medicine. In animals it cannot be transmitted, even through sexual contact. Lyme's is a vector borne disease (meaning that an infected vector, in...
Thank you Hugh! I will definitely research the possibility. :)...
Mayflower: I have been very lucky to not have pain. I'm certainly overwhelmed at times by the fatigue and weakness, but other than headaches (which I never had before last year), I have no pain. I do...
Morti81, Thanks so much for the information. I have been tested for Lyme's and its associated coinfections. However, the more I've read about Lyme's the more I see how difficult it can be to...
Thanks. :) I really appreciate you sharing your experience. I think I will try it and see how it goes....
Well, I saw the rheumatologist. I feel like perhaps is was a frivolous pursuit for answers. I have several of the sensitive points that people have with fibromyalgia, but my symptoms in general...
I too have trouble sleepy even though I am completely exhausted. I'm very afraid to take sleep aids, so I take a Benadryl at night. It kicks in in about 20 minutes and is not habit forming. I also...
I have GI and cardiac symptoms (but no heart problems, per say). I have a history of heart palpitations. I've done the Holter monitor and had two cardiac ultrasounds. They've mostly gone away--very...
Thank you, ToughEnough! Interestingly, my mom also has foot problems. She was diagnosed with plantar faschitis. She wears some special orthotics and recently went on a three week trip to Jordan and...
When I have a bad flare, I get extremely nauseous and cannot eat, which makes me lose weight. In February and March, I dropped almost 10 pounds I was so sick. I am slowly getting a little better, and...
I am currently on Doxycycline and Acyclovir for 6 months as a trial to see if it makes a difference. I'm two months in and nothing has changed, though I've been advised it takes some time for the...
Nana68: The only thing I haven't had done is a spinal puncture. I had asked the neurologist of it would be helpful and she didn't think it was necessary (I asked following the brain/cervical spine...
I have the same symptoms. I've had a million dollar work-up and all tests negative. I was diagnosed with CFS a few weeks ago after being sick for a year....
Hello. I am new to the forum and was hoping for some insight and advice. I have been sick for a year. My symptoms include chronic fatigue, headaches, sore throats, nasal allergies that I've never had...