Thank you for the welcome and the input...very much appreciated....
Hi there, First of all, I'm really sorry to hear about this young girl and i will pray for the best of all outcomes for her..... And i wanted to mention that my daughter has autoimmune hepatitis, and...
Hi there, I recently underwent, yet another, colonoscopy, as I've had stomach issues for many years that the doctors haven't quite been able to figure out. I'm not really sure how this biopsy reads...
Thank you, kitt...forgot to mention that I did have a CTA yesterday and got those results back today. Everything was fine except something and I don't know what it means yet. I see my GP in a few...
Hi everyone! So, I haven't posting in a really long time. First off, I want to say that I hope everyone is doing well...at least, as well as an be expected :) I was just wondering if anyone has had...
Hi there, I know this is an IBS forum, but there really was no other place to post my topic. I'm hoping someone can relate to what I'm going through. I was dx'd via colonoscopy 5 mos ago with...
hi! im new to this forum but have posted on the lupus and hepatitis forums. i have been having pain in my hips for months now. i finally mentioned to to my rheumy recently because it just hasnt...
hi, i picked up my daughters labs from friday (she has them drawn weekly) and her PT was prolonged. obviously, liver disease or injury can cause that but does anyone know at what stage that happens...
hi, no. her appt was thursday afternoon. the scheduler called the hospital and left a message with the scheduler there...was waiting for a call back and i guess they have to coordinate with the...
hi connie, just wanted to give you an update..we saw the pediatric gi again (yes, the bad one! lol). anyway, i had to see him one more time after i got the rest of her labs before i got a referral to...
thanks ladies /community/emoticons/blush.gif yeah, i hope we are getting on the same page. no, i didn't hear back from anyone and i'm about to try again this morning. yes, the surgeon was awesome!...
hi there! we saw the pediatric surgeon yesterday. she didn't think her gallbladder needs to come out just yet because she wants to see what a biopsy shows of her liver. she hopes that it is all just...
thank you, connie...i am just scared esp not knowing where we are exactly with her disease. i'm not a patient person...i want all the answers yesterday. thank you again for your support e...
hi dany, her pediatrician is out of town until next week but the doctor filling in looked at her labs and had the nurse call back and tell me that she definitely has AIH but to see her pediatrician...
oh, she has been having some stomach pain the past 4 days esp at night....hurting to lie on her side. her urine is pretty clear though still small amount of bili...did liver panel today so we'll see...
hi dany! i would give anything to not have this dx for my little girl...if only they really knew! unfortunately, i just had that feeling of knowing this was much more than what the pediatric gi was...
hi, so, i got the rest of her lab tests this afternoon. her lkm-1 was positive at 34.7. negative is less than 20, equivocal is 20.1 to 24.9 and greater than 25 is positive. everything else was...
hi dany, i'm VERY familiar with scripp's hospital. my oldest son and my twin boys were born there. my daughter was born at mary birch. i am from san diego. these forums can be a small world!! i'm...
hi there! so, the lab tests aren't all back yet. the cbc and metabolic came back but the AIH panel was sent out and is only run on saturdays...of course, they didn't run it last saturday for some...
hi everyone!! thank you all so much for your responses!! i appreciate each and every one of them, really!! dany, i took my daughter in for some more labs on friday and they included an AIH analyzer...
hello everyone, about a month ago, my 8 year old daughter started having stomach pain which pretty quickly began waking her up in the middle of the night. i noticed that her urine was extremely dark...
i need a deep breath for some can't help but do nothing other than to contradict others...i remember now why i left this forum...i am far less wise than some. sorry nurse, good luck!...
you're welcome but i don't know that i was helpful :(...i know it is a frustrating ordeal which is why i got an atty. from the time i hired him, it took a year and we were in court, i had my...
hi everyone! thank you for all the comments...im sorry that i didnt get back to you all right away but i have been feeling crummy and when i feel crummy i disappear...anyway, you guys are funny and i...
hi wonder...i am sorry that you are feeling so bad. i just want to say that i find that it has become relative...my pain that is. there are 'good days' and there are 'bad days.' i have a doctor's...
hi there...there is no harm in calling your local ssi office repeatedly, if necessary, to get the ball rolling...you don't have to wait for "the letter." i knew threw my atty before i got the letter...
hello all :) so....i have always had sunsensitivity but this is ridiculous and frankly, a little scary!! what is happening is this...at times with just a little exposure like just the sun shining on...
hi all! i have about one minute to post. i am on a library computer and people are waiting. just want to say thank you so much for all your prayers and thoughts!!!! thank you thank you. you all do...
bella...
/community/emoticons/cry.gif hi everyone, i can hardly believe it...my stepmom actually said that my illness is all in my head. now, i have always known that her and my dad don't necessarily believe...
Hi everyone, Thanks for all the replies: Red Rose, Do you know if your gall bladder needing to be removed was caused by lupus inflamation or some other cause? Did they find any lesions? They found...
hi... just had my gallbladder removed and waiting on pathology (found lesions). i have no history of gallstones, just generalized upper quadrant pain for years and diarrhea but recently had a hida...
hi there, lupus nodosum??? i have exactly the same symptoms but haven't had any in three years. the redness usually only lasts 3 to 5 days and the lump itself can take months to go away (if that is...
hi des, sorry to see that you have been having such a hard time lately. glad the cardio thinks everything is okay with your heart. are you still having dizziness? you should do the MRI, it is...
hi again, just want to say that i have that exact same picture! i have major skin involvement, rashes, sores, livedo reticularis (huge weblike rash on my stomach halfway down my legs, it is not...
hi des, yikes! that is a lot to take in. and you were just recently diagnosed with uctd? what does your rheumy think you lean towards having? what are your symptoms with the dizziness if you don't...
hi again, the vertigo and unsteadiness (which has become more of a swaying back and forth) is not getting any better. i take antivert but i think i need something stronger. i have 4 children, 3 under...
hi everyone! thank you all for your comments! oh my gosh, i am so glad to hear from so many with the same thing. i thought for sure i was losing IT this time!!!! i will lose it if i try to address...
hi all! i have had problems with balance and dizziness for some time now but it has really progressed over the past few months and most especially the past few weeks! but...since sunday it has been...
hi lu and bill! thank you so much for responding. bill, that website is great. i had looked at it before but did not realize that there was a forum. i am so glad because with my lupus brain being...
hi everyone, hi to all the new members and old! i have not posted in a long time as i am most often too physically exhausted from muscle weakness but i read posts ocassionally and i am sending warm...
hey! that's funny! camama was posting as i was speaking (so to speak)!...
hey erik! camama used to see dr mabaquiao so she should be able to give you first hand knowledge! how great for you! i'm almost certain that he is the doc my friend sees in la mesa, the name is so...
hi erik550, i live in san diego and i have not heard anything about either of those docs. i see a dr. roy kaplan in encinitas. i think he is the best. i have a friend who sees someone in la mesa that...
hi elcam and ducky! i love that "ducky!" what does el camino stand for (if anything)? it makes me think of my dad's old el camino (as in car). i think that is what he had way back in the 70's. those...
hi everyone, new here, usually post over in the lupus forum. my reason for being here, you ask? i have been accepted into a lupus study for rituximab which has been approved by the fda for RA. is...
mono the other day and boy can i relate to mono! i too have ebv. i am 38 years old and contracted the virus when i was 16 (1984). i was told that i might have problems with it in the future but they...