I disagree. I don't think people know what Chronic Fatigue is at all. Ask a random person to describe what Chronic fatigue is and they won't know a thing about it. I'm going to send an email to...
You and I understand that. The outside world does not, and they will not. That's why a name change is crucial. It's a demeaning name....
Hello, It stands for Myalgic Encephalomyelitis. It's a name that is widely gaining traction to replace the name Chronic Fatigue Syndrome or CFS around the world....
I think it's fair to say that ME/CFS is not fundamentally psychiatric. That's the exact misconception that most patients are fighting against. ME basically means swelling of the spine and brain....
If you don't mind me asking, what kind of Bowel disorder do you have? I have found the High quality probiotics helps A TON with my bowel issues....
I'm def gonna try it if I can find a doctor in socal that will do it !...
Hello Recoveryme2day, Please read up on it and try it if you like what you read. I don't know if it will help everyone, but all I know is it has helped me a bit and I was excited to come back to...
Hello Bucci, Naltrexone at high doses is used for pain and people coming off hard drugs. Over the last few years they have found that given at a low dose it can help regulate the immune system....
Hello Minnesota, Talk to your doctor, but I think its pretty safe to take with other drugs. I know there are a few that you shouldn't mix, so talk to him/her first. You are supposed to take it...
The reason for a name change is not to make newspapers or anyone happy...It's like you said, its to help each other. A name that demeans all of us will not do that. M.E. is now widely used as a...
Hello Jewelrylady, I have been on it for 4 months now. Its cleared up the brain fog a good 20%. My "crashes" are shortened and I have a little bit less fatigue. I also sleep better. Although at first...
Great, thanks for the info....
Glad its working for you. How pricey is it?...
The name Chronic Fatigue Syndrome Trivializes the disease and many people around the world don't use it anymore. Anyway can we have the name changed for this forum? Its time to move forward. M.E. Or...
First off, someone needs to ban Medillin for spamming. 2nd, exercise can be really bad for CFS/ME patients. Don't over do it. Listen to your body....
I read they are about to do the same in the States....
ME is becoming the standard name pretty rapidly. CFS is a name that lacks credibility and is associated with laziness and depression. We all know that laziness and depression is not what caused this....
^why not make it public?...
Hello everyone. I've read posts in the past but posting for the first time. The only reason that I registered is because I suffered from ME/CFS for 8 years now and the ONLY thing to help me in any...