Things are alright if we keep up the magnesium, manganese, turmeric, flax seed, etc. If we slack off then symptoms come right back. Thanks for asking....
Hi, I got the notification so I popped back in. I recommend searching up vector control reports for west LA and for Crystal Cove in Orange County for some evidence of So Cal coastal Lyme you can...
It seems the attitude to panic is that it is voluntary and self inflicted. I think it is easier for a doctor to dismiss us as crazy or attention starved, or hypochondiacs than to admit they don't...
Whoa! Scary! Did anyone test for a stroke? There are markers in your blood from some strokes, and an MRI is now pretty normal for diagnosis. Did you go to the ER? Panic attack?! Are you kidding me?...
I personally am more comfortable with sugar than many artificial sweeteners but all that yummy stuff has some issue or another. I would use honey, maple syrup, or agave syrup diluted with a smidge of...
Magnesium, manganese, and omega 3 fatty acids can all help with brain funtions. Maybe they'll give you some relief. My son had some mood and memory issues that are drastically improved after long...
Please call your Doc's office and ask for a repeat of the instructions and take precise notes! If it is unclear, don't gamble, get it down so you can refer back to it. Maybe she can send you a...
The probiotics are sooooo important! Anti biotics kill more than Lyme of course and if you kill off large chunks of your gut community then the survivors tend to be of a narrower range of types....
bump...
Best of luck weathering the downs. I'll be thinking hugs for you. There is a happy improvement in store. From being depressed and hyper emotional to "ALWAYS CHEERFUL" on a report, I've seen treatment...
Excellent!...
I just saw you've been here for a while. I've been gone a while so I didn't recognize your name. Sorry if I said things you already know. :)...
Hi there. If you search some of the older entries for kids with Lyme you'll find lots of info from "Heather's Dad" who posted often, and in great detail. I for one had good results with antibiotics,...
Wow!...
Thank you for writing up all that, twice. I've had those dreadful delete moments. Wish we could send some equal annoyance right back up the line!...
Hi all. Although I'll be gone from the site for a couple weeks and not able to join in, I suggest starting a new thread specifically for neuro/psych Lyme issues, and another for Kids with Lyme - to...
I feel I can suggest looking closely at the Lyme chat now, since your test came back positive. Also, for the situation of symptoms flaring after Amoxicillin look up Herx reaction or Herxheimer...
Caffeine is supposed to be diuretic and make you pee more than you drank. That is, dehydrating over all, but while it's still in you it counts! As for water triggering an 'instant' urge, it makes me...
I'm hypoglycemic and get nasty dizzy spells if I don't eat enough of the right things. When my blood sugar drops I get dizzy, hot and cold sweats, tunnel vision ending in blackout, weakness,...
Hi, my son with Lymes has had weirdly low temps at times so I poked around on line just a couple days ago. The one thing that stood out in my memory is it can happen with infections. I just searched...
Keep in mind also that the spirochete Syphilis causes a wide range of nasty symptoms. (Lunacy and blindness...) Lots of ailments cause many seemingly unrelated symptoms. If something can get into the...
For perspective on the accuracy and effectiveness of the IgG and IgM - my son had both, twice, and twice was negative. However, the CDC has specific reporting standards for Lyme disease. If a person...
Hello, and good luck. If you use the Google Custom Search button up just under the top bar and put in a few symptoms at a time you will find people experiencing similar problems. There are people in...
What do you think, part it in the middle? Corn rows, sausage curls? As for probiotics - digestive bacteria - the things I've been reading lately say there are loads (was it dozens or hundreds or...
Whew, that was close! My cat jumped on the keyboard just After I'd posted that last one so you don't get to read her message! Maybe next time ;)!...
O O O O Hugs and well wishes, as many as you need. You may need water and /or to boost your blood sugar - dehydration, low blood sugar, and also low blood pressure can cause dizziness. So can ear...
At first I was adding just to get resubscribed to this link cause I accidentally clicked the wrong thing, then I thought hmm - it may be helpful to print some of the studies which describe specific...
Thank you so much for sharing your pain. You are more able to express the effects of losing support than my son is. He has it, and I have to keep remembering. It is so so hard to know what is really...
You're so welcome. I've been gone, and am going again so I'll check back in a couple weeks. Good luck. There are lots of people here who will boot your resolve if you need some assurance that you are...
I was startled to see this older thread come up - but there is lots of gold to mine from past posts. All parents, keep looking ,and keep hoping. Treatment helps....
Hi, some quick thoughts - I have to leave soon, but I am usually rather wordy! Check the Google custom search button up top for older posts about kids with Lyme, and our various experiences with...
Awwww, MAN! Here you go again! I'll miss you again, but your reasons are inspiring still! I'm so glad to see that Lyme can become past tense! I hope you have so much fun in your reclaimed time. I'll...
Extra note - Print out the CDC reporting standards, print out any state vector control reports which show Lyme in your area, print any studies you find which talk about eye issues, ditto in utero...
Please look at your situation through a different point of view for a minute. By letting a kid play in grass, by letting a kid pee behind a bush, by spending time in the truly GREAT outdoors, you are...
Wow, I wish I had some way to help. My son lost his peripheral vision in one eye for many weeks. It scared me silly. He got his vision back and the only thing I can be sure that changed was...
Liverette and Traveler, sorry it took me so long to get back. Thanks for explaining the blue in the face thing. There are some mighty weird expressions in this world! In California there are many...
Yay that there are kind, generous, selfless people among doctors! about pull-ups and wetting - if you ask your daughter directly, something like "Honey, I think Lyme disease might be causing you to...
I try to walk around the outside aisles at my grocery store - produce, meat and dairy - so I miss most of the pre-made things and the snack foods. It helps. I venture into certain aisles with a goal,...
Oh yeah, Liverette, if you print the CDC standards for reportability and bring a map of distribution with you you just MIGHT convince a very open minded doc to reconsider. But, don't hold your breath...
Liverette, I recommend going to the West Los Angeles County Vector Control District web site and printing up the information about the multiple sites where Borrelia burgdorferi positive ticks have...
Hi, I'm not sure what tests are serology tests. I can tell you the Western blot/elisa tests my son had (2x) were negative although he had multiple expanding bullseye rashes....
Hey, what is PDD nos? And, how are things coming along?...
A trick I use with my son when he wants sugar is to say YES, AFTER... so he has to eat something healthier first, then he CAN have the simple carbs. He eats less of the 'junk food' and sometimes...
Hey Roots, could you post the serving sizes to get those RDA's? I'd like to go a natural route whenever I can. Thanks!...
I hope things are going well Chapelle. Maine ( Mim so paine?! /community/emoticons/wink.gif Perhaps your alias?) Good luck to you and your son. I just wanted to send good thoughts out to all the Lyme...
Marie, you go right ahead and abuse those vermin! I've got your back....
I don't know about Lyme liking sugar, I thought that was just me. I do know they are Manganese dependant. The stuff I saw was going on about it NOT being iron linked, which is quite unusual. I used...
Everyone experiences pain differently. It is electro-chemical signals and our brains are not all wired the same. If it hurts, it hurts. If someone else doesn't feel it as badly, it's not you being a...
The good test on the fridge is a great idea. So is good stuff in the fridge... Since you love your carbs perhaps you can start improving your diet by adding healthy produce to your "fix". Try really...
Huntington Beach, CA Bullseye. Denied diagnosis repeatedly in face of CDC standards - presented on paper, printed from CDC site. Because 'There is no Lyme in Ca.'...