I have CFS depression fibro anxiety and I COMPLETELY understand how you feel. I tutor 4 hours a week and that is all I do that so that I can help with med bills. I haven't been to any holiday dinners...
I have CFS and have exactly the same problem Adrenilin spikes. Have you gotten any help?...
Thanks Karen!...Yes I am walking 2 miles 4-5 days a week on the phen, but I am dubious that it will continue when I go off it in 3 months, I am just soooo tired...My blood sugar is between 245 and...
Rockon, I just wanted to let you know that I saw my GP today...He is very confident that I have fibro caused by depression and doubled my depression medicine and diabetes meds as my blood sugar has...
Thanks! I will look into this, getting by <3...
Hi...My brother has mild Asperger's syndrome and had terrible OCD and skin sensitivity to clothing, etc. Not saying that's what going on with you at all, but has the Autism spectrum been looked at at...
Ok Thanks so much...I'll discuss this with my doc this morning!...
I'm so sorry you're not feeling well. So many people suffering on this site, and having to pick up in life where they left off when they can. I know the feeling. So I take it would seem that I am...
Thanks for your help, Bill...I do think I will get a second opinion... I am so happy for you that you have regained your health!!, It sounds like you are making the most of it! Are you in remission,...
Thank you Jewelrylady!! Yes, I have been frustrated with my GP who believes CFS is not a separate disease, but just folds into fibro. I was diagnosed with CFS by a specialist in 89, yet my GP refused...
LOLOL...Thanks you so much Rockon...But could you dumb this down a little? lol...You have obviously got an educational or mental advantage way over and above mine! What are the conclusions you...
That's the problem Sherrine...On phentramine I lost 60 lbs and walked up to 8 miles a day...He took me off it and without the phentermine I was so exhausted I couldn't even make it to the mailbox and...
I will definitely check this out as my blood sugar has gotten really out of control lately...Thanks so much! I have heard about mercury before, which is why I have insisted that my daughter has to...
I am definitely a metal mouth...I did have my hair tested for toxins in my teens, during my first bout of mono, and the levels came back OK...But I will ask my dentist about this...Thanks so much for...
Thank you! I actually had the hives on Provigil, I don't have the hives on the phentermine... Someone suggested that if this is just fibro, I may have Mast T cell involvement that is creating the...
No the doc doesn't believe that off the phentramine I am too tired to do anything...He told me to drink a lot of coffee if I was tired... I can't convince him that at this point I am disabled with...
Oh I see...well that helps a lot...Thanks!...
I did...he still says it's only fibromyalgia....I copied and pasted this straight from the email I sent him... I have been reading about both and I think I fit the criteria for both of them, which...
I had a prednisone pack for a bad case of hives last week...I took it after the hives were gone because my face had broke out in a stinging malar rash and it lasted for days after the hives...
You are not the first to tell me that... :/ Thanks for your help.......
the only thing that keeps me from total exhaustion is a small dose of phentramine. on it I am able to walk 2 miles a day, off it I am disabled and sleep 15-20 hours a day and get out of breath just...
what does it mean when you test negative for lupus but your rhuemy wants to retest in 6 months? my ch50 was over 60 and my crp was 5.6...Those were the only abnormal tests and neither points toward...
I am being told this by several people....The rheumy says my symptoms are too nonspecific to say it lupus, but he is wanting to retest for lupus in 6 months, and my nurse friends are telling me that...
Thank you so much! I can't believe the time you have taken to help me...I do suspect that mast t is playing an issue here. I was glad to hear that my rheumy does want to run another lupus panel on me...
I think I am going to try the zantac/zyrtex combo and see if that helps me....I take it that Quercitin does not come in pill form?...
A Relatively Complete List of Associated Symptoms I fit all these symptoms but don't find extreme fatigue on this list...which is my worst symptom... ◦hot flushing – described as a dry feeling of...
Thanks I will look into this!! I really appreciate all your help! <3 I am going to ask the nurse if I can send her the links to these articles to show the rheumy...Hopefully he will be open minded.......
Thank you so much for your help...This info gives me a new direction to look...It would explain how I can have fibro but still have such strong issues with swelling and photo sensitivity, etc. Thank...
I was put on Provigil for sleep apnea fatigue and my allergic reactions increased....Provigil increases histamine responses in the brain, which causes wakefulness, but in me it also caused red itchy...
After reading your comments, I think I an going to run the mast cell issue by my rheumy and gp when I actually have an appointment with them....It does fit my symptoms....! I found these articles...
Hi and thanks so much for your information....It is so nice to have help from someone who clearly has researched their illness and empowered themselves with knowledge. The rhuemy's back today and...
Thank you!...
Thanks so much for replying...Yes he is a rheumy... My friend with lupus says it sure sounds like lupus to her. I read the info on mast cells, which was a bit over my head, and I do have many of the...
I hope you don't mind an additional question...I have normal tests: ana is OK , normal c3 and c4 ok, but the Ch50 which is high (over 60) sed rate 20 and crp 5.6, I have the butterfly rash, extreme...
This is also along a similar line, I hope you don't mind and additional question...I have normal tests: ana is OK , normal c3 and c4 ok, but the Ch50 which is high (over 60) sed rate 20 and crp 5.6,...
I have normal tests: ana is OK , normal c3 and c4 ok, except the Ch50 is high (over 60) sed rate 20 and crp 5.6, I have the butterfly rash, extreme photosensitivity, break out in hives, tingling...