Thank you for your responses and for all of the information. I definitely would not take a prescription unless I decide to switch to that doctor and do not plan on going back to my current Dr. I did...
Hi all, Haven't posted in a while, but really needed to get some input on this. I've been on Pain Management for a long time, and I have several conditions which are not curable and barely even...
Sandra, Thank you for reading my blog and for your words of support! I'm sorry to hear that you are dealing with pelvic pain as well. These conditions are life long and affect us and our lives in so...
Thank you so much for your responses. I know there are no words that can magically make it all better, but knowing I'm not alone and that you all are supportive does really help. I just came from...
Hi everyone, I hope you don't mind that I vent here, but I'm not doing so well. I finally had my neurostimulator implant trial last Friday, and I'm getting it out today. I had mine for pelvic pain,...
yup! Naturally a light auburn was th a little t more red than brown....
Sherrine, I'm glad you posted your experience and that it was different from what a lot of us have experienced. In my opinion a trauma of some sort can contribute but isn't a defining factor. I'm...
We need our own version of the "ice bucket challenge" or something like that! I guarantee there are thousands of people who never heard of ALS before that went viral and celebrities started doing it!...
As far as childhood, I wasn't exactly abused, more neglected, but I did go through a lot of trauma at an early age. I rebounded very well though and grew into a pretty healthy, productive adult. That...
Hi all, So my original appt for the Neurostimulator inplant trial was postponed twice already, but I'm finally getting it tomorrow! Just so happens, the last few weeks I've been in the worst...
Mine is A Better Son/Daughter by Rilo Kiley. I really related to it when I had to get up and go to work every day, and be a wife and friend and daughter, and try to put a smile on my face and pretend...
I actually have wondered the same thing, I'm not great about drinking enough water. I am trying to set goals for myself every week, since it can be overwhelming all the things I need to do to keep on...
I will definitely let you know! I actually did go to a Pelvic floor PT for a long time, and it took quite a while but it did eventually help! Unfortunately I moved and there aren't any in my area,...
I appreciate all of your input on these centers, if I do this, it will most likely be the one in San Diego. I have several conditions and I really like the mind/spirit/body approach, and personally...
Almost medfree, The correct term is neurostimulator. Its an electrical device, and leads are connected to nerves at the base of your spine that send 'positive' signals to your brain instead of pain...
Totally agree! Not an easy job and they do it wonderfully! Sherrine handled that post yesterday with such grace and strength! Thank you moderators!!! Louise...
I am really going to try, but it may be a while. I am getting a neuro-stim implant this week, and I have my consultation with my new Rheumy next week, so I want to see how my other treatments play...
Thanks for the info, and yes I will definitely let you know how it goes! That's got to be really hard to be without any meds for relief, I really feel for you! I don't know if I could do it. Then...
This is an interesting subject, and one I've thought about a lot. To answer your question, yes I've definitely reached a 10. Although for me, it's usually my pelvic pain, which is partly due to...
Thanks for sharing CheleL! I am having a neuro-stim trial on Friday, which will help my pelvic pain but not everything else. If that doesn't work, my next option is the pain pump. I'm curious,...
Happy Tuesday Everyone! :turn: I have recently been looking into wellness and treatment centers, and have come across a few. I really think it would be good for me to go away to a treatment/wellness...
Thanks Dawn! Yeah it's rediculous how much TV I watch these days. I hate it. I feel like a useless lazy bum! Really trying to work on not being so hard on myself about it. That's something I struggle...
Hi Ocean, I can't really answer your question as I don't know anything about Plaquenil. I did take Flexeril in the past and didn't notice it helped me at all. Mostly it just made me fall asleep! But...
It is so interesting how we all go through this! Acceptance is really hard. Kelvin, I used to be pretty much a clean freak, and now I look around at what a mess my house is and I think, who am I?...
Memaw, Thank you so much for your reply and or sharing what you're going through! I'm sorry to hear that you're feeling even worse right now. Even without answers or solutions it really does help...
Hi everyone, Sorry if I'm posting too much on here, just trying to cope and it really helps to hear how others deal with certain things. I was wondering how you all deal when you have several days or...
Hi Sevie, I know you posted this a while ago, but I was so moved by what you wrote I had to reply! I am so impressed that you were able to reach out to a forum like this and articulate what you are...
Thank you everyone, I will try changing the way I take my b/t meds. Although I don't think I could go without taking them on a daily basis. My ER meds just don't cover my pain enough! But I will...
Thank you everyone for sharing your insight and stories! I agree with what someone said, although I've sort of made it past some of the stages, I'm sure I will go through them again. I had recently...
Hi everyone, I have been in pain management for several years. And I have been on some form of long acting pain meds along with break through meds for a few years now. I usually take both either a...
For those of you that are eliminating or reducing salicylates from your diet, I wonder are you eliminating them from the products you use too? I never did this for diet reasons, but when I was on the...
Cary, My mistake regarding the working, sorry. I agree what you are saying regarding the meds. However, I still think there is a difference between what you are describing and addiction. That is...
caryF, you stated that addiction & dependence are psychologically the same?! I have to respectfully disagree with you :). When you are on narcotic pain meds, you do become physically dependent, but...
Sorry you are going through all of this. I often feel very much like you described. I have Fibro and had terrible back pain for years. Turned out I on top of the Fibro I had a torn and herniated...
I've recently realized that this past year I've been going through a grieving process over being sick. And over the loss of my life as I once knew it and the person I used to be. I literally have...
I tried Kratom capsules quite a few times in the past. Maybe the first few times I took it, I noticed it helped with my pain and I had energy and an all around good feeling. But for anyone who has...
upjo, I just want to say that those feelings are completely normal. I thank god for family because if it weren't for them, I probably would have done it somewhere along the way. But the point is, I...
I actually just went through a pretty big career change. I worked as an IT manager, had a long commute and it was pretty high stress. Towards the end of last year, I ended up giving notice because I...
I am in the US, but it took almost two months for my insurance to approve it. Although this has been done for IC and pelvic pain for some time now, because its not the "typical" reason, insurance...
Thank you so much purple for posting this! I always find it helpful to hear new insight on what (potentially) has helped others, and another avenue to explore! That is great that this has helped your...
Cckp, Reading your post gave me the chills it was so similar to what I went through with pelvic adhesions! I now unfortunately have multiple chronic pain issues- pelvic, back and Fibromyalgia, but...
I am actually having this done next week, but for me it is specifically for pelvic pain. Which depending on who you ask is directly related to the Fibro. I have heard it really helps some patients,...
I get a lot of random nerve pains in my toes, as well as my fingers. This was one of the first types of pain I had with the Fibro. It's not all the time, but I get these sharp, shooting electric...
LOL Anna Bannana, I love you're idea! "We're Screwed" is perfect! I've been trying to think of some term that would cover having multiple conditions, including Fibro, CFS, and Chronic Pain. Sherry,...
L, I'm really sorry to hear that happened to you! That is really scary. That is not the company my LTD is through, thankfully. I agree it wouldn't be worth living like that. I have no idea how the...
Thanks everyone, this is some valuable input and it is good to hear all your various experiences! My main concern is my age, as I feel I'm pretty covered in all the other areas. Not that I'm SO...
I have pretty bad joint pain, which as far as I know is from the fibro. I've had terrible hip pain for years, but the other joint pain was occasional and sporadic. But the last few months it's...
Thanks for your responses, this is encouraging! I have my doctors behind me, especially since i have so many conditions I think my chances are fairly good. I have also tried so many types of therapy,...
I have done quite a bit of research regarding long term disability and FMS/CFS, but I'm curious to hear from anyone on the board who has applied for this (either through Federal disability or private...
I've thought of the exact same thing...starting something on FB. I was thinking specificially for CFS, FMS & multiple chronic pain conditions. Besides the lack of understanding about CFS and FMS...