Your quote about medical professionals not being too happy about the self-diagnosis trend is telling. There are two main reasons for this. First, is the high cost of health care that forces many...
So sorry to read of your health challenges! I certainly empathize, as I've been struggling with CFIDS along with complications. Low-dose naltrexone has been mostly used for ME/CFIDS patients, but...
Your symptoms suggest to me that a possibility for you to investigate is exposure to formaldehyde. I made a thread for this over on the Chronic Fatigue forum:...
Triptans are safe to take -- but only for severe headaches. It does not sound like they would be appropriate any longer in your case. Bruce...
I think the fact that you mention the herpes outbreak may be important. There is obviously something else going on as well, but the HPV may be triggering the headache. HPV will encapsulate and lay...
You may have more than one factor contributing to your case. The medications you are taking might be relaxing the lower esophageal sphincter. You may also have a food intolerance you are not aware of...
Your mention of the norovirus is perhaps important in your diagnosis. However, for some reason, your doctors have chosen a course of action in their treatment that does not address a possible immune...
Why did the GI doctor not set up a pH test at the same time as the endoscopy? That would determine whether or not you are refluxing. I've had LPR (atypical GERD) for years, and if you (or the doctor)...
I thought it might be helpful for the discussion in this thread to post this: Chronic paroxysmal hemicrania (CPH), also known as Sjaastad syndrome, is a severe debilitating unilateral headache...
I watched the video Michaela posted above. While I'm glad it works for you, and you are confident in the chiro who does this for you, this is basically just a form of traction that affects the upper...
Hi astroman -- You make some good points, and ask questions that would require far more than the space and time here to respond to. There are those who claim that fibro is a completely separate...
LDN: http://www.healingwell.com/community/default.aspx?f=15&m=3786777 ...
Good news! Take it easy this weekend, enjoy your family, and you'll be back to your normal self in no time! Bruce...
Hi Connie -- With the additional information you provided about your surgery, I understand now about the Lyrica and Elavil. I am not so confident about triptans for the headaches you are...
Hi Connie -- I've been struggling with CFIDS and a whole host of secondary symptoms for several years. Since I was getting absolutely no help whatsoever from doctors in the beginning, I had to become...
Hi Tabby -- While I admire your inspiration to help others with CFIDS, I have a bit different take on what you suggest. What you propose adds more complexity to someone's life in having to learn how...
Hi again, Connie -- You just provided more information to your case. I am particularly noting your headaches, especially in relationship to your fatigue symptoms. I have a lot of experience with...
Hi Connie -- I'm not sure why you posted in this LDN thread, but I would not consider this medication for what you are currently experiencing. Chronic Fatigue Syndrome (the message board you posted...
This webpage might help you see how the results are interpreted: https://labtestsonline.org/understanding/analytes/ebv/tab/test/ "If the VCA-IgM is negative but VCA-IgG and an EBNA antibody are...
I'm not a fan of the massive-dose injections. Not only is it just excessive, it's not in a form that the body can readily use (unless this has changed recently). I, too, am chronically low, and even...
I agree, and what you say can also apply to other conditions. Many times, modern medicine loses sight of the real goal, treatment and recovery, because physicians are too busy trying to diagnose and...
The way I understand it myalgic encephalomyelitis is the broad medical term (which is an autoimmune disorder), and fibromyalgia and chronic fatigue immune deficiency disorder are the two...
Fibro is an autoimmune condition, and it's possible to display secondary symptoms before the primary ones appear as the disorder progresses. I've found that it is important not to allow yourself to...
I wish I could say more to alert you all about this danger. The very fact that you are reading this thread on this board means you (or someone you know) are displaying one of the key chronic symptoms...
Losing the ability to regulate body temperature is common in several autoimmune conditions before a flare. I also will get hot flashes as a reaction is coming on, followed by chills. It is most...
I wandered over here from the CFIDS forum, and thought I'd add my two cents. Since you're noticing a change in your symptoms following a move to a different home, there is a possibility of a chemical...
Thanks for your thoughts, cilly. This is an article describing the California Healthy Nail Salon Collaborative:...
Hi Susie -- Thanks for your thoughts. I'd like to do as much as I can to get the word out about LDN. There's nothing really "new" about it, of course, but neither doctors nor pharmaceutical companies...
Hi everyone -- I've been asked about low-dose naltrexone as a treatment option, and there are some excellent resources for it on the web. But I thought I'd provide a summary here of what it is about,...
Hi Lauren -- While I am well beyond college age, I certainly empathize with your challenges! Your fortitude is inspiring, and I wish you well! However, I also urge you not to accept your limitations,...
I'm not sure I would necessarily think of chronic fatigue initially in your case. While symptoms of fatigue may come and go in the early stages, this is probably unlikely. When it reaches the point...
The reason CFIDS "does what it does" is because the primary vector of the autoimmune condition is cell mitochondria. Mitochondria is where ATP is synthesized, which is the energy that fuels much of...
Hi everyone -- I haven't posted in a while. I became very ill with CFIDS and other conditions for a couple of years, then recovered much of my life after starting LDN in August of 2013. Within the...
Among the symptoms of Vitamin D deficiency can be muscular pain. Vitamin D supplementation has been shown to reduce the severity of asthma attacks, but to say that deficiency can cause lung disease...
Hi John -- I have not had genetics and muscle testing. And, as you noted, celiac testing is notoriously unreliable...as are the serum tests for other food intolerances, I might add. I don't buy into...
Don't know how long you've been haunting this forum, but to poll members here won't give you perhaps a good sample of possible responses compared with a wider population of GERD patients. Most here...
Hi Bill -- That's why I was confused, because I didn't do what I understood would have been described as a "long summary." I only gave brief summaries from the linked pages...not long at all....
Your lab uses a different scale than mine -- I don't know what your value means, other than, as you mentioned, it's "low." Is it possible you are thinking about antibodies backwards? A low reading is...
While you do mention occasional heartburn, I would be cautious about categorizing these symptoms as GERD or LPR at this point. Some of the symptoms you mention may even be due to some of the...
Hi drtinsac -- I just spent a couple of minutes Googling "elevated b12 serum levels," and the possible causes cover a wide scope of conditions. I would encourage you to investigate this further,...
I don't want to give you a cryptic answer, but I was criticized by one of the mods for putting links in posts. This link: http://www.healingwell.com/community/default.aspx?f=45&m=2665624 will...
I empathize with you, as I have been over a similar journey...although not as lengthy as yours. Two things you don't mention being tested for are candidiasis (possibly the source of the "white goo"?)...
Hi BG -- You just had a single antibody test for candida? A "low" reading would be <1.0, with no antibody detected. The relevance for each test is as follows: IgG = indicates a past infection IgA...
Hi ARM - I completely understand your frustration! The way reflux seems to defy explanation fits your description. I encourage you to keep searching, though. IMO, diets like the one you mention don't...
You want the candida-specific IgA, IgG, and IgM tests. They're standard, and all labs should carry them. Each one relates to a different aspect of the infection. For some interesting reading, Google...
drtinsac -- Have you had the blood work yet? With the concerns you have about candidiasis, you really should add the IgA, IgG, and IgM. Might give you a little more insight. There are two forms of...
Hi phil -- I like to offer a counter-theory to yours. One misconception of the stomach, or any organs of the GI tract, is that they are "spacious" as depicted in diagrams, and have a robust structure...
MMM -- hope it may send you on a new avenue to explore, that may offer some hope! Pat & DOGGBONES -- I don't doubt your doctor's evaluation...highly unusual to see anything in the stomach during an...
I had TIF surgery in August of 2011. Most of my symptoms were "extraesophageal," i.e., throat and larynx, with only occasional heartburn. The surgery was successful in making me more "comfortable,"...
Thank you for the link, Pat. I think it's important for all of us here on this board to retain perspective and focus, and while it's important to be aware of things like bile reflux, to also...