Cocoa, You should really be tested PROPERLY for Lyme Disease if you haven't already. I can't begin to tell you how much your symptoms sound like Lyme. The memory deal, putting things in the wrong...
Bethica, If they do an ELISA Lyme test---which unfortunately is the most common, it gives more false negatives than any other. Either the IGeneX Western Blot or the Bowen are most likely to be...
Hi Bethica, I was diagnosed with both eczema and asthma, experienced terrible fatigue, and have had a subnormal temperature since I was a child. I actually have Lyme Disease. That caused my "asthma"...
aquarias, I had no joint pain at all from Lyme until I started taking the antibiotics for it, and all of my other symptoms could easily be misdiagnosed as CFS. I am clearly improving after being on...
Hi Nichole, Your symptoms and conditions are ALL consistent with Lyme Disease---brain fog, etc.; so I really suggest you check into that. You have to be given the right test to really detect...
Hi jordan1, Your temper description rang a bell with me. I used to suffer from what is known as "Lyme Rage" caused by Lyme Disease. Think of it as "Road Rage" not limited to the road. I noticed that...
Hi Lysha and Rhonda, Even the CDC says Lyme should be a clinical diagnosis because there are no FDA-approved tests that have a high enough degree of accuracy to be used for absolute diagnostic...
Hi aquarias, How did you Lyme tests come out? I still think your symptoms could be Lyme especially with your scary thoughts---Lyme can do that....
Hi Gary, I did a little research since I didn't know offhand. Bed bugs aren't in the tick family. Bed bugs have 6 legs and ticks have 8. From what I've read, bed bugs aren't thought to transmit...
Hi Gary, I hope the parasite diagnosis is right and the treatment goes well. But...if it doesn't... remember ticks just love to hang out in the great wild. All of your symptoms sound like Lyme...
Orion, I agree that is a great book and website. I had the exact same EUREKA!!! experience when I found it in April. I even used to hold my head in my hand just like it shows on the cover. I went to...
Hi Sarah, What are your other symptoms? It sounds like your doctor is less than ideal; so it seems quite possible your CFS diagnosis may not be right....
Orion, Most Lyme tests will give a false negative if they are done too soon or too long after a person is infected because they look for antibodies rather than the actual bacteria. Lyme bacteria can...
P.S.---CFS, Fibromyalgia and meningitis-type symptoms are subsets of potential Lyme symptoms. Lyme has been called "the great imitator". When tested properly in at least two Lyme studies I am aware...
Orion, Some more points for you to consider in your quest: Feeling better after you were on vacation awhile is consistent with adrenal fatigue. Adrenal fatigue can be caused by a chronic...
Hi SVTCobra, I know you said you are going to try to see a neurologist. Please be aware that many neurologists do not know much about Lyme and Lyme can be misdiagnosed as many conditions including MS...
Hi everyone, I know this is an old post but I hope some of you are still interested. (Some CFS people probably wonder why I keep posting on this forum but I just want to save someone else the years...
Hi Amby, Just wanted you to know that the symptoms of POTS are also the symptoms of Lyme Disease---which is usually curable with antibiotics. If you haven't explored Lyme, you probably should. Keep...
Hi Spydergirl, I suggest you rule out Lyme disease even if you don't remember being bit by a tick. The symptoms you describe could be Lyme, but you would probably have other symptoms of it beyond...
Hi hug, I really recommend you get tested for Lyme Disease because it would account for all of your symptoms and the monthly cycle link is classic with it. How long have you had your symptoms? You...
aquarias, Thanks for the the endorsement. I think anyone thinking CFS and/or Fibromyalgia would be wise to read the Lyme symptoms and info so they can rule it out before they accept those diagnoses....
Foreign, Try re-reading what you just sent me: "Links to helpful web sites (commercial or otherwise) are allowed when they are posted by someone without any "vested interest" AND whose purpose is NOT...
Wayne, The links are as above unless someone removes them. Regarding anemia, my mother, sister and I all have Lyme disease and have all been anemic for years. I have read that iron-deficiency anemia...
Foreign, Exactly which link rule are you referring to as being violated? I read the rules and see none!...
aquarias, No CFS diagnosis for me; although fatigue has been a major issue. The only time I know I was bit by a tick (not deer) was when I was 7-8 years old; I have no memory of a rash. After...
aquarius, You're very welcome. I was excited when I got diagnosed because it meant I was finally on the road to solving the problem. Regarding testing, eight months would make you chronic; that's...
Hi aquarias, I think the source of your problem may be Lyme Disease. It would account for ALL of your symptoms including anxiety (and even Wayne's mother's anemia). Plus, one study of CFS patients...