Jenn Brea did the documentary "Unrest". She has written several times on her facebook page about her surgery. She says it improved her MCAS (Mast cell activation syndrome). I have seen some other...
New. "Stanford University School of Medicine scientists have definitively linked mast cells, a class of cells belonging to the immune system, to the development of osteoarthritis, one of the world's...
New review of the literature published this April. [ ] titled Mast Cells in Neurodegenerative Disease. Jones et al. Frontiers in Cellular Neuroscience. April 30, 2019. Mast cell and glial cell...
Lisa Klimas. Posted December 2017. There is a brief statement there about bone pain. I had my first bone pain about a year ago. Thankfully it was a very small spot. And very short lived. Really...
Successful mast-cell-targeted treatment of chronic dyspareunia, vaginitis, and dysfunctional uterine bleeding. Afrin and Dempsey. April 2019....
January 24, 2019 Evidence of Neuroinflammation in Fibromyalgia Anthony L. Komaroff, MD reviewing Albrecht DS et al. The Swedish team (with Kadetoff and Kosek) worked with a Massachusetts General...
May 2019. Review of the literature. Publ. in Rheumatology International. Title Role of inflammation in the pathogenesis and treatment of fibromyalgia. Coskun Benlidayi et al. In conclusion, there is...
Straydog, did you scroll down to the forum thread? Just as at healingwell, there is an ad near to the top of the page. It is below my screenname and avatar. I do not understand this at all. At the...
That was a link to a fibromyalgia forum. Just like this is a forum With Advertising, with ads here on every page, ads for a variety of products. To cover the cost of the forum they have ads. You got...
Sherrine. I have been complaining about this for a fair amount of time. Because it happens repetitively now. That you say you are not a happy camper...well you will notice that I have been saying...
Hi straydog. I appreciate that you are trying to explain somethinv, but you are confusing two separate issues. One is that Sherrine thought I also complained about parts of this thread having been...
Sherrine If I run a search with words in this order: "Inflammation fibromyalgia", a thread titled "Should I call my RA tomorrow?" always turns up. Here page 36 of the board of thread titles....
The thread once again does not appear in a search. Or is this personal? Does someone at HealingWell disagree with the science I posted? If they do, the proper way to voice their disagreement would be...
Sherrine, Hi, I did a search a few minutes after your post. Searched for fibromyalgia inflammation. The thread I am concerned with did not turn up. I didnt check through the day, but now, once again,...
At 9:36 pm I posted about this problem. At 4:31 am I checked and it was fixed, and I wrote an edit saying so. Now I have checked it again. It's 2 hrs later,. and the thread disappeared again from the...
Twice I have complained about my thread disappearing from the healingwell search feature. The one titled "There are markers for inflammation being found in fibro." Twice after I complained, it could...
Published in Ther Adv Musculoskelet Dis. Jan. 2018 https://www.ncbi.nlm.nih.gov/pmc/articles/PMC5724646/ ...
I wanted to reference a study that I knew was in my thread titled "There are inflammatory markers being found in fibromyalgia." As always, i did a site search for "fibro inflammation" . 10 pages of...
Hi Ebonyeyez. Hopefully this doesn't need edits before my tablet runs out of juice! My SED(ESR) remained elevated for years, but I don't know what it is lately, cuz I am avoiding Dr appointments....
In The New Republic December 2016 Title:Congress Just Quietly Handed Drug Companies a Dangerous Victory "...under the Act drug firms will increasingly be able to rely on flimsier forms of evidence...
Google pharmaceutical companies hide the dangers of medicines There will be articles from NIH, NPR, Forbes, NY Times, Scientific American, Harvard University, Washington Post, Drug Safety News,...
As someone who was prescribed a mitotoxic medication for my Fibromyalgia for 20 yrs, including for many years after the research showed it was harmful, I disagree. Big Pharma is in control of the...
The neurologist, who's interest is "mitohacking", posted this just now. It says the articles on Mito damaging meds never get published in mainstream medical journals. Not surprised at this point....
I also found research about floroquinolone antibiotics being mast cell activators. (I posted the info and a study quote at myPatientMatch if you want to verify the info). I don't know if that is...
The same neurosurgeon posted this on the 15th. He said he has refused to use these meds ever since the vioxx and bextra scandals a decade ago. Turns out he is right about there being problems for...
Someone in a mast cell group told me this last week, and a neurosurgeon I started following on Facebook just posted this. I take the timing of this just now being posted as a sign I am supposed to...
Cort Johnson Health Rising fractalkine study in CFS...
I have posted this for a specific set of people, those who have taken the time to read through major parts my "Reference thread to share mast cell info", at the myPatientMatch forum. In this...
First a correction. I thought maybe H2 histamine receptor blockers, commonly called H2 antihistamines, might be the same as what are called antacids. They are in the same section at the drug store....
I forgot to say that someone I trust at myPatientMatch wrote that memory foam is toxic....
Oh I didn't see this post, didn't realise you wanted to connect with folks there. Sorry for suggesting you take down the url. Well be careful with sharing some things on your FB page...You're a big...
I had a pretty good string of nights having a normal sleep schedule, but my curiosity just messed with me tonight. I stayed up too many hours!...
Eventually on this thread Dr Mark Pelligrino says prednisone can be used for fibromyalgia. http://forums.webmd.com/3/fibromyalgia-exchange/forum/18908 From Ilovehockey, copying just one sentence: " I...
There is a long thread here called "There are markers of inflammation being found in fibro". It has 30-35 studies summarized & also with links. Use the search box and looking for "fibro...
Perhaps some would like to look at the Facebook page for fun. It does not have a donate button. https://www.facebook.com/cort.johnson.9/ Should anyone ever look for the muscle study, perhaps this...
Rockon, I had to remove the link because it was asking for donations at the end which is against forum rules. Sherrine ________________ The second gene expression study of the year was recently...
Thanks for the sympathy. sometimes its a little relief to say outloud (type outloud): dang this hurts! There are fibro neurotransmitter studies. And I believe there is a study saying that the meds...
Hi. Sorry to take so long. My biceps are screaming. Now screaming even more because of the prime day sale on amazon. And the sales each day leading up to Prime Day. Way too much muscle control...
I gave some info that might be helpful in this thread about bone pain. http://www.healingwell.com/community/default.aspx?f=24&m=3649116 ...
I don't know if he is very far south, But Roland Staud is a name I have seen several times. I came across an interview with him in the Gainsville paper. And another article as well. I wrote a review...
One more thought. Could you be becoming more chemically sensitive? The car may cause symptoms until it has finished off-gassing. & I may as well also mention that Mast cells can be involved in the...
I decided to be open minded and google lyme and bone pain. It does get mentioned. But mast cells also get discussed by lyme patients. as you can imagine, Mast cells are not fans of any pathogens....
Hi, and a belated welcome to the forum. Mostly I *try*to wait to bring up this topic until I notice someone has a few symptoms of a mast cell disorder, before bringing it up, because I have become...
there are a lot of moldies here: https://www.mypatientmatch.com/posts/mold-testing-apartment-for-dummies-39169 I just grabbed the first thread in a search, but there might be better threads. Lots of...
Hello. I'm so sorry you and the family have lost your mother. I am sending my good thoughts and hopes out and I hope that the universe will help you all to get thru this and feel at peace....
http://theargusreport.com/us-neuroscientist-says-exercise-is-a-noxious-stimulus-that-worsens-symptoms-of-mecfs/ Sounds like the earlier message: strengthening exercise is needed to maintain, but...
Somebody tell Peter there is apparently no need for a fibro forum here. And tell him he doesn't have fibro, just a collection of symptoms and no real diagnoses....
Could parts of the brain be exquisitely sensitive to cytokines? (why not, mine's sensitive to lots of other things) Didn't know if anyone here would be interested in this blog from Cort Johnson....
I never heard of it. So interesting. Thanks for sharing....
If you do an internet search with the name of any med and the words "side effect", you will be directed to sites like the one I will link to. They do list dry mouth as a possible side effect of...