It would also help to know what the pain meds are for. What type of pain? I was on Methadone for 9 years and had to take myself off after moving because where I moved, no pain management doctor would...
Mary, welcome to our club but as you have realized qualifications for membership is not very pleasurable. Did you get relief after the fusion surgery? There can be multiple reasons for...
Some people stop the pain meds . Again, take it easy and take it slowtoo soon as they are afraid they will be labeled as an addict or they don't like the side effects. Most of us don't like taking...
Toothy, welcome to the community. Let me start off with you are only 3 weeks out so give yourself a break. I have chalked up 7 back surgeries and they get worse each time. It is common to have issues...
I had to stop drinking coffee even though I looked forward to it. They wanted me to drink coffee because the caffeine helps stimulate CSF production and to help me clear the fog do to the sleep meds...
The nausea, double and blurry vision and hearing isues along with positional headaches are classic signs of a CSF leak. I suggest with the possibility of a CSF leak that people keep a detailed...
I am switching from a pain patch to Belbuca film. It has more dosing options then the pain patch I am on and have looked at the research. I just wanted to see if anyone else has tried it. It is still...
Alice, My last several myelograms have been extremely painful. Since I can't have MRIs, they do CT Scans and Myelograms. They explained it to me that do to the multiple surgeries, nerve damage and...
Yes it is common after have diarrhea to have a day or two of constipation. I have extreme nausea and if it includes vomiting the I know that I could be constipated more than normal that is due to...
Had my visit with the Neurologist today and it went pretty much as I expected. There is no reason o expect the symptoms of the CSF Leak to improve since the leak cannot be repaired. She said that...
HT, I have done so much research regarding the CSF Leak it is almost ridiculous. These leaks can be so difficult to diagnose. Even finding to exact spot of the leak can be extremely hard and many...
Straydog, My PM finally decided since I was having difficulty getting into a neurologist that they would give me a prescription for Topirmate. I started it and increased after a week but then I...
I have recently been told my spinal fluid leak is non-treatable. I saw what I believe and accept as the best in the field that is available to me. I have been waiting for several months to have a...
Minnesota, Straydog is absolutely right. There is a big difference between addiction and dependence. Part of it is why a person takes the drug. If it is taken as prescribed and not abused people can...
PDT, sorry you are having to suffer so much. I also was a police officer and injured after being assaulted. I have had 7 back surgeries and 4 spinal leak surgical repairs along with injections,...
I had 6 ablations done about 4 months ago. Never again. I am kicking myself that I let the PM talk me into it. I struggled with the meds and the idea that pain was going to be a way of life. It took...
AMDD, I was just looking at past posts and saw you have not posted in awhile. Just wondering how you are doing. I hope the feeling of being overwhelmed with pain, pain meds and the anxiety are better....
Sorry to hear about the pain. I also know that dealing with work comp is another pain that is difficult. Just an idea. My wife had a painful shoulder that continued for some time and got to the point...
My wife told me that she did have swelling but does not remember redness. She had knots in her arm, shoulder and upper back that the physical therapist worked on. She also was going weekly to a...
Beachlover, sorry to hear about the frozen shoulder and other complications. My wife was diagnosed with a frozen shoulder about 3 years ago. She got to the point she could not lift her arm and had so...
Mark, sorry to hear you did not get the relief you were hoping for. I have had my SCS since 2009. If I could get a redo, I would not have it implanted. After 7 back surgeries, 5 spinal fluid leaks,...
I know that for some this seems like a taboo subject to discuss but it is part of a happy and pleasureful life. Not sure what other health issues you have or have had but yes, your body can respond...
Normy, sorry you are having so many issues with your SCS but that is not all that uncommon. I have had mine for over 10 years and if I did it all over I would not have had it implanted. PM docs are...
Yes it is an option. My PC has tried CBD with me with no relief. She said that if CBD did not work at all, MM is probably not going to be as effective. My issue with MM is I will not be able to...
It sounds like you are feeling overwhelmed with everything at this point. I agree with Straydog about addressing the anxiety. Having your husband help with your meds can be a good thing at least to...
My previous pain doc said there was nothing he could do for me and he had no idea as per meds. I did suggest a pain patch which has helped some. He moved his office and it ended up being a 3 to 4...
Straydog, They have me on Fioricet which has caffeine in it but still wanted me to take in more caffeine. I suspect that one of the balloons that contain the leaked spinal fluid broke open and as my...
Thanks for the encouragement. My PM Dr decided to put me on Topamax. We will see if that helps. Everyone has been waiting to change my meds until I saw a neurologist but it looks like it will be 2...
Another issues of going on to Medical Marijuana is it limits a person who wants to travel. Since most PM doctors either require you to be off pain meds before or shortly after you start MM, if you...
For many of us that live through chronic pain, work is a 2 edged sword. Leaving the financial aspect out of the conversation, work has impacted me several ways. My wife asked one of my doctors one...
Just what anyone needs, another pain. Recently a neurosurgeon advised me that people who have chronic pain especially from back or neck issues end up having other pains from issues because they...
Thanks Trina for the response and the link. I am very limited as I am on a work comp claim. My last two surgeries were at Barrows in Phoenix AZ. They originally would not see me until a surgeon at...
I have searched under several topics here but nothing specific so far. They won't risk a blood patch either after the last surgical patch last year that landed me in ICU for 3 weeks, they said the...
I am seeking information from people that have had CSF Headaches accompanied with blurred/double vision. I have had multiple CSF leaks in conjunction with back surgeries. I had 3 back surgeries last...
It has been a few years since I have been on here. I have had multiple back surgeries that either resulted in or were to address spinal fluid leaks. Now I developed another spinal fluid leak in the...
Greetings and I also send prayers of healing and low pain, A blast from the past, Fatherjohn...
Krafty, I have an SCS and I use my hot tub almost daily. I have absolutely no problems with the SCS in regards to soaking in the hot tub. Of course, you should think about it until the wound has...
Bubbie, I do not want to hi-jack your thread but Krafty01 asked for comments regarding my increase in meds and thought that it could seem like the SCS was not working for me. The reason that my meds...
Lindaloo, Merry Christmas and may the new year bring you many blessings and joy. I am sure that Kelly and Anna see a loving and caring grandma and not someone suffering through radiation. As I have...
Bubbie, Welcome to the site. I just wanted to give you a little info regarding the SCS implant. After my implant, I went back to work 2 days later. I traveled by air several weeks later and did not...
Montys Mom, It seems like it continues forever and I am not even effected. My wife has been going through mentepause so long that I just accept it as a fact of life that may never change. It is a bit...
I have an SCS that was implanted after a failed lower back multi0level fusion. I would have to say that restictions would be more based on the reason that the SCS was imnplanted to start with. After...
Scoli, I have read your posts and find common ground. I did the same thing you did with trying to minimize the amount of pain meds that I was taking for 9 years. It then got to the point that I was...
Merrygirl, I have taken holidays and they have been approved by my pcp. I don't do it to raise the effectiveness or tolerance. What I found when I did not think my meds were working as well as they...
Annie, welcome and at the same time sorry to hear that you have been among the chronic pain suffers for over 5 years. The bulging discs are often the start of much more but exactly what the more...
It is great to hear the good report. I know you will take good care of her and maybe this will be a good time for you to take a short breather as well. Be blessed!!...
I once knew a man named Pete who always seemed to be on his feet, there was always a chore as he walked out the door, even having to stoop to pick up horse poop, but the real joy of his day was to...
It is good to hear things are going a little better. As has been mentioned before, your strength shows through all that you are dealing with and that coupled with your positive attitude goes along...
Ok Fatherjohn a priest right. No I am not a priest, well at least a Catholic Priest. I have been a pastor for 28 years. about 10 years ago, I took a large group of high school youth to Slovakia,...
You da man, da fisherMan. Great story of perseverence, dedication, diligence, commitment, and did you really forget the pain meds? Ouch. It does not sound like the fish had much compassion for you...