Dear CRPS: Have you ever heard of Enterra therapy for your gastroparesis? It's basically the same device as the scs, but it is implanted in your stomach & it stimulates the stomach to work properly....
I, too, am so sorry for your tragic loss. Lorie...
I, too, have this type of card where I list all of my meds, dr's, etc. and I got it from my Pain Management doctors office. They had them on the counter where you sign in/talk to the receptionist. I...
I want to addy condolences to Privey's family as well as to all her friend's here at HW. Lorie...
Hi Skeye: I am so incredibly happy for you! You have faced and conquered so many obstacles & you deserve this 100 times over! Lorie...
Hi All: The "news special" I believe Dani is referring to was a documentary called "The Oxycontin Express" if anyone is interested in watching it, you can find it online....
Hi AuntKay: I'm so sorry that you are hurting so badly, and I am very sorry about your Dad's diagnosis as well. I will keep you and your family in my thoughts and prayers. Lorie...
Hi Becky: Your poem gave me goosebumps! Please don't hestitate to share your writings in the future! Lorie...
Hi Casamom: I just wanted to say Hi and welcome to HW. Many of us have been faced with the same situation, suffering terribly because the doctor thinks they know us better than we know ourselves. It...
Hi RetiredMom: I'm glad your surgery is done, sorry you are so sore. I wish you a speedy recovery. My thoughts and prayers are with you. Lorie...
Hi Whitebeard: Thank you so much for your reply. I always look forward to reading your posts. I really appreciate your well wishes, prayers, and advice. To answer your question, yes, the pump...
Hi All: I promised an update, so here it is: It's been about 10 days since my pain pump replacement surgery, and I am hanging in there. The only problem I had was that my doctor did the surgery and...
Hi Willheal: Hi and welcome to HW. My 22 year old son has been diagnosed with AS, and because of his age, no one wants to do anything other than physical therapy. He is a full time student and works...
Hi All, I wish I had time to address each of you individually, but it is after midnight and I have to be up at 3 a.m. to leave for the hospital where I am having my surgery which is 2 1/2 hours away....
Hi All, I am so sorry that I have not posted in a while, but I have been trying to read posts as often as I can to keep updated on you all. The last time I posted, in the beginning of July, my...
Hi Squeakydog: I have been suffering with CP for 15 years and have had an intrathecal pain pump for about 8 years. I have had a Spinal Cord Stimulator for about 10. Several things about your post...
Hi RetiredMom: I just wanted to wish you well tomorrow! You will be in my thoughts and prayers. Lorie...
Hi Suzane: My husband and I are huge NY Islander fans. We used to go to games several times a year, but it just got too painful, so we watch it on TV too. Here's to a good season for both of our...
Thanks scarred, you brought tears to my eyes! I wish the same for you and everyone here! Lorie...
Hi Charbear: Welcome to HW. I have a Medtronics SCS too, and I have had to have leads repositioned due to a fall as well, and it requires an incision. It was near the time that I would have needed a...
Hi PaLady, Mom to 6, RetiredMom, Dani, Pete, Butterfly, Chutz, Ms. Bunky, Mikel, Chart, Geckogirl, Aunt Buggy, Tmj, & 9 yrs: I can not tell you how much I appreciate each and every response to my...
Hi Skeye: I am so excited for you that you finally got this trial underway! I hope that it continues to give you relief. I am sorry that you are sick - I hope it is just a 24 hour bug and it doesn't...
Hi all: Most of you will probably remember that in my last update I told you of all the problems my husband and I had been having - my husband was hospitalized due to a bad crohn's flare and was...
Hi All: I had a e-mail from Pete to let me know that the TENS unit I sent him is working well, and he asked that I let you all know that he feels like he needs a little break from the forum to deal...
Hi Michael: Thank you so much for keeping us updated on Privey's condition. Please tell her and her husband that they will be continue to be in my thoughts and prayers & I hope that this is the...
Hi Linda: Your strength and determination are such an inspiration! I, too, will be here to support you when you need it! Lots of postiive, healing thoughts and prayers are coming at you! Lorie...
Mikel: I am so happy to hear that you are FINALLY going to get your surgery done! I pray that you are able to get it scheduled sooner rather than later, and that all goes well and your pain is...
Hi StellaMarie: It is so good to see you post. I, too, am very glad that overall you are feeling better each day, and I hope they find something to take care of the water retention. Take Care, Lorie...
Hi Laurie: I am so happy to see you post. I have thought about you often, wondering how you were doing. I'm sorry that you are being laid off, but it seems like it might be a blessing in disguise?...
PaLady, Antbuggy, Skeye, Dani, Ms. Bunky, and Pete: I can not begin to tell you how grateful I am to you all for taking the time to read my update, and for your kind words, well wishes and prayers. I...
Hi all, I have not posted about myself in quite some time, I've just been so overwhelmed and I really don't know where to begin. The last time I posted, I had just started seeing a new doctor to...
Hi Brenda: I'm glad you don't have another problem to worry about in addition to your back - that's enough all by itself! Hope you get some answers next week. Take Care, Lorie...
Hi Dani: I'm so glad to hear that you and your family have made it home safely and that you are all recovering from that awful stomach flu. I'm sorry that you returned home to more difficult...
Hi Lindaloo: Thank you so much for keeping us informed on how you are doing and the course of treatment prescribed for you. The prayers will keep on coming, and we will be here for you every step of...
Hi TMJ: I just wanted to say that I'm sorry you are suffering so much, you will be in my thoughts and prayers! I've never done the chat thing, but we'll give it a go sometime! Lorie...
Hi Pete: I did not pay anything out of pocket for the TENS unit, so I really don't want anything for it. It makes me feel good to think that I may be able to help reduce someone's pain some. I added...
Hi Dani: Your symptoms are very alarming, it sounds like an infection (cellulitis maybe?). Do you have a fever at all? Please consider going to a walk-in clinic or ER before you make that long trip...
Hi Pete: I was reading your posts, and read where you said that your tens unit was stolen. I have a brand new one (only used a few times), and I don't use it because I have the SCS. You would just...
Hi Shannon: I took my niece to have her tonsils out a couple of years ago, and I took care of her for the first two weeks after surgery. It is tough to see them go through the pain of recovering from...
Hi Rena: I have had a Medtronics SCS for over 10 years, and although I've had my share of complications with it, I wouldn't give it up for the world. I am glad that you are getting good relief with...
Hi Lindaloo: I just wanted to let you know that my thoughts and prayers continue to be with you! Lorie...
Hi Lindaloo: I am sorry I am behind in reading posts, so I just now read this news. I just wanted to say that I will keep you in my thoughts and prayers as well. I am so sorry that you have to go...
Hi Pete: I am so sorry that they denied you again! I truly believe they do this hoping that people will give up. Please do your best to hang in there. It will all be worth it in the end, but for now...
Hi Nurse2: I am so happy that your looooong wait for SSD is finally over! I hope that a few others here at HW get the same good news soon too! I'm sorry that you didn't get more relief from the...
Hi Skeye: I don't even know what to say, I am so sorry! I have every confidence that in the end, this will all be worth it and be just a horrible distant memory of what you had to go through to get...
Hi Dani: You will be missed! Please be careful to pace yourself so that you can hopefully enjoy yourself. Hang in there, Lorie...
Hi Karen: I'm sorry you are suffering so much. You most certainly do deserve the help your brother is giving you, you would do the same for him if the shoe was on the other foot! Please be kind to...
Hi SST: One thing I try to keep in mind with doctors is that they work for us. Without us as patients, they would not be able to put food on their tables. I know doctors like to act like we should be...
Hi Stephanie: In addition to pacing myself as Straydog suggested, I find that I have to adjust the way I do what I do, for example, I sit on a stool when I cook or do dishes, and on a step-stool to...
Hi Ms. Bunky: My 13 year old son has been suffering with PF in both feet his whole life. I have done a lot of research on it, and have taken him to several doctors/specialists, who really didn't do...