Welcome Butterfly ~ I am so sorry you have been so sick. It is miserable indeed. I am sure the not knowing makes it twice as bad. I think you will find some wonderful, understanding, caring...
Carmen, What a wonderfully kind thing you did for your friend. I am a firm believer in karma......send good things out into the world and you will get them back tri-fold. :-D I hope you feel better...
Hello Suzane ~ So sorry to hear your pain has been SO bad. :( I know all too well how the tears just flow ever so freely when your pain isn't controlled. I hope things start to look up for you and...
Hi Melissa ~ Stopping bye to wish you all the best and hope you feel better SOON! :-D You are in my heart and prayers Huns ~ (((((((((((((((((((((Melissa)))))))))))))))))))))))))))))) Huuugggsss!...
Hi Patsy, I personally used fentanyl patches for years and they worked very well for me......like all meds, our bodies become tolerant to them and as a result, I had to change meds. But I will say...
Hi Kimber, Thanks for the update on your surgery.......please keep us posted on your recovery and I'm sending lots of prayers your way ~ Huuugggggsss!...
Hello lostsoul ~ Welcome to the CP forum - so sorry to hear you are having back problems.....it can be such a nightmare! Please do contact your MD - asap. It is not a problem to take lightly or brush...
Hi Donna ~ Reading your post breaks my heart.......please know that many of us are here for YOU. :-) Please don't give up - I know it seems like things are piling up and you can see no end it...
Hello SE! So great to hear you are having decent days here and there.....I would venture to say you are on the road to recovery! Fantastic! I so understand what you mean about dreading the...
Hi Marcus ~ Welcome to the CP forum - you will meet lots of great folks here with numerous accounts of actual knowledge ~ I have carpal tunnel in both wrists and have had surgery on the right (it was...
Welcome Riccardo ~ So sorry pain has brought you to this forum - but great to learn more about you! :-) Your story is all to familiar......I too have had four unsuccesful fusions and still have...
Oh Donna....I am SO sorry for what you are going through.......your story rings home for me.....please do keep an eye open......and truly do everything you can do (the 'ole cya) to keep things close...
Hi Wheeler! Welcome - welcome - welcome to this fantastic forum FULL of the most caring, kind, compassionate people you will ever meet. :) I am sorry pain has brought you here ~ I look forward to...
Sending you loads of support and hugs kimber ~ thank you for keeping us updated.....wishing you all the best! (((((((kimber))))))) Hope you are having a tolerable-pain day! Huuuggggsss!...
I agree 110% with you Mike ~ being new here, I have been amazed at the kindness and helpfulness everyone has offered. :-) It has made my lonely life a MUCH brighter place to be. I really appreciate...
Wishing you a happy belated birthday tmjpain ~ hope you had a wonderful day! ((((((Suzanne)))))) Huuugggss!...
Privey - thanks for the update! :) I would like to send lots of HUGS to SE & MRS.E ~ ((((SE))))) (((((((MRSE))))))) I hope both of you have a much better night tonight! Huuugggssss!!!...
Dear Me ~ I agree with everyone on the urgency of calling and/or paging your doctor ~ it just sounds like a situation that needs to be dealt with NOW - not later. I am SO worried about you. I am...
Hi Potsie ~ I am sorry to hear you are suffering........have you tried Neurontin yet? I have been on it for over five years now - and other than the temporary weight gain, I have no complaints about...
Wow Bob ~ what a story! I'm so sorry pain has brought you here....but I would like to welcome you and look forward to learning more about you ~ it sounds like you know all to well what CP is and the...
Hi Stella ~ Great thread idea! :D) Thanks so much for posting! I am SO sorry to hear about your dog....I can't imagine such a loss.....my dogs are truly my sanity ~ This winter has been rough for...
Hi merrygirl ~ I am so sorry you are feeling rough and discouraged......I hope today finds you with tolerable pain and I'm sending you LOTS of hugs ((((((merrygirl)))))))))) and please know I am...
Hi Bob and welcome! I too am a new member and can tell you first hand that this group is simply the BEST! They will make you feel "right at home" and it helps so much to share your story with others...
Wishing you the very best on your echo........praying, praying, praying for great news! :) I have had an echo/per year for the past six years and suffer with cardiomyopathy. Do they have you on any...
It's always nice to know exactly what the problem is........I am sorry you are still sick from the test ~ take care of yourself, get lots of rest and I'm sending prayers and hugs your way for the...
Best of luck on your surgery Screaming Eagle ~ I look forward to reading Mrs. Eagle's updates. :) Most importantly TAKE CARE OF YOU, first and foremost. And I agree with you whole heartedly about...
Interesting.....great information, keep the faith ~ I am always hoping something new and life changing comes out for us CP'ers ~ wouldn't it be nice to take one pill daily? :) Love that idea! Hope...
I am so sorry you are having terrible pain.....with no meds.....that is horrible to suffer through. I am sending loads of hugs ((((((((kimber))))))))) your way! I know when I am having a bad CP day -...
Skye ~ I am SO, SO sorry you are having to go through this! :( I know how difficult it is to deal with CP - then top insurance nightmares on that and it's no wonder we all don't go completely...
Sal, I'm so sorry your CP has brought you here.......I too have bone pain which is treated with anti-inflammatories, steroids, and opiates. For me personally I think the combination of the three...
I wanted to thank everyone for their input and for sharing their experiences with me. I am officially switching to methadone today.......crossing my fingers and praying for some relief. All I ever...
Hi Todd and welcome! I was just reading your reply to another post and got so tickled about "living out in the sticks" and the difficulty with not driving ~ I can SO relate to you! Then you mentioned...
Hi Chronic ~ Welcome, welcome! Too bad it is due to CP. I too am about to have a Medtronic stimulator put in.....I go for my trial in two weeks. I did tons of research before deciding and came across...
Thanks straydog and Mike for your input ~ I am still up in the air if I'm happy about this switch.....but regardles my doc thinks it might help. I was nervous about getting off it at some...
Hi Kimber ~ Isn't it nice when everything start to come together? Best of luck with your scan....keep us posted! Hugggss!...
Forgot t add: I'm going over to the chat room for a bit........
Good afternoon fellow CP'ers ~ I just got off the phone with my PM doc. After four years of Fentanyl patches, he is now wanting to change me to Methadone? This is completely new med to me and what...
Hi Catahoula ~ Reading your story it hits home so closely. Why is it that all doctors look at us and treat us so poorly? For once, I wish they could live in our shoes for a 24 hour period and then...
Hi Misty ~ I'm just now finding my way around the HW forum......wanted to welcome a fellow "newbie" to the group! :D I am sorry we have to meet given the circumstances.....I look forward to getting...
What a wonderful, kind greeting! I already feel right at home here. I was able to find the most amazing information on Neurostimulation Therapy including a blog w/pics which answered 99% of my...
Hi Catz ~ Unbelievable!!!!! How could any doctor "overlook" such???? I am so sorry you have had to go through all this.....and even more sorry you have been in pain. :( I hope things turn around for...
Nasalady ~ I am currrently on Fentanyl patches and have been on them for over four years. For me personally - they help tremendously! They also provide continuous pain relief without any of the usual...
Whitebeard ~ I am so sorry to hear about all your troubles.....life certainly isn't easy. Not to mention having to deal with CP 24/7......if there is anything I can help you with, please let me...
I wanted to thank everyone who has replied to this post......I am finding this site to be SO useful and helpful! I am going for my trial implant in two weeks and am praying for some relief!...
Hi Mund ~ Welcome! I hate to hear you've been in pain for so long and at such a young age.....the "great" thing about CP is that is has NO age boundaries! ;) Let us know how you are doing ~...
Hi Catz4, I'm so sorry you have had such bad luck with PM docs ~ it's often hard to find one who actually understands! Please let us know how things turn out.......Huuuggggsss!...
Hi Nurse2, I too have been through multiple rounds of denial, appeal, denial, appeal and finally after 4 years...approved. (after two different judges!) I felt like I was on a merry-go-round of...
Hi Scarred, I too can understand your frustration and anger with the lack of sleep CP patients suffer with. I honestly don't think anyone can understand until they have been in our shoes. I hope you...
Hi Hydrangea......I'm a newbie to the group, but I wanted to send you my thoughts and prayers.....take care of YOU first and foremost. I look forward to hearing your story....
Hi Mike, I wanted to thank you for the kind welcome into the group.......being new to everyone, I wanted to ask if you have been tested for diabetes? Just a thought as to your possible swollen leg. I...