Boy I just don't understand what is happening to my skin. My butterfly rash now spreads all over my cheeks and become beet red and my cheeks swell and feel hot then on top of that it gets really...
Boy o boy do my feet hurt. They are okay as long as I am not on them. Seriously, the tops and bottoms of my feet hurt like the devil. I see my rheumy Friday and sure hope he can help me. I am so so...
Hi everyone and Happy New Year. I have been experiencing leg and foot problems. The muscles, ligaments, etc of the leg are making it extremely hard to move around. In addition to this I have a lot of...
I find these jerks occur more when I am tired. Lately I am tired all the time. It is most embarrasing when in a room of people and all of a sudden you have a big jerk. In the morning while having my...
Hi again, I am experiencing body jerks. If I have a drink in my hand my body jerks and the drink I am holding, coffee, water, etc. goes all over me and my computer. Do any of you experience this type...
Once you have been diagnosed, and put on meds and all is evened out, how often should you see your rheumatologist....
Yes, I just had my Endocronoligst do a series of blood work. Everything checked out. I really did not change anything I ate but the weight just piled on. My mother and grandmother's weight was upl...
I am on 5mg of prednisone now and still have several excessive sweating events a day. I don't understand all of this. I am 69 and my mind just doesn't understand the way it used to. Why can't I just...
My Dr. Encro. is checking to see if prednisone has compromised my adrenal glands. Has anybody else had this problem. I have excessive sweating....
I am trying to find out if the arms, hands and legs jerks is connected to Lupus. I don't know if I should contact my neurologist or not. Just checking, guys. Can you post and let me know if you all...
Funny you should mention this. I get the hand and arm jerks mostly in the morning. Sometimes I can be sitting in the family room watching the news and holding my cup of coffee and then my hand or arm...
Joy I think outside of you losing weight on prednisone, we have the same bodies. I can never tell when my head sweats are going to start but once they do they do with a vengeance. Twinks...
I was diagnosed for Lupus in May. I was at about 162. Now with the all popular prednisone I am at 185. I am only taking 7.5 of prednisone and going to be able to drop the 2.5 in two weeks. I look...
Well, the patch is not working. Went to a women's brunch today and started with a dripping head and had to sit and wipe my face from the sweat and sit and fan myself all the way through it. It is...
I sure hear you. My lupus is jumping all over my body. It is driving me crazy. Right now it is attacking my left foot and big toe and has been for several weeks, plus I have terrible head sweating....
My husband went through a season in his life with extreme itching, (he does not have lupus) and the doctor put him on atarax and it really worked. When I have too much pain medication I start to itch...
Hi Jennifer 8, I was just diagnosed last May with Lupus and at first was glad that I now had a name for everything my body was experiencing. But now that the Dr. has put me on prednisone and only...
rHi everyone, I went to my primary care doctor to discuss my heavy sweating all the time. I should say heavy head sweating. Any way he gave me a prescription for Clonidine Patch which is applied once...
Sounds like another issue from Lupus we have to deal with. I had no idea that all of this was related to Lupus. I guess by the time this goes away there will be another issue to deal with. I so...
Here I am again. For the last 2 weeks my toes hurt and just walking on my feet in general is very painful. If I am on my feet for very long they start to swell and then the pain is all over. Is this...
Thank you all for your replies. It helps to know you are not alone in what you are going through. My emotions are going crazy for me as well and I am lashing out at my husband as he says something...
Well talk about a roller coaster. When I was diagnosed with LUPUS last May my doctor put me on Hydroxychloroquine and prednisone 10 mg. To date I have gained 20 pounds at which point I started taking...
[4] Hello everyone, Haven't logged in a while but wanted to know more about Lupus. I keep reading the logs but have not found exactly what I am looking for. I was diagnosed with Lupus in May and was...
Hello, I am new to Lupus as well. Pardon me for asking this question but you say you can feel your liver, is it by slouching? I have had some vague issues with this and last week it was so bad I...
[i][2] I woke up this morning with stabbing pain under my breastbone and around areas of that even. The pain is so sharp I don't know what it can be. I don't see my Rhuemy until Sept. Is this Lupus...
[2] Hi, I am a new lupus patient. I have a question. The other day my right foot just started hurting like I had sprained my ankle, when in fact, I had not. It hurts a lot and I an wondering if this...
Excuse me for asking. But what is lupus panniculiti. I have bumps on both of my forearms but I think that is because of the sun exposure. Thank you and I await any replies. Twinks...
I have always had fine hair and my husband calls it flyfuzz. It does seem to be getting a little thinner. And I am vain enough to not want my hair ruined under a hat after I spend a half hour making...
You probably have hair that looks great all the time. Mine is short and has a lot of product in it just to look right and then putting a hat on top of it, well then I would have to go back and re-do...
Sounds like a really fun hat. That is the kind I am going to look for. Do you wear it every time you go out? Twinks...
I am so newly diagnosed it's so hard to learn all the Lupus encompasses. Right now my head sweating is so severe that it is embarrasing and very hard to be around people when it starts and I never...
No, I am not running a fever. It startes at the top of my head and progresses downward. It drips down more so on my right side of the face down and then just a little bit on the left. The right side...
I have several episodes a day of severe head and dripping down my face and neck sweating. It will usually last about 30-45 minutes. It happens in church, out eating dinner, it does not seem to...
Hello I am new to this particular forum. I was just diagnosed with Lupus. I had a 2 level fusion in L4, L5, SI. I have been in chronic pain ever since. I have had a round house of things that I have...
Thank you all for responding. I have been on Prozac for years and about 8 months ago added Wellbutrin. After getting off Methadone I felt great and was just taking Norco along with Neurontin and...
Hi everyone and Merry Christmas, I haven't been on in a while but I do have a question. After I stopped taking Methadone, I came out of a deep depression and felt wonderful. I was on Norco and still...
I forgot another thing. I am on and have been for years Prozac and now Wellbutrin with it and my pain dr just added Elavil at bedtime . He says the Elavill is also for nerve pain....
Forgot to tell what I was feeling that I think might be withdrawals. I feel unsociable, don't want to go out, don't want to get out of bed, feeling just not wanting to participate in life. I got off...
Thank you for all your replies. I guess I wasn't really clear with my first post. My doctor never removed Norco from my BT pain meds. The Neuron-tin worked great for my nerve pain, which is...
[b][i] Hello, I haven't posted for a while but I have a question regarding long term use of pain meds. I believe I am going through withdrawals with my pain meds. I haven't changed anything in my...
I had the neu sim planted in my L4,L5, SI and it did not work well at all for me. I would NEVER use it again. Degenerated discs, 2-Level fusion, failed.Left with nerve damage to my right foot and...
Well I got off the Lyrica. I could not take being comatose all day with the responsibilities of my husband, my grown son and his 12 year old autistic daughter living with us. I took my first dose of...
Thank you everyone for all the info. I went back to bed this am waiting a day and a half for the pain doc to call and she did while I was in bed and my husband caught the call and told her to call...
Hello, its been a while since I have posted. I have just gone off Methadone after using it since 2006 for a back surgery that I have 2 rods and 6 screws and pain pain pain. I think I have tried just...
I have had the neurostimulator implanted in my back before my surgery and it really did not help at all. In fact, during my fusion surgery I had them remove it completely. It just creates a different...
I had started going to Curves and because of the pain I get in my legs from nerve damage it just makes my legs hurt worse, so I guess I could go just to do some stretching exercising for the back. I...
Hello everyone, I have a question. In September of 2006 I have a fusion L4, L5 and SI and have had to be on pain meds since it also created nerve damage in my right leg from the knee down where it is...
Oh Dani you are such a sweet sweet soul. Thank you for your friendship. I wish we lived lose to each other because I would love to have a close friend like you who understands me. Most of my friends...
I think what has just dawned on me on top of the failed back surgery I believe I have developed fibromyalgia. I have so many aches in my shoulders and back and neck that I never did before, then I...
Thank you for the RFA information. I am having an epidural on the 23 and am going to ask about it. I will speak to my pain management doctor on the 22 when I see him again. Thank you for being so...