I just got a call from a doctor I have been seeing for 25 years, she told me that all the prescriptions that she writes for me will no longer be covered by Medcaid. They will cover 14 more days of...
Hi All, So sorry to not follow-up I had a family emergency and just getting computer access back. Thanks opugirl for putting up the link. I'll be sure to back things up with links, my comprehension...
Hi, I have taken Mepron. It should be taken with a fat to increase absorption. I did not have a problem with it, but I know others that have had a tough time. I have the same kind of leg pain you are...
I have this sometimes. A massage therapist told me to hang my head off the bed, and move it left to right gently. No I'm not making this up! When it gets really bad an OTC decongestant or benadryl...
Hi Everyone, Last week I read that the filaments that protrude from the skin lesions in morgellons has been identified as borrelia burgdoferi. It was cited in a reputable open access publication....
Good Morning, I tested positive for band 41 only, but my babesia test came back positive. The positive babesia supported at least a clinical diagnosis of lyme. When retested about 4 months after oral...
A friend of mine that has had lyme for a long time told me to not let the doctor do a spinal tap. In the past it has been used against patients. If it comes back negative insurance companies will not...
I read that blurry vision is due to an increase in cytokine production. Mine comes and goes, I've noticed that after I finish a round of I.V. antibiotics it is worse. After drinking lots of lemon...
Justme, I am so glad that your sister is with you and helping you. I remember you mentioning her before, it is great to have someone that is so understanding. I had hoped that we didn't hear from you...
Skin brushing has helped me with neuropathy that I have in my shoulders and neck. Sometimes I also have itching all over my body and I use the brush to help. When I tore my rotator cuff it helped the...
I have had a good experience with it. In fact a couple days after I ran out of it I felt some brain fog come back. I also give myself B-12 shots once a week. Hope it works for you! Anna...
Diane, Thanks for your kind response. Hard sometimes to figure out parents. I hope I didn't put a damper on your positive thread. I haven't posted on this forum a lot, but I really feel like there...
Hi, It is one of the body's immune responses to inflammation. I did read an article awhile ago that said theaflavin which is a black tea should help lower the levels. Curcumin is a spice that also...
Hi Diane, I found that Benadryl helps. I noticed it when I took some for itching. Some people try Neurotin, which can also help lessen neuropathy. It didn't work well for me but others have been...
Hi Everyone, Believe it or not the only person that ever said something that really made me feel better was my plumber. He said it must be so hard for you to be so sick and a single mom. You are...
Hi, Welcome to the Healing Well family. You do have many symptoms of lyme disease and some of the co-infections that come with it. One of the hallmarks is variety of symptoms that wax and wane and...
Hi! I wanted to thank you for your posts in response to my anger. It was not directed at you and I apologize for taking my frustration out on you. It was not fair, and you are very generous to come...
" I am very concerned by the rate of Lyme in our country, and especially in Connecticut. For this reason, I have introduced legislation to help develop better tools for diagnosing and reporting Lyme,...
I felt it was just a place to start, just for recognition of lyme and other tic-borne illnesses. I don't just rely on antibiotics I do everything I can so I don't die before my son is grown up. I...
Hi Lovehealth, I just had the same problem! First it was general pain from the teeth on the top of my mouth. Three or four teeth were involved and I had general jaw pain. Then it shifted to one tooth...
Dear Traveler, First off I hope you are feeling well. Thank you for your response. I will begin to work on a letter. I will also see about the voting record from last year. I think one of the...
Sorry to be confusing I get so upset. Cat53 I know that people wanted to show support for the ILADS organization by having lyme advocates at the conference to gain more awareness that this is...
I have had problems with my cycle since I have had lyme disease. When I do get my period the pain is terrible. I never had any complaints before. Anna...
I'm sure you know that I totally agree with everything you have written. Unfortunately there is another vaccine that is in a Phase 3 trial. Many believe this is why new guidelines and legislation has...
I haven't posted in a while as I feel quite discouraged. I keep reading about people looking for help and that are very sick. My heart goes out to everyone, including people who are relapsing and...
Hi, Welcome to our forum, there are many knowledgeable people here to help. Yes your daughter's symptoms do fit for lyme disease, but also for other problems. My most unique and severe symptoms at...
I found the deer tic on the back of my knee with the EM It was July 19, 2007 didn't have insurance went to urgent care got my 10 days of doxy at 200 mg a day and as they say the rest is history.. It...
Hi Wryter, I am so sorry to hear of all the troubles you are having from anxiety. I think you feeling a little loopy is possibly an indication that you don't need the regular dose. I have some...
Hi Don! Great to see your still around. I first read about Dr. McDonald in the book "Cure Unknown" and then didn't come across any other information. When I started reading Lymenet Europe I realized...
Hi! I did the I.V. rocephin but at the time I was not working. I do recall thinking that it wasn't to bad I never felt bad enough to lay down. I had much worse of a time on a small dose of mino. Good...
Hi! I do understand how debilitating the depression from lyme is. I was diagnosed with depression, anxiety and panic attacks by the time I was 19 years old. When I got lyme disease I was already on...
Hi! I'm really sorry to hear about all of your troubles, it seems they are not fairly distributed sometimes and one family gets so many. I worked as a therapist for children, the organization was...
Hi, First of all so sorry you are going thru all of this. It is really hard at the beginning but once you find a good doctor and start treatment you will feel better. I live in CT. and I am on...
Tom, That sounds sooo good, I don't have a hammock but I do have a recliner!! Sorry got to go to the store now.. I'll let you know how it works! Anna...
Traveler, I found this newly published study and thought you might be interested: " At baseline, both gastrointestinal (UC) and non-gastrointestinal (CFS and psoriasis) patients had significantly...
You always help so many others with your posts, it is really wonderful! But, how are you doing? I know you had some difficulties with getting of the antibiotics and these things really are stressful....
So sorry to hear of your accident, but I am so glad you are o.k. It does tend to throw your body off and create tons of anxiety, at least for me. Spend extra time resting if you can. I can tell you...
That's a great question! My LLMD who I see once a month asks me to tell him my top 5 worse symptoms. This does seem to help me, as I can't remember any thing!! Each day seems so long and every day...
Hi! I am sorry to hear you are having a difficult time. I just want to give an opinion, just from my personal experience- if I understand correctly did your doctor prescribe all 4 drugs to be pulsed...
I thought it was excellent. It only took 5 minutes a day which I didn't appreciate at the time. Now I spend 3 hours on a I.V. I had really noticeable improvements and my doctor thinks it is great....
My LLMD rec. this for me, he described it as immune-enhancing. We didn't have time to discuss it much. He prescribed 4.5 mg. at 9:00 p.m. I did not last long because of the nightmares and the...
Wow! You have so much going on and stress makes things so much worse. I always would underestimate how much an impact it had. Keep that in mind because it really does matter. I am so sorry to hear...
Good morning! Thank you guys for all the great suggestions and quick answers. I am trying all of the above. It is so great to have people help, my brain sometimes can't manage all the details when I...
I am sorry to hear of all your issues with pain and the level of stress you must deal with on a day to day basis. This suggestion may be "out of the ballpark" but have you considered any of the...
Traveler, I can try to help also, if you want to e-mail that is fine. I don't live nearby but would like to help if I can. Let me know. Thanks...
Hi, I haven't seen you post and I know you were not feeling well. I hope you are just concentrating on healing and using your energy to get well. If you feel up to it let us know how you are. I'll be...
Hi All, I have been have difficulties with yeast. I stopped my oral antibiotics, increased probiotics, more yogurt and kefir, taking Diflcun 100mg., less carbs, no sugar or gluten, no diary. This...
Welcome, I just wanted to say a quick hello! I am glad you found this site, it is like "home base" for me. I check in everyday and always feel better to know the people here understand and are quite...
I was just wondering how you are doing.. I am glad you posted. It is great to hear of lyme exposure in other parts of the country. I feel I can't trust doctors either, other family medical problems...
Thank you Razzle! This is also the brand I take. By the way have you been getting all that you need. I remembered you were having difficulties getting trace minerals and such. I have heard scary...