Hope, here is another good link, from just over a year ago: http://www.time.com/time/specials/packages/article/0,28804,2053382_2055269_2055261,00.html I've been struggling with my CRPS for four and a...
Mindy, are you kidding? I couldn't dream of getting rid of it! That shawl is far to special. It spends most of the time draped over the back of the chair in my room (my Tortishell kitty likes to curl...
Hoping to get connected to the FB group. It's easy to find me on FB. Will try and do a better job staying in touch with everyone from now on. Mindy, got to use the wrap for awhile, however it's been...
Diane, I'm not surprised your doc had you lie. I'd like to think he was thinking of the fact that some help is better then no help, and insurance companies will not authorize/pay for a SCSU unless...
I want to start by saying I'm sorry. I let my depression get a strangle hold on me. Even with my meds I couldn't figure out why I was getting up anymore. I still can't. The local shrink and I don't...
Hi PoohBear... I'm in the same boat. I had my stimulator implanted back in May, and had it turned on a few weeks later. Since then it's gone down hill. Alot of what i have to say will be reposted in...
Hi, Jeanette, I'm Kristi, better known as Rhaevin. I'm so glad you found this site. Myself I've been gone for many months, but realize this place is to important to my mental health, regardless it's...
I know I've been gone for a long time; since they were sending me home from the hospital back on May 13th. May 23rd has come and gone, and my unit is now activated; I'm still getting used to it. The...
Hang in there, hon. It'll be over soon. You're strong, and you have Jerome... as well as all of us. *hugs*...
Hello my family. I get to go home this morning; finally have the pain under control. Kinda, sorta. For starters I was on time to the hospital; 6am, for a 7:30am surgery. But the neurologist that was...
I actually have to take NorQD; which is a progesterone based birth control. I can't take estrogen based birth control, as it will slowly but surely kill me. I sincerely doubt I'll end up on "hormone...
.... and I'm terrified. /community/emoticons/cry.gif I have done everything I can to prepare for the worst; I'm a firm believer in thwarting "Murphy's Law". And at this point in time all I can do is...
Rena, what straydog said is correct; CRPSpatient just had (I believe) her 5th revision to her unit over a week ago. Off the top of my head I do not recall how many years she's had hers now. One of...
Kat, you really want to talk to CRPSpatient, as she just went in for a revision on her unit over a week ago. I would love to help you, as I too had a successful trial back in February, however my...
FB account wiped out. Emails not delivering.... major red flags in my book. I mean I understand coming and going from here. Heavens knows I'm not as active as I used to be, and we all need a break...
Have any of her close friends or the Mods heard anything? Anyone? Please?...
Zabumafu, I want to howl in grief and rage; I am pained as both a mother, and as someone who suffers from chronic pain every time I hear of someone who has had to suffer from one close to them not...
*gentle hugs and cuddles* Take care my dear friend. I'm thinking of you. Always....
Dearest Laura, I'm glad to hear you're going home; sometimes it's easier to heal and relax in our own enviroment. I know on bad pain days I just want to be "home". Either in my room, or on the couch,...
Kat1611, I am confused. Could you please clarify? I thought TENs units were only external. What you describe sounds like a Spinal or Neurostimulator, also refered to as an SCS unit. I'm having mine...
Loretta, I have a TENs unit. It's about the same size as my iPhone, though about three times as thick and runs off a 9v battery. I have two sets of leads, with replaceable pads, though on average I...
Thank you Venus. At least with the yard work we all worked together. The last ton was finally delivered yesterday. More shoveling, packing, and smoothing. Then it was yard clean up as well -- when...
Hang in there, dearest, remember you're strong, you can beat this! Keep thinking positively, don't give in, not one inch. *gentle hugs* I'm here thinking of you and praying for you. Make sure those...
Sore, you're not alone. I find about mid-day I am so exhausted and in so much pain. I look at what I've done for my morning and feel I have accomplished little or nothing. In truth I know I've done...
Laura, Venus, I'll have to ask my pain doctor about that. I know the last time I was in the DMV I was told I didn't qualify for the handicap tag or plate due to the fact that my disability was only...
Hi Regina, I had a successul trial back in February, and go in for my permanet implant surgery on May 11th. Do you have any idea where they put your leads? Any idea why the first one stopped working?...
Suzane, you're so right to want to cry. I am an adult, I can understand why my body feels the way it does. An adult can undestand and rationalize. And yet sometimes I think a younger brain is more...
Oh NiNi, I know just how you feel! I was with a man for over three years when I got injured. He was with me infact the day it happened. He went with me to many of my appointments, watched me struggle...
Congrats, White Beard!! Definately a "Good" Friday! Well as far as warmer and near an Air Force base I'd say Nellis AFB over in Las Vegas, Nevada on the NE side of town. Definately gets warm out here...
Thank you, everyone, for reminding me I'm not alone in this issue at times. Unfortunately while I must adapt myself to my new life, life doesn't adapt to me. The wind was even worse yesterday so we...
Dearest Laura, Hoping your pain is finally starting to subside; you make those nurses keep you comfortable. Glad your doctor is keeping an eye on you. Hopefully he's right about your leg, and with...
So my family decided this year we would put an above ground pool up, one of a nice size that was 16' in diameter. However we never landscaped our back yard, and it's uneven rock and hard dirt. For...
Yay!! 'bout time your perscription finally got to you! Just be careful re-introducing the stuff into your system now that you've gone through withdrawls. Finally though, manageable pain levels again!...
Congrats, Michael!!! A great addition to our moderators here. I'm glad you volunteered for the job. I'm very happy for you. /community/emoticons/smilewinkgrin.gif ...
Joel, as a fellow equestrian do you have any sort of mounting block (either real or makeshift) that you can use? I know if you're a proud cowboy, like me, you don't want to reduce yourself to such...
I understand Laura was going to try and take a Netbook with her, so that hopefully she could update when she was able to. Here's to hoping for steady hands with the surgeon, a swift surgery with no...
Hi Venus, Yes, as Laura said, and I to can confirm it, it does spread. Mine started in my right hand/wrist, and in 3+ years has sense spread up to my shoulder, a bit into my neck, my scapula...
I will be here waiting for you, dear friend. *gentle hugs* You'll be just fine....
Venus, I found this this morning while doing some research for my neighbor who was recently diagnosed with Lupus. You mentioned how hard it was for your family to understand your pain. I think you...
Blondie, I'm so sorry you're having to deal with this, and an insensitive doctor to boot. Unfortunately narcotic abuse has been a big thing for a long while now no matter where you live. Like MrsM...
Venus, My son is boarder line ADHD, so I understand being your child's advocate. I also understand the level of care your precious girl must require too, due to activity level. Oddly the focus of...
Thought I'd add a belated two cents worth. I have learned through the years that many things affect libido. While none of the medication I have taken (Vicoden, Loritab, Oxycodone) have never affected...
Venus, just as Laura said, welcome to our little family. I too have CRPS as you may have seen from my earlier post; three and a half years now and you can see how much it's robbed me of. I too have a...
Nana, I've dealt with Medicaid before. Hopefully your doctor will work with you and give you the referals you need; some doctors get so funny about handing patients off to someone else. But given a...
Patsy, to add to what Laura said. Yes, they do move, but they make new leads now; paddle leads. Unlike the normal leads which look like thin cables not much thicker then a toothpick (my doctor was...
Laura, between my depression as I get used to the new medication, and my regular flares up that my hand is frequently a victim of... which makes typing extremely painful, I haven't even visited to...
Hi Joel, and welcome to Healing Well. If you go to the main page there should be a help topic, and if not, there is a help button up at the top. I'm sure one of the Moderator's can give you way...
Nana, another way to check if it's CRPS or Fibro is the fact that one is localized (CRPS) and the other is wide spread. Usually CRPS results from an injury; say twisting your knee while hiking, or...
Patsy, as Laura already stated, yes CRPS/RSD is an evil beast, and yes it can spread. I've dealt with mine now for three and a half years; it started in my right wrist, and has since spread to...
Laura, I'm glad they're getting you in right away. I know how much you need this, but I know through our conversations how scared you are. It becomes so hard to focus on the positive. But just think...