No anti depressants right now, with the flares of my lupus which increased my seizure activity the doctors weren't comfortable doing any further medication. My counselor is frustrated at this point...
I've been away from the forum for quite some time. My anxiety and health has been so bad I feel so helpless. I'm 33 years old and I'm a shut in. I've only left the home for doctors appointments with...
you all have no idea how much I needed those kind words and your stories and encouragement. brought tears to my eyes thank you so very much...
this has happened to me but I have ibd and have since I was a child. My dr said that this can be from our bodies holding onto fat that is is unable to digest for one reason or another and then...
the valium helped me most. I seriously hope you start feeling better God bless...
when I used fet patches I actually used my horses vet wraps. they kept them in place its big surgical type tape in pretty colors if you wish....
I have tm. it is miserable. I hope you find relief. I used to get the constant burning pain but now am back to the stabbing take your breath away out of nowhere pain that lingers. valium actually...
Pony I noticed this was your first post and wanted to say hello. the recommendation for an allergy test Betsey mentioned is really worth looking into. I am allergic to a host of plastics latex and...
i really hated taking klonopin it just flat out made me feel gross all of the time. i say it took 2 weeks to not feel as bad but then after a couple months just crummy all around. hunger....hmmm for...
welcome to the forum. I have the eye problem. i would probably go and do a doctors visit just because this is sounding like just to be on the safe side you should get a check up. I know that vitamin...
my anxiety issues started with my inflammatory bowel disease. always worrying about if I get sick here what would I do. it is a nasty cycle to be on. can you keep a journal about your health? that...
way to go for shopping with this anxiety anyways. just focus only on the things you can change (talking also to myself here) that dread or that black cloud floating around waiting to storm when we...
yoga before bed instead of tv or computer. I actually do the yoga video on my bed especially when I am home alone. the yoga for relaxation dvd I bought on amazon for like 9$. I am very prone to night...
I am taking norco that 10mg hydrocodone with 325 acetaminiphin 12 pills a day. I am going to do the switch back to 15mg oxycodone but I wasn't liking the way I felt taking it. kind of still hurting...
I am having the same issue. my gi doc told me that when some of us flare all of our fibrous food cannot get through the bowel due to the swelling from inflamation so basically all that can pass is...
this is happening to me so badly I won't go anywhere but in town and never on the freeway. I am sorry you are feeling this too and am ashamed to say I am glad I am not alone with this happening to...
I have chronic abdo pain. I am not sure if it mean it is going further up the bowel for you. mine has always been full bowel and the pain follows the entire small and large intestine. the same thing...
thats great that you had a break through so to speak at the mayo clinic. maybe I will take a trip there the next time my dr recommends my colon come out. what pain meds? ib profin reduces inflamation...
I notice after browsing the site regularly that not many of the uc posters mention taking pain medications in the signature lines. I am just wondering because I do and have chronic pain. I know that...
this is not good. the long cough with the pain you are describing can be a few things, pneumonia, pleurisy, or bronchitis. Look up pleurisy to see if that is what you are feeling. to be truthful you...
thanks so much snow bunny if I remember from 10yrs ago I don't think they had the long lasting oxy pills then, the ones I were taking were 15mg and they hurt my stomach with a sudden rush of nausea...
faith I have trigeminal neuralgia is that what you are dealing with? it is out of no where excrutiating pain in half of my face to the point of madness. I hope you feel better, I know living in...
I hope you are feeling better in that heat! I like white beard's suggestion of taping the patch on. Sounds like it is time to switch your pain management drugs, once they stop working it doesn't get...
"Humira injection and weekly methotrexate injection" those drugs are no fun but what is even worse in my opinion is the steroids. They cause so much damage in the long term I would be more concerned...
it is that dreaded time for me where the pain meds have completely quit working and I need to make a switch. I have been doing the 12 a day norco 10/325 and valium (rectal valium actually how...
I have UC/crohns/colitis to be exact but I have no liver involvement like you do. I am actually very surprised they prescribed any pain meds for you with liver involvment at all. I take norco...
is it low very low in your hip? kidneys are more mid back then we realize. when I have a flare (right now) my left hip/back becomes unbearable from the swelling and the Ankylosing spondylitis. my dr...
did not help me infact really hurt me. my ulcers cannot do seeds even if they are ground. flax oil is ok but I have much greater success taking raw coconut oil and fish oil. lots of people like flax...
your body knows when it is time to come off. from your post it sounds to me like your body is ready. I will not do steroids again orally only in enema form but I haven't been in remission ever in the...
just please all be careful when taking activated charcoal with your other meds. do not take them with them or the meds will become useless. activate charcoal can be a lifesaver, litterally, it is...
I just left the hospital today from a large bowel pseudo obstruction from swelling shut, scar tissue etc. I quit using my pentasa enema's and had my naturopath meet me at the er where she...
I am a fan of probiotics at the first sign and sweat pants. haha seriously if that doesnt work gas ex wiorks great doesnt interact with any of my meds and helps. I know everyone is saying the gas...
not sure if this helps but I started rapidly gaining weight and having panic attacks with no reason to be found (which is pretty hard to do when you rarely eat and spend all day in the bathroom) my...
This may be awful advice but it is what I do. I refuse to let them cut me. I am not scared of surgery I am scared of the healing since we have already damaged upset intestines. My friend finally...
sucrafalate helped me with this. I had a left over giant ulcer in there even when the flare was going down. maybe check with your doc and see if that can help you or if you still have an ulcer in...
being new to the disease is a bummer. you are going to have to find out what you can and cannot eat the hardway. for most of us experience is key. make sure that you have a journal going of all that...
it gets so old doesnt it. my meds keep me able to get out of bed somedays and able to be a mother. they help me salavge what is basically a new life one with pain but I am still living it. funny how...
I just came off of a 97 day flare up I have been fine for about 3 weeks. I just started getting my appetite back and my husband took us out to eat last night and I have food poisoning. Any tips that...
that upper back pain is awful. I know it when it siezes up it takes forever to settle it down. my doctor says once it starts to seize and spasm it can take months to get it to settle down. here is my...
yes! my knees get so fat before a flare the inflamation runs wild. it is definately a sign of an oncoming flare. I have to go to the rheumatologist with any of the ibd you run a huge risk of...
pump up on the vitamins and water, stretch every morning even if you are feeling so sluggish you dont want to move and get some fresh air even if it means just sitting on the front porch however a...
I didnt quit taking them because I have bad allergies and they help with my nausea but I do have the ability to not take them and have no issues. I never heard of the bad itching coming off of them...
i take 185 hydrocodone a month...well thats what im prescribed the norco 10/325 i only take them as needed, they are perfectly safe and ok to take with uc. like all otc dont take over 4000mg of...
I am sure you could probably go on disability. is your colitis caused by medication you are taking/ I know there are types of colitis caused by stress, chemo drugs and others that do not cause...
nope havent done it and I am not sure I would. I am getting tired of all of the hopes they dangle in front of us that never work out. I dont even bother with my remicaid anymore which was supposed to...
I am in western wa it has been raining since october haha so with my ibd I take mega doses of vitamin d. adding coconut oil to my diet helped my guts better absorb the vitamins I take. good info...
I fonally got rid of my cystic acne I have had for the last 10 years. with my pancolitis I couldnt keep using the tetracycline all the time or any topical sulphas but mine were out of hand. I have a...
what a great idea! I think I am going to copy you! after a 97 day flare I just finished I really could have used one I was getting very low in my thoughts trying to get through the pain. I would say...
I hope you feel better. coconut oil helps me slip on foods that would normally make me ill. it is great for my pancolitis maybe if you need to sneak something filled with fructose it will help you...
you sound like you are getting better. does blood out of ones rectum feel like you are getting better ofcourse not but the solid stool is about the best news you can get. I hope the blood subsides I...