I had my stimulator implant surgery Tuesday, 1 March, unfortunately I ended up with pneumonia and was admitted to the hospital on Monday. Can't seem to kick it and feeling worse and worse every day....
Surgery went OK, I did have some side effects from the DDAVP but not too bad. I ended up with a swollen red face but it went away in about 12 hours. I was at home until Monday morning and then was...
I really don't have any advice to help you in general just that I understand where you are coming from when it comes to knowing something isnt exactly right but Drs just ignore you or pass you along....
CRPS was what came to my mind when I read your first post. It's a nasty unpredictable DX, speaking from my own experience with CRPS full body involvement. It's hard to find a dr that is experienced...
Sunny, You sure do have a lot on your plate. Are you seen by a physiatrist? That would be someone that would look at things a bit more comprehensively. Also if you have bludging disks from C3-6 that...
Thank you! That gives be a bit of relief. I am typically very susceptible to side effects so the thought of this is giving me second thoughts about treating prior. The other option is to treat during...
The normal starting dose for the patches for someone who has never been on them is to apply them every 72 hours. A good percentage of people end up needing them every 48 hours but not all, I can only...
When I compare my ACDF to my lumbar fusion I can tell you the cervical was a piece of cake. My surgery was done about 7 days after a massive herniation from falling on ice. He wanted to do it the...
I had an a occipital stimulator trial last November and during the procedure had excessive bleeding, a 30 minute procedure took four hours to stop the bleeding. When the trial was removed in the...
Seems like it is just like the monitoring portion of a pump. I may need to set her up with instructions for meals, testing and monitoring, it's a lot of a 19 year old new mother to deal with. I know...
I was on Fentora successfully for years, changed insurance and Bamm, no more. FDA says only cancer qualifies so I had to switch to something that didn't work nearly as well. No luck fighting it for...
Thank you Lanie! She is about 110lbs but hasn't really had any unexplained recent weight changes. She had a baby about 4 months ago and is just a little bit above pre pregnacy weight. While pregnant...
My 19 year old DIL (to be) has gone to the emergency room several times in the last month for feeling "out of it" and having intense stomach pain. They always discharged her saying that it was...
Eat2bwell, I have had unexplained pain, headaches, muscle weakness since childhood. My parents took me to tons of specialists. I remember them frequently talking about JRA, MS, fibro, CFS, lyme...
I dont need any referrals, its the actual Drs at JH that wont make the appointment. I have considered calling around to more local MS drs to make an appt. rather than waiting till the end of December...
My neuro was referring me to a MS specialist at JH but they feel my symptoms are to widespread so they wont make an appt and want me to see one of their general neuros first. My neuro did mention the...
Eat2bwell, my muscle spasms and weakness in my torso are so intense that I can only stay unsupported for about 5-10 minutes at a time, it is really ridiculous. I have been tested for Lyme several...
My left ankle/foot reflexes are absent, right foot as well as both knee reflexes are decreased too. Those are pretty consistant. Upper extremity reflexes seem to vary....
Sorry Gretchen, I missed this response coming in. I was in the hospital for 7 days with a shingles outbreak. Had IV antivirals and pain meds. It was horrible. After I started with a haorrible...
I do have an RA dx as well as fibro and Raynauds. I am currently on dmards, mtx, pain and nerve meds but still struggeling. The reason they are considering the MS dx is that the weakness and vision...
Thank you Gretchen, I should have worded that better. I have symtoms at all times, but it is sporadic of where things are more predominant. Sometimes the right leg is more than the left, sometimes...
Mercry&Grace, yes it does. I cant have an MRI due to my SCS. I am working on that though. In the next 12-18 months all 3 stim companies are coming out with a new full body unit with paddle leads! I...
My neurologist sent me for an EMG to rule more things out, she was suspecting MS. The EMG was mostly normal, with some slowing in nerve/muscle response of the feet. The report said I displayed poor...
So I had my driving eval and have issues with weakness and reaction time, I am in the process of going for training and adapted hand controls. So the neuro that thought I had MS due to diffuse pain,...
So I had my CE last friday and SSD got the report today. Because they didnt request the info from the person I saw before (who is a psychologist/counselor) they now need to request those records....
Mercy&Grace, I am fine with the CE with their psych dr., I just didnt understand why my PCP and counselor notes were not sufficient. Thank you for explaining that....
My 6 year old grandson loads and unloads most of the dishwasher for me. I tell him where to put things avd he loves filling the detergent containers. He actually looks forward to his little chores...
So glad you are home and settleing in! Just take it easy and dont do to much. Keep on top of the meds so you dont get overwhelmed with pain. Each day will get better and better. I felt great after my...
Poplargrove, there is a huge debate if I can have a head MRI or not. The actual clinician manual for my model number states in several places that I CAN have a head only scan. The rep and dr say no...
Thank you everyone. I do worry about my drs notes, sometimes they are good, others are one sentence blurbs. The physiatrist says he sees no way I can be denied, although being 40 I would be amazed if...
Sammywalker, I am curious too, as Vickie asked? I reviewed what you said you have been taking, but am not sure what you are trying to come off of. It looks like in 2 1/2 weeks you took oxy one day....
I hate flying, I now get the special pat down due to my spinal cord stim., what fun that is! In FL I have even needed to show a TSA agent my scar, of course they allow that behind a screen. Because I...
So so sorry to hear that you are hurting so much. Posterior surgeries are a lot tougher than anterior surgeries, I say that from my personal experience. It seems EVERY surgery or hospitalization I...
Thank you all for the replies and support. I will try and answer some of the questions in general. I went to school to be an occupational therapist and have been working for over a decade in that...
That sounds like acute or subacute rehab then. Its really all a billing thing. If someone can tolorate 3 hours a day of rehab they can go to a standard rehab, 1-2 they can do sub acute. Its been a...
When I had my fusion, the orthotist came to the hospital to fit me for the brace prior to surgery so I had it to go home. I didnt even know it was happening the dr took care of it all. I would call...
Post number 600, thought maybe it should be an update! I was in a major car accident a few months back and have been off work since then. The 45 MPH impact tore some scar tissue near my spinal stim...
I have been using patches for nearly 10 years and have always needed a cover to make them stick, except one version with a foil back that made me break out, I havent seen those in years though. I buy...
After being in a major car accident a few months ago I was all set to purchase a USB bracelet for emergency situations. I called the local ambulance, local ER and then a large trauma center nearby...
In Pain 4 2 Long, how many times per day were you permitted to take 7.5mg? I really dislike when offices tell you that you took to much when you call early. I understand completely if you are...
Thank you all! We are still wondering what is going on. Because she has periods where she is completely pain free we cant even get a GI to see her right away. We were discharged with absolutely no...
We are still wondering what is going on with my daughter. Her intestines went back into position. But now we need to find out why. He heart rate is in the mid 30's at rest so they are concerned that...
White Beard, you hit the nail on the head there, I am so overwhelmed right now. Went went to the PCP at 7 this morning, camped out till he arrived. He pulled up her reports and was not happy about...
Went went to the PCP at 7 this morning, camped out till he arrived. He pulled up her reports and was not happy about the ER descision to let her go or what they told me in general. She DOES have...
Thank you all! They were asking me about history and I have AI disease so they did mention AIH, something about AI running in families in general. But like was mentioned, cant jump the gun. They...
What a day, I havent been able to even think about myself. We took my 16 year old daughter to the ER for upper right quadrant pain this morning and came home with a Hepatitis DX. She had CT,...
We took my 16 year old daughter to the ER for upper right quadrant pain this morning and came home with a Hepatitis DX. She had CT, ultrasound and tons of bloodwork. CT and ultrasound show severe...
Thank you very much everyone. White Beard, thats pretty much what my impressions were. I can see SSD giving me a hard time but cant see how LTD could at this point. I have been going to PT, but he...
I was under the impression that I would get the LTD and then be forced to apply for SSD by the LTD insurer. The LTD would decrease as soon as SSD gets approved, but I would get both, after a while...
I was involved in a car accident which gave me new issues as well as exacerbating everything existing. Lucky me,lol!! Now 3 months later I have exhausted my FMLA and am still not cleared to return to...