Hey Skeye; I've lost your email a few years ago when I lost everything on my laptop. I would love to chat; my profile has my new email....
Don't know what's going on with the timeline but I posted this years ago.....lol...
I have also been following your story. I am sending you healing prayers. I hope that better days are coming your way very soon!!...
In the top left hand bar of your facebook page, insert "occipital and peripheral nerve stimulation". The group should pop up. Let me know if you find it. suzane...
Hello to all and happy Spring. The lovely weather sure feels good and finally all that snow is gone. Went to the Easter Vigil Saturday evening and what a beautiful celebration it was. Not much new at...
can you contact me please my email is in my profile I live in Ottawa as well Suzane...
PhlebotomistEh! can you contact me. I would love to chat with you as I am in Ottawa as well. Suzane...
I don't know of any doctors doing nerve decompression around Ottawa. You can look into occipital nerve stimulator surgery... there are doctors in London who do this and also one in Quebec City. My...
It could be possible that you picked up the c-diff bacteria while at the hospital. Get your dr. to send in a sample for testing....
Glad you got some good news today Chart. Hope your eyes remain stable. I chat with Pete often and he is doing so-so. Still has a fair amount of pain. He had a hip replacement in Aug and is recovering...
Hi Splashdancer, thanks for asking about me. I'm in the process of getting my occipital nerve stimulator. I'm hanging in there. Suzane...
Michael has been doing ok pain wise with some down days here and there. He has had long term problems with his internet and therefore can't post here. Petey has had severe pain issues. He just...
Hi Chelsie Sorry you are suffering so much. I too have had a horrible headache, constant now for over thirteen years. I too have tried everything under the sun and nothing helped my pain. I am about...
Sorry to hear you are suffering so much. I too have had a constant headache for over 13 yrs and it certainly fun. I too am in Canada, Ontario actually. Where are you? I wanted to let you know there...
Lmorrisbal, I just wanted to let you know there is a facebook group of those who have the stimulator or are in the process of getting. There is a wealth of info amongst the members, also info...
Well said David. Hope you are having a good weekend. Suzane...
Hi Delish I wanted to pop in and welcome you aboard. So sorry your surgery was not successful and that you are suffering so much. You're in the right place to get support, that's for sure. We all get...
Hello Oregon I wanted to pop in and welcome you. Glad you found your way here and decided to post but sorry to read of your husbands facial pain. Certainly sounds awful. Myself I have had one big...
Hi everyone Nothing new on the pain front; same old pain day in day out. Went away for the weekend will some girlfriends on a scrapbooking retreat. Had a nice time; just hated that I had to use ice...
Hi DavidSorry you are having a rough go of things. I hope that tomorrow will be a brighter day and that you are able to cope better with your pain levels. I certainly know the feeling, as in my case...
Just reading this now Michael. I am so sorry to hear of this sad news. Thank goodness no one was injured and that they are all safe. My thoughts and prayers for all involved during the coming weeks...
Hi Just That would be great to meet up. We will be in Wells camping for a week plus and touring the whole area up to Boothbay Harbor before moving to our second camping spot in Bar Harbor, so we can...
Hi MichaelI'm so glad you had a great visit with Chart. It is an amazing feeling to meet a hw member irl. I had that opportunity in Jan 2011 to meet up with whom I now call my best friend, Michael....
Hope you're doing ok Shell. Keep us posted when you are able. Suzane...
Hi Diane, welcome to the cp forum. Glad you found us but sorry you are suffering so much. You certainly have your plate full with all those problems. Hope you keep posting with us and let us know how...
Sorry to hear you are having so much pain Betsey. I hope things calm down for you soon. Suzane...
Just thought of a few members we haven't heard from in a while: Matt, LexiRae, Livingcolor? any other members you can think of that we haven't heard from? Hope you are all ok. I know I haven't been...
Hope all went well at your appointment Shell and that he decided to removed the catheter. Post back when you can. Take care of yourself. Suzane...
What helps me in coping with my pain:stay positive take things one day at a time stay in the now, don't look to the future acceptance that this chronic pain is in my life, no sense fighting and using...
Sorry the block did not help your headache Alcie. Nerve blocks never helped my headache either which has not been present for 13 yrs. I am awaiting a surgical date for an occipital nerve stimulator...
Hi Linds, Just wanted to pop in and welcome you aboard. Sorry to hear you are suffering with cp but certainly glad you found us. Share you chronic pain journey with us when you have the time. We all...
Hi AmethystloverI wanted to pop in and welcome you to our cp forum. Gosh your story just breaks my heart. Not only are you suffering in constant physical pain but you have the added emotional pain...
Hi Barbara; I sorry to see that you are still suffering so much and now another diagnosis on top of everything else. You are a strong and courageous woman. Stay strong and keep fighting. suzane...
Just wanted to pop in and welcome you aboard. Glad you found us but sorry you are hurting so much. Hope you are able to find some solutions to your terrible pain. I know it's not easy but try to hang...
I'm sorry to hear your trial did not go well for you. I hope that there are other options you can look into for pain relief. Take care and stay strong. Suzane...
So sorry to hear this sad news Sore. Continued prayers for all of you. Suzane...
I hope you can have a nice weekend RM. Do something special for you to put a smile on your face. Give yourself a manicure, soak in a hot tub, watch a movie, read a good book. You are important and...
Yep my buddy is the bestest!! Time for another Florida get together!...
Sorry you had such a rough day today. Hope you are resting more comfortably this evening. Suzane...
Hope you get some much needed answers Chart. Be kind to yourself because you are important. Hope the disease process slows down for you. Enjoy your weekend. How is the weather your way? suzane...
Just wanted to pop in and welcome you to the cp forum. Sorry to hear you are hurting so much. I hope you get some answers at your upcoming appt. Keep us posted. Suzane...
Gosh Barbara, I wish I had the answers for you. It's just not fair that you are suffering so much, way too much. Know that I think of you often and keep you in my prayers. Are you able to watch tv,...
That's great news on the pet scan results David. You can breathe a little easier now.Keep us posted as to how your small surgery goes. Good luck with that. Hope you can have a good weekend. Suzane...
So sorry for this sad news. My prayers are with all of you. Suzane...
Glad you had a great weekend David. Too bad that it's caused you more pain but hopefully that will subside over the coming days.Good luck with your test results. Keep us posted. Suzane...
I'm hanging in there. Nothing new really. Depression is more stable so that helps me in coping with this never ending pain. Still waiting for a call for a surgery date. Hope y'all have a good week....
Hi BarbaraI'm so sorry you are suffering so much, always suffering. I know what it's like to never have a break from this heavy pain and how it really wears on you. It zaps you from all your energy,...
Hi David Glad to hear you are heading out of town for the weekend with your wife and celebrating your 39 yrs. Congrats on that for sure. It's great to see you getting some better pain relief. Hope...
This is wonderful news for them. Hoping the improvements continue. Thanks for the update Barbara. Continued prayers for her family. Suzane...
End of Feb and March have been pretty tough pain wise and depression as well. Hoping that April is better. If I can keep the depression in check then I can cope better with the pain. Still waiting...