I've been on Cymbalta since it first came on the market due to it being an anti-deppressant as well as helping Neuralgia like pain (I suffer from Trigeminal Neuralgia Type II). It worked for about...
This is all very interesting information to me. After 16 years of misdiagnosises (Final Diagnosis was Type II Trigeminal Neuralgia) my PM doctor thinks I have CPS. It's like I'm starting from square...
I have PCOS, but fortunately, I don't have much pain. It made me infertile until I saw a specialist who diagnosed me. Some people who have PCOS feel tremendous pain, while others feel nothing. I...
I have Atypical Trigeminal Neuralgia/Atypical Odontalgia. Nothing works. Unfortunately, there are very few support group or websites out there. The main one, LivingWithTN.org is ok, but there is a...
Thanks for the info y'all. Seems like most people experienced the same or very similar results. I'm on Norco now (going on 10 years) and while it worked some in the beginning, it's pretty much losing...
Hello All, I hope everyone is having a low pain night. I know I'm NOT! I am curious if anyone has tried or is currently on the Butrans Patch and if it's helping etc.?...
Hi to Linds_ and everyone else on here! I've been away a long time too. Long story short, I had two Rhizotomies for my face pain and they made it worse. I couldn't teach anymore after the operations...
Thank you for posting this, Electrify. It's like we live in "Alice in Wonderland"...what's up is down, what's down is up. The law makers, beaurocrats etc. who have no understanding of chronic pain...
I believe we deserve pity parties. I am in CONSTANT pain that others without CP cannot even begin to imagine, so therefore, I allow myself a release once in awhile. If we held all the emotional pain...
This terrifies me to no end! I remember when infant formula had a recall. I was like WHAT!! Also, when Paxil came out of a pharmaceutical lab in Mexico (I think it was) with red specks in them? I...
Get an MRI asap. Sounds like symptoms that brain tumors can give off. The hallucinations, dizziness, etc. = NOT GOOD. Get an MRI for the soonest possible time....
Fantastic!! Good things happen to good people after all!...
I'm personally at my wits end. This nerve pain has given me stomach ulcers and I lay in bed and miss work 40% of the time. My life is a terrible circumstance with this pain. I try to find joy, but...
I live in Houston, Texas. Hey ----Chartreux---- email me! I didn't know you lived in Houston too!...
Alcie, Thanks for the link. Oh yes, I've had 11 yrs to read up on TN. I got it in '99! I have the "atypical" TN though...where the pain is constant and not i intermittent. The docitors always call it...
I was on Cymbalta for about a year. One pill in the am and one in the pm. I can't remember the mg. It actually helped dull my TN pain for about a month, but then the pain came back. So my doctor...
Thanks Paula! I'll fill you in when I make the appt. I'm scared, but it's something that I haven't tried. People get nerve blocks all the time in their back, but this one is in my FACE! I'm just...
The new Neurologist my GP sent me to was very thorough and had a great bedside manner. He suggested I go to this 'comprehensive pain management' hospital where a trained PM doctor who is also a...
My Goodness how bizarre! A Parasite! Go figure. You need to be on one of those "medical mystery" shows on TV. How again did you get to this diagnosis? By a test? Amazing....
Glad you posted an update Hydrangea. I know it's sometimes difficult to anticipate all the emotions involved in an upcoming surgery. It is best that you scheduled it when it was convenient AND after...
Radles, I'm sorry to hear the pain is so horrible. What type of facial pain do you have? I have Atypical Trigeminal Neuralgia/Odontalgia and it is a living nightmare....
My doctor started ordering Vitamin D and a few others on my yearly blood work-up beginning two years ago. I was, of course, low in most Vitamins, including D. I asked him why he suddenly checked...
Mindy, Repeat after me: This Too Shall Pass! Also take a deep breath in and say PEACE; take a deep breath out and say CALM. I hope your day gets better. Seems like all of us in CP have 80% of our...
It's in the low 70's in Houston right now. I LOVE when we get a break from the heat and humidity. Unfortunately, my pain worsens when the weather changes. It's like the Trigeminal Nerve can FEEL the...
grainofsalt, So true. My family doctor will prescribe me Vicodin or Norco with no hesitation. But when I asked him if I could try something a little stronger like Percocet (I explained I knew it...
Thanks all of you for your responses. I haven't been on the computer since Friday morning. After I posted that, I had to get a sub to cover my classes that day -- the pain was just too much. I...
I am so tired of being in chronic pain that I think I am actually developing Chronic Fatigue Syndrome. When I am absent from work due to the pain (I missed yesterday. I'm here today but in...
ElenorRigby is that poor lonely lady in the Beatles song "All The Lonely People." I always felt sorry for her and her situation in life. I was thinking about my situation in life a few years back and...
Hi Radles, I have Atypical Trigeminal Neuralgia/Odontalgia/Atypical TN going on 11 yrs. now. It is a living nightmare. I cope, but that's about it. I've been on every med imaginable. If you would...
Dani is indeed a Diva! :yeah:...
Have a blast! I know we all need those more so than most people. See ya back soon!...
Bonafide Dallas Stars fan! I am in love with Mike Madono! hehe...
I'm feeling terrible. I slept most of Sunday, but then couldn't get to sleep last night due to high pain levels. I'm a zombie here at work and barely even made it in. I'm a teacher (I'm sure I've...
Yet another night where I cannot get to sleep due to the severity of my pain. Level 8 and nervy. No meds work when it gets this bad. I just have to tough it out. I can take Flexeril to help me sleep...
That is truly amazing! It's like a miracle! You have answers and knowledge now, and just those two things are powerful truths in the search for a cure to chronic pain! Keep the faith and stay...
Know that I am thinking about you and have felt the EXACT same way before. The feeling will pass hopefully in a few days. I know it's a hard time for you, but keep the faith and don't lose hope! You...
After being on Nucynta for a few weeks with loopy side-effects, the pain broke through. I got off of it. It wasn't worth the headaches, nausea, and drugged feeling. Plus, it ended up not working well...
Joie, Welcome to the forum! My grandmother developed Chrons Disease in her 60's. She was able to take some medicine that helped it. And that was 20 some odd years ago. I remember seeing a commercial...
Lindaloo, You seem to be in great spirits. Keep it up gal! It's good that you are enjoying everyday milestones whether it be a grandchild's tooth or losing/gaining weight or having strange Disney...
Thanks so much for the advice ya'll. You have no idea how much your words (thanks MsBunky, Dani, Jim1969, and mama6!) and for the awesome analogy (thanks White Beard!) have helped me to deal with...
I'm fuming so bad right now. I can't believe the number of attitude/uncaring things my new PM doc did during my appt. I'm too upset to even write about it right now. But to give you an example, he...
Dani-- that is what is so weird about it, some people get them and others don't. Google "SSRI withdraw zaps". There is a good wikipedia article on it. They are necessarily painful, just a nuisance to...
I have a specif tablet here by my desk that I write down the names of anybody experiencing a bad time with their pain for a special prayer. Thanks for letting us know Dani. I will pray for her....
Welcome Athas, You are at a good place here. This forum is an invaluable source of information regarding pain through peoples own research and experiences with chronic pain. You will find the...
Sorry I haven't replied to any of ya'll until now. I've been zapping all weekend. It's only in my ears now...like whomp whomp feeling like a oscillation machine sound from outer space. No, I'm not...
It's been a week since my PM doctor took me off Paxil because it contraindicated with Nucynta. I've been having severe "zaps" for two days solid now. He didn't taper me off either because he said...
I just got on it today. I take one 75 mg every 6 hrs. So I've taken two pills so far and my pain is about the same. It's too soon to tell. My PM doctor said if it works, it will work in two weeks (by...
Hey antbuggey, I went to the Nucynta's website and they had a "find it pharmacy" zip code help. After doing some calling around to the pharmacies, I finally was able to get the prescription in 20...
My PM doctor prescibed this to me on Friday. It is a new medicine that came out in March of this year AND a Schedule II. My regular chain pharmacy did not have it and did not have a PIS (the only...
Dani, I'm sorry to hear of your latest pain episode. Try not to worry. Please be careful getting out of the hot baths!! I remember when I had to take several hot salt baths for muscle pain and I...