Hey Ziggy, Most excellent report . . . I love good news....
HI CLDCR, I'll be starting Chemo in a few weeks myself though it's taken me 8.5 years to get there. I'm not really bothered by the idea just not looking forward to the inevitable fatigue. You are...
Congrats Beth and Gary, I so agree with you on the prognosis, I was given 3 years at Dx, I'm at 8.5 years now and all engines running. Keep up the good life . . . Q...
There's no RP In my future, that would just cause the cancer fo spread they tell me. I have no idea what she meant by surgery either, I see my MO on the 16th so I'll ask then. Right now I'm just...
Sorry about the loss Bily Bob, I have to agree with the aggressive treatment of aa man in his eighties. It sure put a lot of pressure on my 52 year old system . . . Q...
A good day for updates. I've undergone both Provenge and Xofigo since last post both seemed to have been quite successful, the Xofigo has wiped out all three of my bone mets and recent scans show no...
Hi Gunner, There's a lot of side effects that go with hormone therapy and fatigue is the least. My condition on Dx was so bad that surgery and rad were not a choice. I've been on hormone therapy, Ht,...
Back to you Guy, Since you are considering Xofigo I figured you'd like to know a little more about it. When I went through the procedure last Feb through Aug there were three other guys doing the...
Hi Guy, Sorry about the confusing typo there . . . I did mean ureter and I'm aware that there are two of them. In fact, that is the main reason for my posting as I am unsure if I will have to have...
XfWelcome Misty, I have a couple of questions concerning your OP. You said that you were informed that your next Rx would be delayed due to some new regulation that affects long term, high dose...
Thanks for the good energy, Billy Bob, l can always use it. Hiya myman, yah, the uro appt is on the 19th so Ill have the answers to those questions soon. I am concerned because there are two...
I just got the results back from a recent CAT scan . . . Not too good. My prostate has swollen to wear it is putting pressure on the prosteters and urination is frequent as well as painful. My MO...
I suffered from sciatica also. I tried all sorts of things from acupuncture, chiro, to opioids. None worked. Finally I went to a sports Dr. Who Rxed me a course of prednisone and some PT designed for...
Sounds like you will go through the nightmare just fine. Th HT sure knocked out my early mets. My problem was being a G9, they wouldn't consider surgery so I just go day by day. Here's hoping you...
Geop, sounds like your in a met hurt. Are you in much pain? My original mets were taken out by HT and it wasn't until 8 years later that I began to have a few micro mets show up in similar regions as...
Hey too young, Keeping up the fight is the number one way to extend your life. I will never give up my will to live. Besides, I enjoy my life, why should I want to see it go? Keep your spirit up and...
Faustian, with those mets in your spine ribs, and possibly pelvic, Xofigo is something you might look at down the line if the pain becomes too much. It is not very invasive and it sure gave me a huge...
Never buy a horse without checking its teeth. Your daughter might have to stay in a motel for a week so that she can get in these jack**ses faces up close and personal. It sounds like a typical FL...
Hiya Susan, Thanks for the reply. I certainly did find it palliative for my numerous bone aches so I'm benind anyone else giving it a shot. Sorry about the mistype Xogigo in the subject, why won't...
Hi brothers and sisters, It's been a few months since I last posted but I wanted to finish the Xofigo Tx before I contributed anything more on the subject. I had a visit with my MO this AM to go over...
Good choice Mel, When it's time it's time. My high Dx is what convinced me to sell my picture framing business and devote the rest of my life to taking care of my disabled wife, gardening, and...
Compiler/Mel, I sure don't agree with Dr. Hussain, I've been on Ht for 8 years so I'd say that that shows a good survivability rate. I started it immediately after Dx in 2007 and am still on it....
Mel, As I wrote in my post above I've been on Lupron for 8 years and have suffered through each and every SE out there. The memory one was especially bad when I was on Casodex as well as the Lupron....
Gunner, I've been on Lupron for over 8 years now and I think I d go out of my mind if it weren't for my AD of choice, Cymbalta. You mentioned that you'd been on Lexapro . . . Have you tied Cym? It's...
That would be great if you could get back to the tramadol alone, your Dr. can still call that one in the last I heard. The best of luck to you . . . Q...
With the new rules on hydrocodone, norcos, you need to call in for a hard copy Rx and then go pick it up yourself. You did it the completely right way, I hope that the six additional weeks will do...
Hi Sue, I don't think you need to worry about it leeching into the air, they pack the four of us into a small private room, smaller than n exam room, to do the Tx and no one seems concerned. So sorry...
Thanks for the kind thoughts Arthur. It sure does help to progress when you know that those that are helping you really care . . . Q...
Faustmann, Dixie is so right about trying a few different ADs. I tried Prozac first and then Cymbalta. The Cym has proven very effective as both an AD and an analgesic. I've been on Lupron for 8...
Hi all, time for an update on my Xofigo treatment. First off I'll have to say that my 3 person team on this is made up of my RO, his radiological nurse who sets the IV and does the lions share of the...
This Uro is the type that gives PSA screening a bad name. Your PSA rose what, 7 points in 5 years if I read it right. That is not fast at all. My PSA has been yoyoing 10-20 points for the last two...
Hi Sue, Just got Round three of Xofigo this afternoon,and all seems to be well. One thing has us flummoxed though, my PSA dropped in the two week gap between the one I got for my MO, 160, and the one...
Hi goatts, The arthritis was preexisting but was enormously aggravated by the Lupron starting at about four months. I first noticed the fatigue at three months and it has just progressively gotten...
I was Dxed with a PSA of 511 and a Gleason 9. Casodex and Lupron had me down to about 2.7 in a month . . . Q PS: Urination was almost back to normal as well . . ....
For me, when no one is around to hear me a good LOUD primal scream works wonders . . . Q...
Hi shortpotato, This is not really too much of a long shot so give it some thought please. Are you familiar with what the fascis in your muscles is? when you are cutting up a roast, like a big chuck...
Yes, that was a really heartfelt post from Sall. Don't feel alone Susan, it left Connie and I weeping as well. I will bee doing the simplest garden possible as an hour a day on my feet is about it...
Hi again Bob, On your question of " will additional PSA results guide to more Bx?". Not very often is my answer, after you have gone through all the other variables like Prostatis, sex, bike riding,...
hi Bob, I didn't notice in this thread if you've been asked if you had sext he night or two before your second PSA, that can cause a spike. Perhaps a round of Antibiotics and another sex free and...
Hi Sal, It is so good to hear from you and Ted, I'm glad you had the desire to write even though the news is sad to tell. When you write about the Xofigo and also your drop in number of converations...
Beth, Benadryl is a definite prior to next injection. It's an irritation but not like 19 days of diarrhea I'm pretty sure on that point. How's the garden growing, the mayor domo of our acequia is...
Hi Lisa, Yes, the treatments and SEs of PC just never seem to stop. Last year I had togoto an oral surgeon before my jaw caved in. He was worth the price, 5 teeth pulled in one go with only...
Sue, I'm getting the Xofigo next Wed. the 29th. The only possible SEs that I've had was an attack of itchy bumps, at least 75-100, that lasted for two weeks just after the second injection. I'm going...
Hi kic That is so heartening that your husbands Mets showed such an improvement after chemo and other treatments. I'm a believer in aggressive treatment when the cancer is as widespread as his. My...
Barb 1, I agree that we all react differently, please don't let my dissatisfaction with provenge throw you off your present trail. These immunotherapys are so different In such a small way that a...
barb I, thisTx sounds like a slightly more advanced form of the Tx Provenge which I went through during 09/15-10/17. At the end of the Tx my PSA was 4.7, Now almost 18 months later it's at 160. Draw...
I'm really looking forward to the digital, especially the Dr. chats. My ophthalmologist said the same thing about my increase in floaters but that I really didn't need to worry about it. You know,...
Just need your age at Dx and you've got it Sussed . . . Q...
Sharpen, as you have read over and over again, you have a lot of choices but I would narrow it down to one if I was you . . . AS. Find a clinic with a lot of experience in this and also educate...
This article never mentioned death by other causes. How many of the mortality cases could be chalked up to the proverbial hit by a bus? Furthermore, this article never mentioned extended life due to...