Hi Daesin, Just wanted to check in and see how you've been over the last couple of weeks. I've been plugging along, trying to improve my flexibility and range of motion. Things have been going ok -...
Thank you - you too! :-)...
Hey Daesin, just checking in after my doctor appointment. I've been laying low for a few days, feeling a bit miserable. My symptoms have been a bit worse this week, as you know - it changes all the...
My hands don't go white regularly, just when I stretch them up overhead or stretch my pecs - they're going a lovely cadaver colour. It's pretty scary looking, isn't it. I'm not sure what the doctor...
Ugh, I had a flare up over the weekend, not sure what did it this time. More numbness and now my hands are going very white again, this subside a bit for a while. Anyway, I found this on it -...
I'm not sure - it happened again last night, I was sleeping on my back with cushions under my arms, so I'm not sure what else I can do in that department. But at least today is not as bad as it was...
I hand sewed a soft toy (my first one!) for my niece. Even though I was in a lot of pain doing it, it helped get my mind off the pain, which is weird when you think about it....
If only we could make our dreams true!! I don't know what it means- maybe that you have had it for such a long time now, it might be starting to feel like it's part of you. My doctor said that things...
Wow - that will be exhausting, but hopefully you will finally get some answers about it and what you can do. Interesting about the circulation loss - my doctor said the same, that you can get veins...
Hmm, I don't feel the pressure in my throat - I wonder if that is one of the scalene muscles tightening up? I have other issues that cause fluid retention and closes my throat up, but different...
Also, I found this video on sleeping positions - I didn't think it was impacting on me that much, the way I was sleeping (on my side), but it probably has been....
Turns out it wasn't the stretching :( Numbness came back...I still can't tell if this is all just random, or if anything I am doing is actually making a difference. Gotta keep trying I guess. I got a...
I hope you feel better soon Chartreux, get some rest :) Daesin - I think it was the stretches, the numbness has improved over the last few days. Although, my 'dead arm' pain as I like to call it, has...
Do try the nerve pain meds if you can - they are helpful, I've been off them and I noticed the difference, even though I was on a small dose. I've been sleeping terribly for the last few nights, the...
I forgot to say, are you able to try tegretol (carbamazepine)? You may not be able to with current meds, but it works very well on this type of pain. It worked for my Dad, the only reason he had to...
Chartreux - how long have you had your TOS for? Has it improved with treatment? It's hard to see the light at the end of the tunnel sometimes (or if there even is one)....
I know what you mean about sometimes not being able to tolerate heat - sometimes I have to take an ice pack to bed for my hands because they feel like they are on fire. They often buzz or the skin...
I forgot to say, the doctor recommended physiotherapy, gentle exercise, anti-inflammatories, nerve pain meds (lyrica, heat packs, and acupuncture. He said not many people need surgery, only if you...
You are not alone, it's awful I know, but you aren't alone in this. When my pain was really unbearable I went back to the doctor and they put me on Lyrica (pregabalin), it takes around a week to...
I'm so sorry you are going through this- nerve pain is simply awful :( I am on a medication right now that is making me drowsy, I am trying to hang in there and hoping that it improves over time....
Hi Daesin, Yes - I do. I wrote on here about a month ago as I was in excruciating nerve pain and my shoulders were completely numb, I was pretty scared. Turns out I have swelling in my spine at C8...
I'm so sorry. I was just scared and alone and I hoped that someone had a similar experience that they could share to reassure me. I get very worried now after my cancer diagnosis that everything is...
Please help me! I'm so terrified. My upper back is now numb. Is this getting worse or is the pain and numbness just working it's way back to the source and maybe it is getting better??? I'm so scared...
The part that stresses me out the most us when different parts of my hand and arms go numb when I'm sleeping :(...
Thank you for replying :) I have scoliosis, but have been treating it for years, I have orthotics and a heel raise (right leg is shorter) and have had muscular aches and pains, but have never had...
Hi I'm new here. I'm wondering if I can get some advice and support for a cervical radiculopathy I have. I've also developed a what seems to be a lower back injury, possible lumbar radiculopathy, as...