This post is old but I thought I'd share my experience. I treated Lyme, Babesia and Bartonella with prolonged anti-malarial and antibiotics. The symptoms have VASTLY improved though the treatment. So...
Do you have bladder problems? I've never heard of a flare up from Lyme. I was under the impression that you're in remission or you're sick....
So for as long as I can remember people have asked me why my pupils are so dialated (doctors, friends, family - they have all noticed it). This dialation was present when I've been off medication and...
I am seeing someone who treats Lyme but primarily is you have bladder problems. She is in DC. Msg me if you want her contact info....
Does anyone here have any knowledge about ankle fusion? My 37 year old brother suffered a tibia plafond fracture in March in a hockey accident. He had pins and plates put in and I thought he was...
Hi. I was reading a thread on here about the full moon but now can't find it. I used to think the full moon and symptoms link was silly. But I'm starting to wonder about it. I think maybe there is...
I'm sorry to hear about your difficulties. I was mis-diagnosed with bipolar. It was actually Lyme and co-infections. I can relate to the strong feelings of anger. I hope something helps soon....
Hi. Wow thanks both of you for the replies. gkamom I really hope treatment helps your son. And agent9er thank you so much for replying too. It seems treatment can really help during pregnancy to...
Thanks everyone. I have a history of severe depression so I am pretty darn sure I'd have serious postpartum. I really hope I don't offend anyone here but I got pregnant (not planned and didn't even...
I have PTSD symptoms and I am convinced it's from a long battle with being sick; treatment; hospitals; tests; fearing I would be disabled forever (in my early 20s); bipolar manias (now I know it was...
I know that you have to stay away from alcohol with this disease. The top doctors all agree that you are not going to get better if you drink. I don't drink anymore and don't miss it. I read...
I totally agree. Very early on in treatment I felt so upset with setbacks. It's easier said than done but please don't lose hope that you're moving forward....
I don't know how long it takes to go away. I thought I was over it but when I started anti-malarials it started the babesia die-off. I wish I had taken babesia more seriously. I switched from...
I took a medication in the fluoroquinolone family (prior to Lyme diagnosis) and had no problems other than headaches. Everyone is different. I am taking minocycline for bartonella and I think up next...
Thanks. I am going to talk to my naturopath about thyroid. I think it is probably the gabapentin because the weight fluctuates. Since tapering down I've lost about 8 pounds of water weight in under 2...
I just weighed myself and I have lost 6 pounds of water weight since last week (I was right it's the gabapentin). My clothes fit so much better and I feel like I can move so much more easily....
I whitewater kayak and I love it so the name seemed to fit. Thanks for replying. Do you think the weight gain around the stomach is from the bartonella or babesia. I have never treated for bartonella...
So I am 35 and I didn't believe in the biological clock but it started ticking 3 years ago and it hasn't stopped. BUT I have Lyme disease and co-infections and I just want to know if there is any way...
I agree....so ready to move on from this! My thyroid is borderline low. We increased my thyroid medication and I'm going to re-test in a few weeks. The marks I have look sort of like stretch marks....
I am really familiar with the tired and wired thing. I had it with die-off not too long ago. It was like I shot up out of bed but I was so tired and wanted to sleep. But my body & brain had other...
OK so I gained weight around my belly (seems that I have only gained there; I posted about this in my gabapentin taper post). I thought it was just cellulite on my stomach (nice image I know) but...
Hi gkamom, Thanks for your reply. I am taking 8 capsules (300 mgs per capsule). I take it all before bed. Sometimes it helps and other times it doesn't help at all. I feel the same way you do I...
Hi. I know I don't belong in this forum (I post in the Lyme disease forum) but I was wondering if anyone could share their experience with gabapentin tapering. I'm now going down to 800 mgs. I was at...
what happens when you miss a dose?...
I did hyperbaric oxygen before an official Lyme diagnosis. It did cause die-off but didn't anything for me at all. But then again I had no doctor and was just doing it because I had read up on it. I...
Your LLMD sounds good if he or she is willing to work with you on doses. My doctor always says there is no one size fits all approach. He is right. We're all different....
I have been on it since around the beginning of May. I find it very hard to tolerate BUT I know it is helping my brain fog. And it is helping my bladder. The highest dose I got up to was 1,000 mgs...
Oh and the sweating is super important I think. I sweat a lot (I'm on babesia treatment) and I think that helps detoxify. But electrolytes need to be replaced afterward! I can't imagine going back to...
I do a lot of cardio and strength training. I can't imagine not being allowed to work out. I've always exercised. I love skating (I learned two years ago) and want to learn how to play hockey. For me...
Thanks for your replies. I will find my lab tests and post the results. I do know that my TSH is high. I have tried everything for my sleep from 5htp to melatonin to Xyrem and none of it helped....
I am borderline hypothyroid. I'm on desiccated thyroid and I recently increased it because I was wondering if that could be the problem. I suspect the gabapentin weight gain has been creeping up on...
I just talked with my doctor. I am going to take NAC and get my enzymes check asap....
I have also read that anti-malarials can cause yellowing of the skin. I have noticed that on the days I take the anti-malarials my urine is bright yellow. I attributed the yellow colour of the skin...
Thanks for your reply. I have been on an inconsistent dose of Neurontin (albeit it is in the upper range dose). No matter what I do I can't lose weight. This is what has led me to suspect that it is...
Thanks so much. I don't have any pain. That has never been one of my symptoms. Insomnia is my major symptom. When you say taper really slowly how slowly do you mean? I am a little worried because I...
Hi. I was wondering if anyone else has taken gabapentin. I'm taking a really big dose (and I have been for over six months) and I'm starting to think it might be the culprit when it comes to my...
Early diagnosis is great and preventative treatment as well but what about the co-infections? I have read that almost all ticks that carry spirochetes also carry babesia, bartonella, etc. I wonder...
Thanks for the information. Yes my doctor also talked to me about magnesium deficiency. I am trying to figure out if I can get it in injectable or cream. I find it all very confusing. Does the Lyme...
There's a LLMD in Ottawa? I am Canadian as well. If you are looking at LLMDs in NY state I would advise you to read the doctor ratings first. I was thinking of seeing a LLMD in Hyde Park and then I...
For me injectable vitamin D really helped raise my levels years ago. Now I'm on oral vitamin D. I started supplementing in December and my levels are normal now. I don't understand the Marshall...
I feel great during my period it's the PMS that is horrific. Serious depression, irritability, anxiety and insomnia. Oh and I drop everything but that is not so bad. The symptoms are serious enough...
I am clueless. I thought Flagyl was just the brand name for tinidazole....
Thanks all. What I've been doing to detox is just drinking a lot of water and going to the gym and running and sweating a lot. The herxes are bad but mild compared to what I used to get. These herxes...
how much die off is safe? I am on tinidazole, minocycline, amoxicillin, coartem, and alinia. I have to start herbal treatment soon. Today I felt too sick to go to the gym or do anything. I had...
I'm taking tindamax and I'm having a lot of die off. I'm finding that when I'm not sick my brain is clearer....
I started treatment again and I have a new symptom. I have sore soles when I first get up. What's up with new symptoms?? I'm on tindamax, minocycline, amoxicillin, alinia, coartem and various herbal...
Hi. I see Dr.S in Naples, FL....
Right now I'm on tindamax, minocycline and amoxicillin. My doctor is treating me for Lyme and Bart so I'm not sure which is being used for what. I am soon starting treatment for babesia too....
I'm sorry to hear that you are having die-off nausea. I can totally relate. I am getting some die-off nausea on oral abx BUT I did experience it while on IV. I threw up for four months and lost over...
I have gut issues and I think they are related to taking oral abx (I'm back on oral abx after years of not taking them). I have eliminated dairy and am almost off gluten. I think it's helping with my...