It is my magic cocktail: prednisone, arava and enbrel. Down to 10 mg prednisone daily. No sickness or infection. Except a sinus infection and took antibiotics along with enbrel. Worked great. No...
Oops sorry, yes tell your orthopedic doc, tell anyone who will try to help. I told both primary and rheumy that might ankle was becoming deformed and they said well it's just the RA. Finally showed...
I had horrible nerve pain shooting down my arms for 2 years. First rheumy insisted it was fibro, I knew it wasn't but took the lyrica and it does help. I was between rheumys and primary ordered the...
The "ssd blue book" of covered conditions listed by diagnosis code is available online. Just Google it and scroll thru til.you find your dx's. The guidelines also state if you have multiple dxs, they...
While on methotrexate for 6 months I was unable to decrease the prednisone to less than 20mg a day and continued to flare. My rheumy gave me a Kenalog shot after my sed rate shot up to 70+.Finally...
Tapering off prednisone can be very difficult I learned from HW folks the best way for me, I began at 20 mg. First week: alternate 20 mg /19 mg every other day. 2nd week: 19 mg every day. Repeat for...
I was initially diagnosed with PMR, ESR 100 and negative RA Factor. since there isn't a test for PMR or Fibro they are diagnosed by eliminating other diseases. I had a great response to prednisone,...
I had the EMG today for the tingling wrists and hands falling asleep etc. Yep, it's carpal tunnel due to RA and I get to wear wrist braces at night for 4 weeks and follow up. Had cervical epidural...
Oh the weight gain... it's so depressing, and pain is depressing. This is not an easy disease! You might consider increasing your protein-- seriously. We need the energy, not more fat so look to more...
Welcome to HW, and thank you for reaching out and starting this thread. I empathize & completely understand your pain, frustration, depression and have not taken a step without pain since Feb 17,...
I was told by rheumatologist that PMR isn't in the knees or below. He was right-- I have RA. Prednisone has been SO helpful, I am finally at 10mg and hope to keep decreasing....
I call it the "Pain du Jour" ! Never know where I will be hurting when I get up in the morning! Go to bed hurting in one place to wake up to something else. Also have been told I too, have fibro, for...
Hi Debra. While my mom suffered from progressive supernuclear palsy, it is a member of the PD family diseases. PSP has the same mask-like facial affect but is progresses 3x faster from diagnosis to...
Oh, sorry I didn't answer your question. The genetic RA test has been around for about 10 years now. I had a doc with about 7 years in practice from Washington DC. who had ordered test previously for...
Yes. I seronegative, and without any symptoms in hands, no visible swelling/redness in any joints just a chronically high sed rate rate that made me terribly stiff and my leg muscles hurt so badly I...
My power recliner is great and I was lucky enough to get to test drive a friend's and knew it was the one for me! Going shopping for a chair would have been torture because I can only walk 10-20...
Just thought I would share my experience with PMR. In 2011 I was diagnosed with Pmr as a default because My Ra factor was negative and shad a rapid response to prednisone injection for severe pain...