Update: I can’t get into a GI for almost two months. I am on the “call if anyone cancels” list, so maybe sooner. My doc gave me Bentyl which did nothing but make me dizzy. I walked back through the...
I made an appt with my primary care doc for a GI referral. Going to see if he can set up that test in the meantime. Thanks!...
Yes, I do. I’ve never given that any thought....
I am having some issues with beef. It’s been an ongoing issue for about 6 months or so. I would have sudden attacks of painful cramping and diarrhea. I tend to stay bloated and have some days where i...
Well dang it. Was hoping there were some good tricks to avoid it. I guess I shall just prepare for it and hope for the best from now on. I had three done in each trap muscle. Effects only lasted...
A new development in my crazy life, I have apparently decided to have vasovagal response to injections and almost pass out. I have 5 children. Had chronic pain issues over half my life. Plenty of...
Thanks everyone! My intake appt is tommorrow. I hope they set up the injections soon. I am now at all day headaches. The super load of baclofen I am on helps with the jaw/shoulder/neck pain but...
Hi everyone! I was hoping people could give me some personal experiences with trigger point injections. I have my first pain management appt on Jan 3rd and I want to ask for them. My PCP and PT both...
These doctors and politicians seem to forget, or just don’t care, that improperly treated chronic pain can have negative impacts on a persons overall health. Should we just accept that, too? I am...
White Beard- I was originally put on Baclofen for muscle spasticity. I took 10 mg at lunch and 20 mg at supper. That worked well for that. When this spasm hit, it didn’t touch it. 600 mgs of...
Thankfully the totadol and staying loaded on Baclofen has knocked it down a lot. I love the tennis ball idea. Now if I can find one of them the dog or kids haven’t claimed. I just saw a muscle...
Soooooo..... With all the cervical disc and bone spur issues I have, along with RA, I have a fun new issue. Chronic muscle spasm. It’s in my neck and shoulder area. I have had a tooth abscess before...
Thanks everyone. So far I am 2 doses in and no nausea or vomiting. I always have diarrhea so...... getting a barium enema for that soon. Fun. One thing I have noticed is that I am more tired than...
Thank you, thank you! I found this thread and now have a name for my headaches!! I have degenerative disc disease in my neck with herniated disc, stenosis, and bone spurs. The last six months I have...
Recently officially dx’ed with RA. Took my first dose of methotrexate on Saturday. Both my rheumatologist and pharmacist told me that the side effects hit the next day. They told me nausea, vomiting,...
Hello and welcome! I can definitely relate to your situation. I feel like I am running on some medical hamster wheel. This doctor says one thing, another disagrees, a third confirms the first...
Straydog, I have an orthopedist now. Guess calling him is next step for me. I think if my brainMRI’s come out okay, I am done with neurologists. I will just learn better coping skills to deal with...
Hi looking4acure and welcome! I honestly have no idea what triggered my RA. I have other issues that they kept blaming the joint pain on. I had to go to a different city and set of specialists to get...
I have daily headaches also. Mine are from damage in my neck. If I lean forward and look down the headache flares intensely. Bad posture and continually stressing your neck by looking at a computer...
Hello everyone! I finally have one answer out of my rounds on the medical hamster wheel. Sero negative RA. Starting methotrexate in a few days. Saw a new neurologist today. He doesn’t feel that my...
Thanks everyone! I’m happy and upset at the same time. I have been officially dx’ed with Sero negative RA. I do not have the rheumatoid antibodies but she said the bloodwork showed high amounts of...
Wow! Great ideas. I am coming to despise my little Kia Forte. Great gas mileage but those contoured seats are terrible. They are not made for short people. Nothing hits where it's supposed to. Love...
I am new to this board, but not to healingwell. I'm on a long journey to find a diagnosis at the moment. First, my primary care thought I has RA or Lupus, or Lyme. All those tests came back normal....
Anyone out there have any good tips on driving with a painful neck with limited mobility? Merging is a nightmare. I found a few areas in my town that I can cut through parking lots to find a light to...
Thanks everyone. Sometimes it takes a person telling you to calm down to make you re evaluate things. And re evaluating is what I've been doing. I can't do anything about the white matter brain...
Susie, i have PT evaluation lined up for a couple weeks from now. If that doesn't work, then headed out somewhere for shots. This is all being done through my orthopedist. She said if the PT fails or...
My latest MRI showed 3 herniated disks in my cervical spine. And 3 areas of oseophytes. Two disks are effacing and abutting my spinal cord. The radiologist report said no spinal cord impingement, but...
Aaargh. Followed up today on those referrals. One I cannot get ahold of. 45 minutes on hold my position in the line went from 3 to 2. Going to have to have a couple hours open for that apparently....
Thanks everyone! I had my PCP visit today. Handed him copies of my tests and he said they didn't make sense either. He put in a referral to a new neurologist. As well as the numbers to the...
This is likely to become a little long-winded. I must list all the ways this man has lost his mind. Had my very last appt with this man today. My PC doc is finding me a new one for a second opinion....
Just an update: brain MRI showed no lesions. But did show areas of white matter brain disease. My neurologist said oh everyone gets some of that as they age. What??!! My primary care says the...
I wholeheartedly agree about not engaging this man. Going in, getting my results, agreeing with everything he says, getting my next appointment, getting records. Calling in a few days to cancel that...
Alrighty. Sleep study done. Not near as bad as I thought. The doctor that did it said my sleep was fine. Any odd results she would have let the neuro give me, bit she said there was absolutely no...
I'm not popping this blister for anything. Lol. It's all good and protected under there. Just odd that the burn itself doesn't hurt. I'm too short to drive the motorcycle lol. I don't ride much with...
I did some quick research, while doing that I discovered bone spurs are what the disc osteophytic complex finding on my MRI report means. Sheesh, my neuro didn't explain much. What I learned was that...
Soooo... I am the big dummy who managed to bump my leg against the hot pipes on the motorcycle. I have a burn in an almost perfect 2 inch radius circle on my leg. It's all nice and ugly and...
Hi and welcome! You are absolutely in the right forum. I have some peripheral neuropathy myself and it sure isn't much fun to deal with. I don't take prednisone, so I won't be much help there. I'm...
Sometimes medical professionals need experience to learn to understand how much impact their words can really have on a patient or a loved one. Most learn. Some never do. I have dealt with your type...
Alcie, that's a good idea! I would have never thought of that. Getting into a fender bender, or getting rammed by a cart in the store, I giess would be come more serious when something is touching my...
Alrighty. Had my PCP appt. it went well. Other than him turning purple and sputtering when he read my MRI results. He has gotten nothing sent to him from my neuro. He said do the sleep study and get...
Karen, thank you for the reply. The support I have found here is invaluable to me while going through this. I totally agree with everyone about a different neurologist. I'm going to try to go see one...
Thanks for the advice everyone! I made an appt with my PCP for this week. Going for that rheumatologist referral and dropping my MRI reports on him to see what he thinks. I didn't realize how much I...
Unfortunately I must agree with you. After sleeping on it, I think something smells a little off here. He literally said not to be concerned about the white matter disease since we all get a little...
Hello everyone! I finally had the nerve rebuilding treatment and it was no big deal. Divided pan of water, electrodes dropped one in each side, attached to same type little machine as a small tens...
I can take the Baclofen 3x a day. It's written that way. My pdoc just said take it 2 or 3 times a day, however you need it. I take 10 mg at lunch and 20 mgs at bedtime. Think I will try adding one in...
Thank you for your replies! The clawing while at rest and altered sensation is in both hands. I've spent 15 years being dx'ed with one thing after another. It's gotten fairly ridiculous at this...
My neuro isn't quite sure "why" yet. I have 3 MRIs scheduled Monday. Brain, neck, and back. I go in for those results 9 days afterwards. He said when I come in they will do the nerve rebuilder...
An update. Baclofen is a lifesaver. I can move a lot easier. I ended up with 10 mg during the day and 20 mg at night. Might go up to 30 at night and see if that helps. After my sleep study and MRIs....
I'm hoping someone here knows about a treatment I am scheduled for in a week or so. My neurologist has determined that I have nerve damage in both hands. I have loss of sensation, pain, and my hands...
Thank you everyone! I started taking the Baclofen twice a day, like the doctor told me do originally. Should have listened to him from beginning I suppose. Has made a big difference. Feels like I...