I often wonder about this myself. I feel great! I have 1-2 bowel movements a day. I don't get stomach pains anymore and my fistula doesn't bother me. THe only problem I have is that I still have a...
I feel like the oddball...my seton is Green! I recently went to my OBGYN because I was not happy with all the answers I was getting from my other doctors regarding this fistula. My Colo wants me to...
This is so frustrating!! Yes many women have had perfect babies but my doctor is looking at the future. No one knows what the long term effects are. There is no guarentee that my fistula will heal...
bumping up...
I never thought I would be able to say that since those suckers cause soo much pain but it doesn't bother me unless I have a flare. I am going to the bathroom once a day and I don't even know it's...
I am extremely confused. I have not had any abdominal symptoms (i.e. diarrhea & cramps) for about 2-3 months but I still have my fistula which I have had for over a year and my fissures which I...
Thanks. Luckily for me my passengers decided to take their own car and just follow us so that was a big relief. It is only my husband & me in the car so I can lean back and sleep. My friends know my...
Good Morning Everyone, hope you all are having a good, pain free day! So I am leaving to North Carolina one week from Friday. We will be there for 3 days and then we drive up to New York for a week...
I have a drain currently and 2 fissures. It feels like the string is getting caught inside the fissure. The pain that I feel is incredible!...
What cold medicine can I take? I am going to try Zicam today since everyone seems to have wonderful results with it. It's my second day with a sore throat and I need to cut it. Thanks!...
I LOVE my Pentasa. I was have been on it since my diagnosis in June and have only had 2 mild flares(caused mainly by what was going in my mouth and once when they tried to switch me to Lialda!) I...
Flagyl caused numbness in my toes which has not completely gone away even 4 months after stopping it. I also developed a yeast infection on my toungue....they said I should have been taking a...
Just watch the Flagyl. It gave me numbness in my toes which has only gone away about 90% since I stopped it 4 months ago. I also developed a yeast infection on my toungue. I really felt better with...
I had this sedation for the draining of an abscess and let me tell you that it was the worst experience of my life! I woke up to feel a scapal on my butt crack! When I went in to have my colonoscopy...
Ok I hope this is not just me. Everytime I get my period and I have cramps, I get stomach cramps. I have been on Pentasa and my stomach cramps are pretty much gone except on that lovely time of the...
Thank you everyone for your prayers and thoughts! Judy- The doc thinks the temp. ostomy is sort of a last resort. The fissures have gotten better than they were 3 months ago so she prefers that they...
Oh boy does that feeling sound familiar! I think it's just frustration....Tired of being in pain, tired of being sick, tired of being tired! It might help to speak with someone. God only knows what I...
Hi, I am not sure what you meant by the dr. wanting you to have 2 surgeries before going on remicade. Did you mean plug surgeries? My dr. doesn't want to do the plug without the remicade. I have...
The walls of this disease feel like they are closing in...I am writing this to ask for your input on my situation so that my husband can have some understanding of what battles I have to face...
So I don't have any stomach pains but every time I eat I have to run to the bathroom within an hour. It's a lot of mucous and semi-soft stool. I am bleeding a little but that might just be from the...
Welcome! You shoudln't feel worse. I don't know how bad your pain is but from what I read on your other post it seems you are doing ok. Are you in terrible pain? I have gotten great relief from my...
Never mind..I take it back! It took a whole 3 hours for my tummy to decide it was a No-No! =(...
You have NO idea how this made my day! Coffee is a KILLER for me and I have had to go from 1-2 cups a day to zero! Today I passed by Dunkin Doughnuts and picked up an iced coffee and no reaction. Hot...
Ginger- I am so sorry. Abscesses are a KILLER and I can just imagine what you must be going through. Hang in there and hopefully they can figure out what is going on with you really soon!!...
LOL... I think that professional is just a way of saying for commercial use for places of business like hotels. I can't stop laughing with Habs Potty Union Card!! =)...
I have not had on but my mother has experience with them. She has had 2 blood transfusions in the hospital because her hemoglobin was at a 4 if you can believe that. The doctors don't know how she...
Chronie... what does your doctor suggest you do with the fistula that you have now?...
I asked my doc about Humira and she said it was used after remicade for people who stop responding to the remicade. I would love to try something besides Remicade first. Hope it works and let me know...
I have been irregular since I started my period and since I have had the symptoms of this disease since I was little, I can only imagine them to be related. I am consistent with the number of days...
Oh I am so sorry, I feel your frustration! It is unbelievable what we have to go through with these doctors! They stress the importance on not flaring and when you do flare controlling it and...
Has anyone used Remicade to heal a Fistula with or without a plug and how long does it take to heal??? I am considering it. I thought it would take years since they say that they are very tricky to...
First off, Welcome! Second of all, you can't do this to yourself. Everyone of us has a different story to tell with Crohn's. It doesn't effect anyone 2 people the same way and as much as you may hear...
A lot of people have been pregnant and still had remicade but my doctor does not agree with it because there is no studies to show what long term effects it can have on the baby. She is head strong...
I swear I trust what I research far more than what these darn doctors tell me! I sent an e-mail to my doctor regarding my fistula. I just went through a flare that I controlled within a week with...
You need to see a doctor if you suspect that it's an abcess. I had one right above the butt hole in that tail bone area. It was VERY painful and it slowly got worse until I couldn't walk anymore of...
You're welcome! Fortunately for us we have this site because if we simply rely on our doctors then we would be up a creek without a paddle! =)...
Fissures are tears in the lining of the anus. I don't believe they can turn into anything. They can run deep and often expose the muscle underneath (one of mine is). A fistula is a tunnel between 2...
Unfortunately, people who don't have this disease don't know what goes on with us. I wouldn't wish this upon anyone but I wish that people around me would have to deal with what we deal with for just...
I was at work and I didn't have any more pills on me. Only a small bunch of beads fell out. If it would have been the entire capsule then my garbage can would be rattling away!...
Well my Dr. just e-mailed me regarding my Flare-Up. She is going to call me so I don't have all the details yet but she is suggesting a short course of steroids...what does that mean? I am thinking...
I would agree with your GI on this one and get another opinion from a Colo-Rectal. An abcess is a bubble of infection. There can't be anything going through that bubble such as poop. I had the abcess...
So on top of everything else we have to deal with, now we have to watch where we put our pills! I was holding one of my Pentasa pills on my lips because the other one accidentally broke open and I...
Thank you for letting me know that I am not the only one with that pain. It's so frustrating because it just comes out of no where. I hope you feel better and we get out of this mess. One thing for...
Thanks. My answers are usually ones like yours. I don't ever go into detail unless they ask and even then my details are usually that my butt hurts or I need a new one. They want to hear me say that...
Hi and welcome! I only tend to lose my appetite in Flares and because of the problem of mal-nutrition, I always have my Ensure bottles handy. They might not make you hungry but atleast you know that...
Well after feeling the best that I have EVER felt in the past 2 weeks....I am back in a flare! I was doing GREAT! My Fissures were finally starting to heal, my fistula wasn't painful and I had NO...
I completely know how you feel. I have 2 of them as well and one is cut open all the way down to the muscle. It feels like Razor blades every time you go. Did your doctor ever try flagyl or cipro? I...
Sounds to me like you might have an abcess... Mine started just like that. A bump that was very very sore, I waited about a week and half and the pain was so bad that I couldn't even walk. It also...
Nanners- LOL! I forgot to ask her if while she was down there she could work on a few trouble spots around my eyes! clickchick- That was my Colo-Rectal's opinion about the fissures but the meds...
My history: I was DX in June. Developed 2 fissures in a period of 2 weeks. They got better after a month of being on meds then they just took a downhill spiral. For the last month it has been...