I commend you for being proactive. I fought having surgery until I literally had no choice. I have a loop ileo but I do have chrons. I've had it since 09 still holding on the the slim chance of being...
I have had pg. Wound care specialist almost had it scraped! Don't do that! It loves trauma and will spread. What worked for me was aczone (which is an acne medication) and unfortunately prednisone...
Just wondering if anyone has been prescribed this type of taper? The doc recently recommended I do one day at 5, skip a day, then one day at 1mg, then the next at 5 etc So my schedule would be as...
Hi E Mom, I have crohns...just yesterday was told crohns/colitis. I havent heard that term ever since i was diagnosed in 96. I have a temp ileo (for 5 years) Was symptomless until a month or so ago i...
Hello all, I was just wondering has anyone had both a colostomy and ileostomy. Not at the same time, just at one point or another. After my scope today, doc wants to take my rectum :shocked: needless...
Iv had crohns since i was a preteen so if you ask if it helped as a teen, i couldnt remember. I can only remember all the horrible side effects. I know it permanently affected my eyesight and...
I have several setons but they are not thick. they are like thread. I had to get them tightened after a few years so i asked my doc too things. could he give me something a little more flesh colored...
Hi all, Its been a while, but its been a pretty bad medical month for me, and as i was sitting stewing i remembered that healingwell always has great info and makes me feel better in that you guys...
well i have one and i have an ileo but i still experience odor and don't know what to do about it, its really effecting me mentally and emotionally...
Hi its been a while since iv been on hw due to work, but its the only place i could think to go to get a real answer. For those of us who have temp ileos and rv fistulas. Have u experienced odor? and...
Ok so i know that some of us who have temp ileo's and still have our rectums kinda feel the urge to go and have some output. but how often does this happen for u? lately iv actually been having gas...
hi! im sure uv heard this already but i just wanted to chime in about the changing of the bag. When i first had my surgery, my mom had to help me, i couldnt do it without crying and gagging, and it...
thanx guys! i will see what i can figure out...
Hi all! Its been forever and im glad to still see the same old folks that encouraged me and got me thru this thing when i first got it two years ago! Im glad everyone is well! The school year is...
sunshine i'm just like u! i was always the one in the bikini and i had the same fears, what i did was get the one piece with the cut out. u know it looks like a bikini in the back and is kinda open...
i'm so happy for you! i remember that u were looking and look at how u ended up in ur field and on the beach! enjoy ce ce!...
i do chef salads...the lettuce is already shredded. with cheese, ham turkey and thousad island dressing mmmm....just thinking about it made me hungry...
o! ohio! they sent me the wrong size too, and then when i called to get it corrected they sent me convex! lol the lady says b/c theyr so new theyr not in the catalog yet...
haaaay sammie!! i replyed to one of ur previous posts to check and see how u were! u've had ur reversal right? i was asking questions about how its going. i'm pretty sure i still have the fistula so...
ur stoma will b extra sensitive the first few weeks, u'll feel everyyyyything, it shouldnt hurt tho. as ur body gets used to this new thing hangin outta ur belly, u'll feel it less n less. if its...
bump i'm about to burp this bag tonight cuz i dont feel like changing lol...i hope i dont leak tomorrow at work...
Hi all, question for those who use the sensura flex. ONe is, can u burp this thing? i have it and i love how much more discrete it feels, but i get gassy i want to know if i can burp it. Also, when u...
please do!im excited! especially about the darker colors!...
i love bubble wrap too!...
put tape on what part summer? if u put tape on it, doesnt it cover the velcro? im having trouble fixing it. pibbin, the water isnt very feasible when im at work, in a stall and rushing to get back to...
yea i posted about this a while ago, and i pop them too! lol sometimes the bubbles are really big but i dont pop those until im home and know im about to change, just to see if theyd leak if i did....
hey guys so i was tryin this new hollister new image for the filter, and i guess its working pretty well but its hard to empty. It seems i cant empty it w/out gettin "stuff" on the velcro, and the...
eakin seals!! learned about them here, have used them ever since, they come in big rings (the ones i order) or strips. and u cut them into trips ( i just tear them w/my fingers) and u place them...
thanx chas, i got so frustrated i just ordered a box of what seemed like the smallest, i think the color code was red, b/c i couldnt find a green flange that was not convex. the company wasnt...
19mm exactly and no u dont want a flush stoma...
hey all im on the website, trying to reorder the right size, but i can't find n e product numbers on the website. i see them on the edgepark website, but the sizes are confusing me. ne suggestions?...
hey guys, im on the website and trying to figure out the right size i'd need. but i dont see product numbers. whats up w/that? coloplast doesnt show product numbers? i can't remember how i got the...
so pibbin when u say change twice a week u mean the flange and the bag? or just the bag? what about burping it? have u tried?...
i think mine is rather self explanatory too, when i found the site i was doing everything to avoid the surgery, i was praying really hard to be healed....still am...
hey lipgloss! believe it or not uv been on my mind, if u dont remember, i think u had ur surgery not long after mine, and now ur getting ur reversal before me! while im extremely jealous lol i'm...
hi pibbin! how do the filters work? do the bags hold air?...
i just wanted to ditto everything already said, my ileo has just turned a year on the 29th and i thought i would b rushing to get it taken off as soon as the prescribed 6mos was up, but my quality of...
vette guy beat me to it, my grandfather always taught us steel wool as well...
amc, my situation is different b/c i had crohns, so constipation definitely is not my issue but just wanted to chime n on a few things #1 at the end of the day it is YOUR body, a theory i had to get...
Hey all, Its time for me to order supplies again, and i wanted some product codes. I knew my fellow ostie's would b able to help me out :o) I wanted the product numbers for the hollister flanges...
don't worry, i missed it for a while, and actually, after my surgery, mine got lighter and shorter, which was a relief to me...
bbgirl, does it really hold when it fills? especially w/the liquid? when its mostly water? does it pull or seperate any?...
hey chas, if its the clicking type it definitely is a rookie mistake. i had my bag come off in target! with no spares! when i was going swimsuit shopping! but i got through it...definitely make sure...
guys let me know how it goes! i use the exteded wear coloplast...but im curious and may wanna try some samples...
chas, i know this is a semi old post and i havent read all of the responses, but i want u to know that i know how it felt to have the prednisone make u feel ugly and unrecognizable and a little crazy...
o and u can put sure seals over ur wafer to protect it from the water!...
chas u can shower w/out the bag, i prefer to shower without either...the bag or the wafer, it gives me room to breath and makes me feel a little "cleaner" im glad ur enjoying the hollister, i tried...
ohio...u sound like me lol i can't take imuran b/c they found a spot on my liver or something my bottom is really diseased too, i have 4 or 5 setons now, i lost count (btw the strings are soo long,...
thanks jules and ohio jules, itll b a year on the 29th, i havent had n e intestines removed at all. i do have a stricture like right b4 my anus or right at the end of my intestines somewhere. the...
Hey all, i know its been a long time since iv written, but i check in often. just finally working with my career( teaching) and the long hours and everything has kept me extremely busy. N e way, the...