Hi! I was on Humira bi-weekly injections for 1 year and had very positive results, a colonoscopy done a year after I had been on the treatments showed that most of my numerous ulcers had healed and...
Hi everyone! I have had progressive lower back pain, hip pain, back pain when I breath deeply, it's gotten worse the last few months. I haven't injured myself in any way that would cause the back...
/community/emoticons/smhair.gif I started a new job which came with new insurance, Blue Cross. I have been taking Humira for over a year now with really great results, my bm's went from a dozen...
Stem cell transplant for CD...wow, that sounds really extreme. Is this where CD treatment is headed? That's really scary stuff....
Thanks guys, I appreciate the support. My GI started me at 40mg Pred per day but am now down to 20mg per day and in 2 weeks will be off the Pred completely. I also take 9mg Entocort every day. I...
My GI put me on Prednisone 2 weeks ago and besides the weight gain (11lbs) my emotional state is in the crapper now...I'm depressed and moody, pissy about everything, feeling really down and out. Is...
/community/emoticons/yeah.gif If I didn't take my Effexor every day I would be a walking, talking "bi-polar" bear (i'm not bi-polar though), I know this because I recently had to stop taking my...
I think that is really crappy how your family is reacting to your disease...that's simply shocking to me. How can they get mad at you because you are ill??? Do they realize the absurdity of that?...
Dorri, I think your idea of letting us know what you're eating daily is a great idea, good for you and good for the rest of us in the forum too. Keep up your spirits Dorri, increase your eating a bit...
For me Humira has been a God-send. My BM's are down from 15x day to approx. 2x per day, give or take. My last colonoscopy showed that almost all ulcers in colon had healed. I tried Remicade but after...
I don't complain about my CD unless I'm feeling incredibly crappy so people around me get this false impression that I must be feeling fine...well, I'm not-I just choose to keep the pain to myself. I...
I have been on Humira since October '07 and the only side effect I have ever gotten from it is random days of itching all over my body, usually once or twice a month. But I just take Benadryl and it...
I have been taking 75mg. Effexor for a few years now and have been on Humira since Oct. 07...no problems whatsoever....
Chronic ear infections my entire life-still to this day. No other childhood illnesses that i recall....
Thank you Lynn, I appreciate the support!...
dragonfly, I agree with some of the other members; sexy lingerie and soft candlelight will hide a multitude of "flaws" and make you both feel less self-conscious. I suggest reconnecting slowly with...
[i][color=blue>Good] IBD. [i][color=#0000ff> [i]What you all may not know is that I work in social services in the state of Florida, so child abuse prevention and child safety is incredibly...
When I have had an abdominal CT scan they gave me some fizzy stuff that kinda tasted like orange soda, and I drank it before the procedure. It was nothing compared to the barium I have had to drink...
I would absolutely be willing to try this procedure for my CD if the research indicates such a high success rate of total remission. Like Jeannie 143's friend who used her infant baby's poo, I would...
Does anyone know what part of the intestines is about 3" above the belly button? I have been having significant pain in that area which is unusual for me because my CD is usually in the lower right...
Just got my period last night and (as usual) it's accompanied by CD symptoms 10x worse than normal, as if "normal" isn't bad enough. I am so p****d off because I have a date tonight that I am really...
I was actually wondering the same thing myself. I have been on bi-weekly Humira for 6 months (plus 6mg. Entocort) now and up until a few weeks ago was touting about the wonders of modern medicine...
I noticed that when I lowered my Entocort dosage from 9mg per day down to 6mg per day that the irritability and mood swings decreased quite a bit, but unless I go down to 3mg per day my libido is...
My Gastroenterologist told me to never stop taking my Entocort cold turkey, I don't think you should ever stop any medications cold turkey, best to taper down slowly over the course of a few weeks....
Been on Humira for 6 months and no shingles, thank goodness. I feel so bad for those of you have suffered with shingles. Take care everyone!...
I have been using Humira now for 6 months and I haven't had any hair loss, but I take a women's daily multivitamin which has really made my hair and nails stronger. I hope you find the answer to why...
kgirlie, I can't speak for everyone but for me the Humira has improved my quality of life by 75%, meaning I feel 75% better than I did before I began Humira last October. My colonoscopy in January...
I have been on entocort for about 2 years now, started at 9mg daily but now am down to 6mg (cuz I'm also using Humira). For me Entocort has been a life saver! The side effects are minimal and it...
straydog, Strong possability of fistula...please have your GI check soon....
misspriss, I can't speak to the Asacol question but I have been on Entocort for 2 years now and have never had any weight gain or acne from it. Only side effects I've had with Entocort were mood...
Fantastic article, thank you so much for bringing much needed attention to IBD and the tragic way that chronic illness changes a person's quality of life in every conceivable way. Thank you again!...
I was scheduled to have my bi-weekly Humira injection yesterday but I am in the midst of a really bad cold, actually it might be bronchitis, not sure but am going to see PCP tomorrow because it's...
Thank you everyone for the good advice, I really appreciate it. My new sup'v won't begin work for a few weeks so I have some time to decide how best to deal with it. Thanks again everyone!...
Hi all! My sup'v, who is fantastic, has accepted a new position elsewhere. I will be getting a new sup'v in a few short weeks. When should I tell her about my CD, and what's the best way to discuss...
ski bum, I have been on Entocort since March 2006. My GI tapered me off of it twice and both times I got partial obstruction and several abdominal pain. Entocort seems to be the best way to handle my...
nikki, I had a terrible reaction while on Remicade, after my second treatment, and had to discontinue it. Then about a year later I asked my GI about Humira, he had never treated a patient with...
kgirlie, I am so thankful that you are finally feeling better. And what a great attitude you have...I hope it's contagious ;) Best of luck, take care!...
Thank you all for your words of wisdom! Every comment has helped me put it into perspective. I know that any guy worth his salt would not dump me soley based on my having CD. My issue is that I'm...
I started dating a new man, we've been out 3x and plan on seeing each other again this weekend. My question is when should I tell him about my CD? I hate bringing it up but part of me thinks it's not...
.com/od/discoveringyourdiagnosis/a/3resolutions.htm]http://patients.about[b] .com/od/discoveringyourdiagnosis/a/3resolutions.htm Check it out! Also visit http://www.everypatientsadvocate.com/ Tons...
Your PCP sounds like quite a b***c...no offense. In answer to your question in general; are there any compassionate Dr's out there? In my experience...no. My PCP is pretty cool but even he could use...
Crohnie 1985...I use the baby wipes that are flushable...just make sure it says on package "flushable", I've never had any problem with them and they are oh-so refreshing...haha....
Does anyone know symptoms of vaginal fistula? Is a fistula always painful? Just curious...thanks!...
/community/emoticons/yeah.gif So glad to hear that you are having good results with the Humira treatment! I have also had fantastic results with the Humira, I've been taking it about 5 months now...
I agree with Meshice...you are one heckuva friend to care so much about her that you seek advice on how to support her emotional well being. How fantastic. Well, you've already won half of the...
Yes, the only side effect I have gotten from Humira is the all-over itching, for me it starts a few days after my injection, and lasts about 24 hours, and then I take some Benadryl and it goes away,...
Nikki, Try not to be embarassed when you see her tomorrow at work, I would just not mention it at all. How were you to know your e:mail had TMI...so don't sweat it. Actually, it was pretty bad...
[i]Janet, [i]I cannot tell you enough how moved I was by your post...what an amazingly strong woman you are, you still remain positive throughout your horrible ordeal. You have inspired and humbled...
hukelberry, Please write and let us all know that you're okay...we're all worried....
Trsora, I have been on Humira about 4 months now and besides feeling 100% better I have also gained about 10lbs recently. The Humira has brought my D down from a dozen times per day to about 2x per...