I've heard it. I've read some studies in a few journals as well. Doctors don't all agree on this but there tends to be a slight overall increase in risk if you have IBD. I'm one example - I had a...
I've had a two. One was without notice (they decided while I was there to do one). Obviously there was no prep or warning for this. I was not numbed in any way. It was not pleasant but it was fast...
I'm currently on a double dose of Remicade every 7 weeks... my doctor told me they will continue to change the frequency down to every 4 weeks as needed before moving to something new. I started the...
I'm a PhD student right now and would be willing to answer some questions but I do not envision a 1-1.5 hour block available for helping on the phone. If we could do something via email or some other...
When I was first diagnosed in high school, I would get really hungry and after taking a single bite, even of my favorite foods, I would feel as if I had eaten a huge meal. This lasted for months and...
when i was on 60mg prednisone it stopped some of my symptoms worst but made me impossibly moody, bloated, extremely crampy and overall miserable. when i tapered off and was done, i felt a lot better....
sorry medchrt, in retrospect that statement was misguided on my part. crohn's does not respond to treatment for m. tuberculosis but it's been clearly shown that m. paratuberculosis does not respond...
willj - I agree that JHT is not pursuing something he does not believe in and he is not wasting his time by having the patent and doing this research. However, time and effort spent researching...
$rules, I do think it's an interesting line of research and an intriguing possibility that there could be some truth to what Hermon-Taylor is saying. I would not be so quick to jump for joy based on...
Funny - after I had a DVT in my knee I did a research paper in college on the connection between IBD and clotting and found lots of scientific journal articles linking the two (based on similar...
I was on Remicade for 2 years and had to stop for 6 months (which was ok because I was more or less in remission at the time). A really bad flare ensued and i was started back on Remicade - my doctor...
--can you drive yourself to and from the treatments or does someone need to be there with you? My doctor tells me that I am supposed to get a ride home (because of the benadryl) so I always tell her...
I was diagnosed in 2001 (age 17) 1. how long have you been on it? I've been on Remicade since August 2005 (with a 3 month break in 2006-07) 2. How long does it take to start working? I went from...
I was diagnosed with Crohn's at 17 and am currently in my 4th year as a biochemistry grad student. In the summer before my first year here (age 22), I had a stroke and was hospitalized for a little...
I was off Remicade for 8 months and started up again because of a return of symptoms. They needed to double my dose to have it be effective but I've been fairly under control ever since....
Wow, I really like the description of "clawing" like the scene in Aliens - I describe it to my girlfriend (now fiancee) as a twisted up turkey claw grinding against my sides but it's definitely a...
I had a crazy itchy rash that was sporadically localized on my fingers, elbow, forearm, leg, belly, and feet. It was after a Remicade infusion & consisted of patches of small red super itchy raised...
maybe i have too much faith in society but I would hope that people don't define you simply as the person with Crohn's. I'm sure you have more to offer than that and nobody would be disappointed...
Gee I wish I could've gone to an all girl school /community/emoticons/tongue.gif you can be attractive and have Crohn's.. or else my girlfriend has been lying to me! what happens in the bathroom...
I think you should at least see if it is an option. There are people who specifically deal with issues similar to this and I'm sure they would accommodate you if you ask. I've seen it happen at my...
I was in a single & it was not like this at all. You don't need to be in the same room as people to have friends! there are students everywhere and, honestly, it is highly unlikely that you will...
As far as waiting goes - I personally would not have been able to live with my parents any longer and my Crohn's wasn't going anywhere so I saw no reason to sit on my decision. I had a stroke 2...
I had an extremely bad flare Junior year and missed a couple weeks of classes but my professors knew me well and were aware of my situation and let me finish up the work over winter break. And I was...
I'm a grad student - that almost counts except it means I'm banished to an antisocial life of working in a lab all day. But I finished undergrad 2 years ago so I think I remember how that went anyway...
I was not flaring at the time of my clots. The first one in my knee happened after I tore my ACL (playing dodgeball in college - guess I deserved that one). They thought it was just trauma-induced....
I'm one of the people who the increased blood clot risk has affected :( Oddly, I did a research paper on the connection between Crohn's and increased clotting a few months before my first clot and...
I refer to it as a "turkey claw" because it feels like a large multi-pronged talon twisted sideways and persistently scraping my abdomen. Sometimes I have one "turkey claw" on the left side and other...
Fortunately, Remicade has been able to mostly control my symptoms for about 4-6 weeks post-infusion (I get double dosage every 8 weeks). The last weeks before treatment are always dangerous for me,...
I got my first blood clot in my knee when I was 21 and in college and did 3 months of coumadin treatment. They took me off and I had a near-fatal stroke that summer and needed brain surgery. I also...
well i certainly hope everything works out ok - and just an added bonus, I also had my platelets destroyed (heparin-induced thrombocytopenia) & needed a whole bunch of bags of blood & platelets....
Honestly, don't take this lightly. The same thing was happening to me in addition to a beyond-severe headache and overall general confusion. I passed out in the shower and had vision problems,...
I've been getting infusions for 2.5 years now and the only "reaction" I ever had was a tiny itchy rash at the infusion site that went away after a few minutes. I usually get benadryl beforehand,...
At this point I consider remission any period of time where my symptoms still persist to a lesser extent but they do not prevent me from enjoying my life. If I get a full month of this, I consider...
I didn't get a clot in the lung (yet) but I did have one in my brain, knee, and several in my liver last year. It was not fun at all. I spent a month in the hospital in the stroke unit and I'm now on...