My Daughter was diagnosed with Crohn's 12 years and it wasn't until today that I learned of Ben Morrison, Comedian and Crohnie. He was nominated for a much deserved Classy Award for Volunteer of the...
DP Parent's Board is back up and running again!!...
What City are you in? Wondering if County Health Department (Wayne, Oakland, Macomb) could be of assistance. I know getting Medicaid is no easy task. My Sister tried and was turned down because quota...
My Daughter used the online route for buying glasses. She manages to lose her retail store glasses too often which is a big waste of $$$. She was quite happy with her online purchase. She is single...
{{{hugs}}} to you!! Need to ring that Nurse and let her know you can't afford Humira. Maybe Remicade would work out better financially. Remicade has an assistance program and I think one in...
tsitodawg - I can't say that I know the exact number of her double and triple doses since she lives out of town and I no longer accompany her to the infusions. I just assume double and triple is...
This is year 7 of Remicade for my Daughter. It has lost some effectiveness over the years to where she has had it upped to double dose and currently at triple dose. They would like to increase to...
Jermaine, I am going to go a little off topic here now that I know you and your roommate are College students. Don't know if you are Freshmen or not. College is stressful and create much havoc for a...
Dorm room cooking is a bit limited. I know there were only bits and pieces of Campus Meal Plan my Daughter could eat without stirring up the guts. She wasn't much of a cook either even with a...
Jermaine, you are a really good friend. There is no way to be totally prepared because there are just so many different factors between patients of IBD. Not all cases are the same, not all suffer the...
Moms are always right especially a Mum (You) who has IBD herself!! My own Daughter had similar symptoms before diagnosis. She suffered from chronic constipation since birth. Her Ped kept writing it...
So sorry that you have to be here. The following is also a great forum for support especially for Parents of Young IBDers: http://www.dragonpack.com/ibdsupport/parents/ ...
Are you at risk of becoming Homeless as a result of this divorce?? Definitely seek out resources in your area that help single women and children with little or no income get housing, education, a...
flowery, Have you thought about getting out of the house a couple of days a week by Volunteering at an organization or place of interest to you?...
Hard to say how your GI might want to handle it. Back when my Daughter started Remicade she got the 3 initial loading doses and then an infusion or two after that and then had to leave the country...
Thought the same thing when Remicade was proposed to my Daughter at about year 3-1/2 of non-remission and suffering. Did take our time to think it out. It was scary to us at the time. Looking back...
Not a bad idea to have someone with you for first infusion and possibly subsequent ones. When my Daughter still lived in Michigan either myself or someone else would go with her as she would be...
Having a bathroom emergency is a fact of life whether an IBDer or not! Granted a little tougher in a public setting with an immature, drunk audience. You are head and shoulders above those girls in...
I started perimenopause at age 40 and so did my Sister. Kind of young, yes, but our Mom started at 39ish. My clue was that my monthly changed and was erratic. Heavier than normal, sometimes 2 a...
You are going to get a whole lot of different answers as to what cost is. No cost to my Daughter because her insurance picks up the cost. The cost varies widely across the US to my knowledge. The...
I don't know if this will help any but in the beginning years of Remicade for my Daughter it actually enhanced her Immune system and she was better able to ward off colds, viruses, what have you than...
My Daughter has been on Remicade (single, double & currently triple dose) (Imuran & Asacol too) for 7 years now. She has not gained one ioda of weight from it. But then again she really did not gain...
PV, Yes my Daughter has had some success when taking allergy meds from triggering a major onset flare but still had some symptoms as if she was getting ready to spiral into a flare. I've read that if...
Yay! Someone who is familiar with Meijer! Unfortunately Meijer is not a nationwide chain. They have the BEST produce and fruit section at reasonable prices even when not in local season. Huge fan of...
Sometimes it is a terrible Catch 22. My Daughter back in the early days tried going without her meds because she felt worse on them and ended up feeling even more worse. Then when she finally got on...
Hmmmm. Another good reason that the Parents of IBDers Support Board might be a handy tool as there are some Parents there from the UK. This is from Crohns Colitis UK Foundation:...
A 504 Plan is an educational plan that can be put in to place when IBD or other disabilities interrupts the life/education of a student. Normally used in grade and high school. In College it is...
So sorry about your Mum. Are you possibly eligible for a Food Assistance Card or assistance from a local Food Bank? Can possibly your Dr. refer you to a Dietitian or does your Dr. have one on Staff?...
I sort of agree that it is best not to look on the internet because it is scary for Parents new to IBD to read all the worst case scenarios. I did and my Daughter was already 17 and it was pretty...
From my own Daughter's experience and many others that I have read about over the past 11 years, Fall and Spring can be really wicked for IBDers which also happens to be the Allergy seasons. Young...
MMMNAVY, IBD definitely has affected "learning" for my Daughter. Before IBD diagnosis, brilliant student, found school and advanced placement classes easy. Graduated High School with Honors which...
MMMNAVY, You are so right! There are some old school Professors out there. My Daughter did have one who felt he could lower her grade due to absences despite her being registered with Disability...
I am hoping that the author of this post did not literally mean "to my advantage" but looking for what help may be available for an IBDer on Campus trying to accomplish an education whilst sometimes...
As long as you are registered with Campus Disability Services or at some Colleges it is called Vocational something or other, your Professors cannot give you a hard time about much as they have to...
I did address this issue in a different post of yours: Mike, Freakin Ouch! You got diagnosed the really hard way!! My Daughter was diagnosed right before she headed off to College and even being...
Mike, Freakin Ouch! You got diagnosed the really hard way!! My Daughter was diagnosed right before she headed off to College and even being treated with meds, was not a comfortable experience. In...
mastersmom, Good post! Exactly the way I feel! I have researched everyday for the past 11 years and pass on all the interesting stuff to my Daughter. It is my way of helping even though I can't...
All depends on the protocol of the GI I would think and where a patient is in their IBD. Cannot tell you how many times my Daughter has felt great at a regularly scheduled follow up appointment only...
I've always been confused about my Daughter's IBD meds. Her diagnosis was definite Crohn's/Colitis. For the first 4 years she was on Pentasa with Rowasa enemas and Prednisone thrown in from time to...
I AGREE! This thread totally swayed from the original question being asked in this post! It's got nothing to due with parenting skills at all. sr5599, your reply is wonderful and spot on! Mom, I have...
This is the Board for Parents of Younger IBDers below. This Board itself is wonderfully fabulous but is definitely scary for a Parent of a young IBDer. I have been a member of the Parents Board for...
I know that heat can stir up "D" symptoms in my Daughter and she is normally a more constipated IBDer. I agree that it is a good thing that your Son was feeling up to golfing. My Daughter tries not...
Even though my Daughter suffered from chronic constipation as baby, child and teen and was possibly pre-disposed to IBD, she was healthy as heck until age 16 when she was injured severely as a...
My Daughter did the same when starting a new med or when getting back to med she had forgotten to take for awhile. It takes the system a bit to get used to a new med or a reintroduction of one that...
Welcome Mom! I too am a Mom of an IBDer for the past 11 years (Daughter, age 28), been in your shoes and still in your shoes in the concerns and worries we have for our kids. I also belong to the...
You are definitely a STAR! And a Keeper! My Daughter sounds a lot like your girlfriend. When her IBD is not acting up she is unstoppable and when it is acting up she withdraws as not to be a Party...
Grab any moments you can (breaktimes, lunch) and go someplace else in the office or building. Outside maybe for a short walk and fresh air. Sit in your car, close your eyes and listen to a relaxing...
Yes, My Daughter (age 28) has Crohns/Colitis (since age 17) and does carry one of the strains of HPV. This found out while she was getting ready for the HPV vaccinations at age 26. Her Gyn had her...
Crohns/Colitis is more of the lower colon/rectal area. My Daughter's GI diagnosed her with Crohns/Colitis at first appointment with him at age 17. Just her symptoms alone was good enough indication...
Is definitely an icky feeling when you have to pitch good meds that would benefit someone else. Has got to be a better way!! I was able to pass on a good amount of Pentasa (Manufacturer's bottle size...