Hi Rblock06, I haven't posted on this site for years but I have a wife and daughter with Crohn's and treat it with SCD and antibiotics. We know Dr. Chamberlin and know of Dr. Kuestner. I hope you...
Reef08, No, I was not on the anti-MAP protocol. My wife was on it but had bad reactions to both the fluoroquinolone and rifabutin. That was over two years ago. Today, she remains on a variant of that...
Dear Jay25CA, If you want to email me privately, I will give you some possible ideas on obtaining clofazamine. We went through the FDA stuff several years ago but ultimately the doctor didn't want to...
Dear Crazy_Daizy, Just a quick thought on your Anti-MAP therapy. You mentioned three antibiotics, Levaquin, Clarithromycin, and Rifampin. Please be sure that you are supposed to be on Rifampin. All...
Hey Dietcoke, If you want to email me privately, I would be glad to provide you with a variety of options, doctors, etc. We live along Rt. 495 in the Concord, Carlisle, Acton area. My wife has had...
Here is the link to a very good BBC documentary that aired yesterday. http://www.bbc.co.uk/wales/programmes/sites/weekinweekout/index.shtml After reaching the site, click on the "Watch the last show"...
Amandaa, Based upon your current situation, I would recommend you try to join the Low Dose Naltrexone trial with Dr. Jill Smith at Penn State Medical School in Hershey, PA. She is a world class...
Hi Jusdebbie, My wife is in the same boat as you except she has had multiple resections and surgeries. We are very familiar with treatments that are outside of the immunosuppressant and...