LOL!!!!!!! LOVE IT! Totally posted that one on my facebook :) People can be so ignorant- at least we can laugh about it!!!...
I started Humira last year and while I was taught at an angle - I notice when I put it in my thigh it hurts SO BAD and bubbles up there. Reading this post makes me realize that yeah its going into...
I know my username is theres hope but lately been losing hope.. until finding they use stem cell treatments to treat RA and other auto-immune disease... Any thoughts/ experiences?!...
the elavil (amitriptiline) makes you drag until its at a good level. I just got off it, switched on to cymbalta, but it totally made me dopey. The pain keeps me up at night and the med doesnt help. I...
I was told that and I did switch to natural toothpaste but that stuff was awful.. I need my teeth! Bad enough to have a belly thats out of wack, dont need a messed up grill too.. So not attractive....
kerastase is AWESOME shampoo, Nioxin just goes deeper and I would actually use both.. use the nioxin often when you start then integrate the kerastase and eventually use the nioxin 3 or 4 times a...
I have experience hair loss due to malnutrition and used this shampoo called "NIOXIN" and it helped me a LOT. I have been in the beauty industry for a little over a decade and this is the only...
I have been taking Nurotin for about a year now and have had great results with it! It doesnt bother my stomach and makes the pain tolerable so I can function. The Celebrex KILLED my stomach, I wish...
UPDATE So I spent the entire night until the crack of dawn in the ER yesterday due to increased pain and pain in my upper left quadrant in addition to the lower left. My stool got pencil thin and the...
lilcrohnie, have you told your GI about this? Makes me a little nervous that its some kind of allergic reaction because I am allergic to codeine and while it makes most people down it wires me out...
hey, I think your friend needs to go to a GI dr or a better hospital, the sooner she gets a diagnoses the sooner she will be on her way to recovery! Nice of you to be so supportive of her, I am sure...
jtaylor- Probiotics put back the healthy bacteria back in your intestines so you can absorb all your nutrients properly (at least that is my understanding of it!!) CD leaves your intestines clean as...
I have used Primal Defense Probiotic for years and my doc just gave me one I like called Align. Probiotics are VERY important for anyone with CD - I ask my GI for samples :)...
Yellowfin- I also share your skepticism of the medical industry, seen my fair share of loss, and the more people I lose to cancer or other illness the more you wonder how dedicated the DRS are for a...
I find my remicade wears off the last week or two and my doc also is hesitant to increase the dosage or do them more often saying there are more risks that come with that. It works for me most the...
I've been on Remicade 2 years now and am looking forward to staying on it as long as I can. Love this stuff! Doc tells me I am on it "indefinitely" so I think that means until I start rejecting it....
doing the things you want to do even with this hard and at times embarrassing illness is how you stay in control!! I am a HUGE football fan (well they call it soccer here in the us but I still...
Great to hear you are doing better and able to get out and have no accidents and be fearless like that. I hope you are able to do a lot more of the things this illness held you back from! congrats on...
thanks gail, that is a comforting thought. i have a great gi dr and think that I may have said something early on enough to not let this one go as far as the last one. I will let you know what the...
I'm in New Haven Connecticut...
I get through work by working a part time schedule so I can sleep the days I have off in order to pull off working so hard. I drink coffee which I know is bad but hey I need to do something to feel...
gachrons-I started Remicade 2 years ago.. thought it was a saving grace as it gave me back my quality of life. My GI thinks it can be a lot of things, have a history of pancreatitis so has to check...
haven't been online in a while but really upset and need to talk to people who understand. I have been having horrible sharp abdominal pain in my lower left quadrant where my flare was at its worst...
prof I am SO SORRY to hear you are going through so much. I agree, cancer is a scary word. And with everything else your body is going through it must just be hell right now. I am here if you need to...
aww that was nice of her, don't you love when people understand?!!!...
I would have a black bean burger from Chili's (it was my FAVORITE) with fries and some corn on the cob... OH and CHILI!!!!!!!!!!!!!!...
Just looking for some advice regarding disability. I applied and did my phone interview and now I have to fill out this paperwork that lets them determine if I can work. It asks things like, what do...
I have the same issue. I had a port o cath put in during a hospital stay last year and it was a god send. Not only do you not have to be poked a million times, the medication does not burn going in...
Please get to a hospital, call the ambulance if no one can take you down. I agree with everyone else, and keep us posted!! God Bless...
(((((((((HUGS)))))))))) Love and Light! Sending you prayers.. I am so sorry to hear about the loss of your daughter Sarah, I know that it must have been a very hard day to keep all of that in. I can...
Yeah I have a phone interview also. Thanks for the advice, I always know where to use the bathroom along the way! If I get denied I will definitely involve a lawyer and try again. A lot of people say...
I am in CT Actually I am dating a lawyer so I get the good advice :) and the support from him! I am lucky, but I can't have him represent me which kind of sucks. My interview with SS is on Monday!...
I was having such bad symptoms around that time every month and during flare it was nearly intolerable. I was put on Seasonale which is the birth control pill that gives you 4 periods a year to...
LOL Sorry I know it was not funny to go through but I am happy he is ok and the kernel is out! That is too much, kids do the craziest things!...
I just wanted to thank you all for helping give me the strength to ask my GI how he felt about me going on disability. He called me back today and he is supporting me 100% and said he will give any...
It usually takes me at least 3 days to get over the headache and fatigue, I used to get joint pain also but the last few infusions went much better. I have to be honest and let you know for me...
Thank you all SO MUCH!!!!!!! I am calling first thing in the morning as it is too late now. I can not thank you all enough. I agree, who would WANT to get so little to live on a month instead of...
I take 2 Extra strength Tylenol and a Claritin, both in pill form about an hour before I get infused....
I am so sorry, I know exactly how you are feeling but I don't have the added responsibility of being a mother and working. I also have a love/hate relationship with Pred. I wasn't able to get off it...
I normally sleep after an infusion, get some rest! Sleep is the only way to escape the headache for me personally :) I wish you the best...
I was wondering how many people here are on disability? I have to get a note from my GI and I am terrified right now that he is going to say "Just deal with it and get a job" or something like that....
Thank you for sharing, I read a lot of books relating to CD and nutrition and I am going to get this book. I am hoping the Q/A will be good for friends and family who want to understand what CD is....
Ibuprofen is in a group called NSAIDs and we are not allowed any medication that is an NSAID because it irritates the digestive tract. I accidentally took one and I found out the hard way that it was...
I have been on Remicade about a year now. I have a tv to watch movies on at the infusion center so there is usually a movie on. Def bring music or a book or something cuz it takes a few hours. I...
Thank you so much for your replies. The Seroquel has helped me so much, I am feeling a lot better about life and not so in the dumps. My anxiety hasn't been overwhelming since I started and I am so...
I use the prep H wipes and sometimes will take a paper towel and put cold water on it and just hold it there to help the pain/itching. I tried the suppositories and they help a lot. I think you...
Hi all, I am a regular on the Crohn's Disease forum but new to this one! I have been put on all different anxiety meds and the doctor just put me on 100mg of Seroquel a day. Just wondering who has...
All I want for Christmas is my old body back! I have been working so hard to lose this steroid weight!!!...
Welcome to Healing Well, the people here are so supportive and it really helps to have people who understand something that is so scary and new to you. I know how you feel, we all do I'm sure. I was...
Crohn's colitis, Anemia, TMJ, Anxiety/Depression, Asthma, IBD, IBS, Gastric paresis, chronic fatigue, major joint pain, shopaholic, and I have bad veins....