My crohn's has been flaring for about 2 months now.. I'm on entocort and vicodin until I can make the switch to Humira next week. I am having HORRIBLE back pain on both sides, pressure/bloating...
I am taking the loading doses in about 2 weeks. I am also doing the pens and plan to use my stomach. I've heard the more flab the less pain.. I've got plenty of flab. I am so NERVOUS! I am petrified...
I had remicade treatments until 32 weeks with my second baby. Remicade is safe for pregnancy until that time. My daughter is almost 3, smart, healthy and completely "normal". The only issue would be...
This post has really hit home. I've always been an over weight crohnie and I struggle to lose weight. I work out, count calories and I can barely get 5 lbs off. I've been on remicade for almost 5...
I'm wondering what the "protocol" is for a second resection surgery as far as whether or not they cut you completely open again or will try laproscopic if they think it can be done that way? I'm...
I believe (and I may be wrong as I'm only speaking from my experience) that if your insurance isn't paying any of a claim, you are responsible for the total amount billed, not the reduced rate the...
I started having issues when I was 11 weeks pregnant. I had had many issues in the 10 years prior, but never knew they were GI issues. I was misdiagnosed with female issues because my pain was lower...
Because I'm in "remission" or as close to healthy as possible, every 3 years. I just had my "routine" scope on 1/22 and saw my GI for follow up yesterday. He said as long as I'm still feeling fine...
I just did miralax last friday for my colonoscopy prep. Basically same as what was mentioned above. Clear liquids the day before... 4 dulcolax at 3pm... at 5pm start drinking the 64oz bottle of...
I had no issues with concieving while on remicade. Actually we got pregnant the FIRST try literally. I also continued my treatments every 8 weeks throughout my pregnancy. My daughter is almost 14...
My GI's office doesn't put off an infusion unless I have had fever within 2 weeks. Everyoe is differnt though. Since remicade seems to hit me pretty hard for 2-3 days afterwards I would put it off...
I had an accident at the mall last week and I was so embarrassed I cried for about 6 hours. My stomach was upset so as soon as we got to the mall, we headed straight for the bathroom. When I got into...
My husband's work does not offer life insurance so we are getting it independently thru State Farm (who also covers our house and cars) and they quoted me at $80-$100/month for a $25,000 policy of...
Whenever I log into Healing Well and go to the crohn's forum listing, it brings me to listing of topics form June 20th. If I click on active topics from the main page before going into the crohn's...
First I just want to say that MORE and MORE everyday this disease pisses me off! GRR! I had a baby in Sept and about 2 weeks afterwards, I got an AWFUL headache. I was crying in agony for 6 hours. I...
This forum will be very helpful Jen! It has helped me in knowing there are others out there that are going thru the same thing as me and understand. I first got sick while pregnant with my oldest...
They were checked by my GI when they were bleeding awhile back and he said they were hemmroids. I used proctofoam and they got smaller and stopped bleeding but never went completely away. They are...
So I'm not that familiar with fistula's or how to tell if you have one. For about 2-3 months I have been having some "gas" that feels like it's coming from the wrong area in the mornings. I have been...
UPDATE: The most annoying thing about this situation is that the reason I had to change locations was because my insurance would only cover 90% at my old location which meant I had to pay $460 every...
When I used to go to my GI's building for remicade at the infusion room, it took exactly 3 hours from start to finish. I would pre-medicate with benadryl and tylenol 30 mins before my appt time, then...
I've never been given the option of being completely knocked out with anesthesia. I have only ever had versed and demerol for all 7 of my colonoscopies and I only remember about 10 seconds of all of...
I was dx'd with Fibromyalgia in 2003, three years before being dx'd with crohn's. I was having numbness and tingling in my limbs along with severe sleep issues. The Rheumatologist dx'd after blood...
In 2000 when my best friends brother got very sick and no one could figure out what was wrong with him, everyone thought he was going to die. He found out after 18 months of dr and test that it was...
You shouldn't get the remicade until you have been OFF of the antibiotic for 2 weeks. At least that's the "rule" with my GI/infusion room nurses. I'm sure every place differs in guidelines so you...
What exactly do you mean when you say you are "sick" all the time? My GI/infusion nurse always check (ask me) if I have had an infection or fever within 2 weeks of the infusion. If so, I can not get...
I had my gall bladder out yesterday. I have had a bowel resection and there was concern about cutting into that area because it's kind of "unknown" as to how things healed etc, but I needed the...
I had the M2A capsule test in Feb 2007. GI "assumed" it came out. Didn't see anything to worry about on pics. In April 2007 I went for a CT enterography as I was still having tons of issues....
The one thing I love most about this forum and reading the posts is that I never feel alone afterwards!!!! :) Several weeks back I was talking to my mother in law about being sick. She was asking...
I was dx'd with HPV in 2004, treated and have NOT tested positive for it again. I gave birth to 2 children naturally with no issues. Both Ob/Gyn's were very aware that I had tested positive for HPV...
I am having my gall bladder taken out due to gall bladder disease. My surgery consult is 3/31. I don't think you can have crohn's IN the gall bladder but I did read while researching online that...
I just found out on Tuesday that I have gall bladder disease. I didn't even know a disease exsisted..I guess I just thought that your gall bladder went bad when you got stones or something. I only...
You can do a search about remicade and pregnancy on this site and finds several posts with different opinions and thoughts. I took remicade while pregnant with my daughter who is now 6 1/2 months...
Well I finally got all the results back from the gall bladder tests that my GI had me do and I have Gall Bladder disease! I am so relieved that this is NOT a crohn's flare and it something that can...
Congrats on the upcoming birth!! I have a 6 month old daughter (and 3 1/2 yr old daughter) and this forum was awesome for me!! I had my resection 6 months before I got pregnant. Without the resection...
My GI is covering for another dr that left the practice so he can't fit me in. Normally there is a 3 month wait and I only had to wait about 6 weeks. I won't see the nurse practioners because they...
I have been in a flare up for about 2 months. I am waiting to see my GI on 3/5. I have never had a flare up really. I was sick for 2 years then had a resection and have had virtually no problems...
Update: I have been on the phone with insurance companies, drs and hospitals for the last 2 days. Come to find out, my insurance had been "coding" my treatments incorrectly for 18 months and I should...
Today I got an EOB in the mail from my last remicade treatment on 12/29. Apparently something in our coverage changed because I am now responsible for 10% of each treatment which is a little less...
I have a 3 yr old daughter who was paritally potty trained just before her 3rd birthday. She would pee in the potty and didn't have any accidents during the day (including nap) for about 3 months. We...
I had a resection in July 2007. It was an open surgery and I was in the hospital for 8 days. I was supposed to have a laparoscopic surgery but they ended up cutting me open because it was worse than...
I had one in April 07 and it was basically the same as mentioned above. I couldn't eat the night before. I went in and had an IV put in. I had to drink 3 containers of liquid which wasn't as bad as...
A friend of mine has a 2 year old son who has been having issues since he was born. A team of drs has not been able to dx him at this point. Some of his symptoms include: mouth sores, light...
Our stories are very similar it sounds like..except I was very sick during my 1st pregnancy with my daughter who is now 3. At the time they had no idea and were limited on the testing because I was...
My daughter was born 9/9/08 and I stayed on remicade throughout my entire pregnancy. I had my first infusion at 7 weeks and my last at 31 weeks. My Ob wasn't as excited about me staying on it, but my...
Congrats!! Wow how time flies..seems like just last week you were early on in your pregnancy. But then again my baby is 4 months today!! Kinda makes me sad since she is our last but excited about the...
My 3 year old daughter has eczema pretty bad in the winter. We saw a dermatologist about 6 weeks ago and she suggested a hydrating soap (CeraVe), moisturizing cream (CeraVe) in the winter 2 times a...
I have had psoriasis since I was in Jr High..about 16 years. I never really found a medication that completely treated it but I kept it pretty clear over the years. I got a few spots after my bowel...
I'm just curious if I am alone in my current situation. I have been dx with Crohn's since Jan 06. July 07 I had my first resection and on Sept 9, 08 I had our second daughter. I have been on remicade...
First I want to say Congrats on the baby!! I know you are in a difficult position right now and first and foremost I say follow your heart. What is right for one person may not be the right choice...
I started back on remicade about 3 months after my resection. I have been in remission for 15 months now. I hope your husband has a positive result from surgery - for me it was a very hard process,...