Hi All, I have to say I love Remicade!! i have been in a constant flare for YEARS, till 3 months ago. 10+ BM's perday, and at least one 'accident' per day. Can't tell you how many times I've had to...
Hi Everyone! I am supposed to be married in October 2010 and I'm completely freaked out. In preparation for te big day, I went back to my doctor and told him I need him to fix me for just one day - I...
I feel for you!! I can relate. I was originally diagnosed with UC, changed to Crohn's, and then today they are not sure and thinking I might have both (?). Sometimes the doctors just dont know...and...
My response may be a bit too much for some so if you will be offended please skip my response. I wanted to respond to the point you bring up on blood loss. I'm sure every woman is different in terms...
http://www.newsday.com/news/health/ny-hscrohn0617,0,718524.story ...
I always get headaches from Humira. I've been on it 4 months. I just take Excedrin Migraine for them (my doc said it was okay to do)...
I am so sorry this happened to you. I remember my first time, unfortunatly I'm a pro now as I have had accidents almost daily for years now (up until the past 3 months, new meds working pretty good)....
At my largest I was 205 with Crohn's - so yes, crohn's patients can be large. I lost the weight on my own via dieting and during the past 2 years have been 130 lbs, dropping to 120 only once during a...
I take it weekly, with no fight. I have Medco insureance but for some reason get my meds through Acredo. Why I dont know, but it was a painless transition for me onto Humira....
Hello, i take humira, and I post on it sometimes. I like the overall effects - BMs from 15-20 times a day to 5-6. Less blood, less urgency (though its still there). I have a allergic reaction to he...
I have side effects. Headaches, and a rash is one, but the most annoying and common is the injection site welt I get (puffy, red, about the size of my hand, hard as a rock and painfully itchy) I get...
a few from my own personal experiences: its.NOT.all.in.my.head!.com mr.hankey.looks.sick.today.com whats this oozing.lump.com when.bosses.meet.bowels.com stop.prodding.my.butt.com...
Hi All, My two friends recently had a dish called Butterfish (or Escolar). They loved it and raved on and on about it and said I had to try it. So I did some research on it to see what it was so I...
the Lialda just stinks to hih heaven, but it doesnt taste bad at all. But whe you open up the lid you get a stink come at you like the bottle has gas. Not too pleasant. :) If I notice any hair loss I...
I am on Lialda for Crohn's. I started about a month ago, and it replaced my Colazal. I have not had any hair loss from this product yet (so far it's still growing in from when I lost it during a...
Humira isn't stopping my gas either. I toot away all day in the bathroom - maybe 10-15 visits a day. I've learned not to trust a fart so I endlessly make the trek to the ladies'. good luck - I hope...
Thanks everyone!!! I am so glad to hear its not just me - not that I want anyone else to go through this...I'm just happy its a somewhat normal reaction. I will do what you all suggest, try my leg,...
My family has CD in it. I know they say its rare for it to be passed along, so I'm the lucky one and I have it too :) My Aunt has it on my mom's side, and my dad has IBS (this was the only diagnosis,...
I take a shot every Wednesday sinc ethe 2 week schedule wasnt helping enough....
Hi GladBag, I assumed it was the Humira because I never had headaches every Saturday before I started taking it in January. Now my headaches are like clockwork. I just take excedrin (I know, not...
I saw my doc last week about it, but the lump had gone down (the appt was right before my next shot was due) so she really didnt get to see it in its full glory. I also told her my other symptoms,...
Hi all, I love my humira and it really is helping me, but the side effects are really painful, itchy and uncomfortable. I inject every week. the day after my injection I get a welt that is red and...
Sonds to me like time for a trip to the doctor - better safe than sorry. If you are messing your pants and not in control of your body, perhaps there is something the doctor can prescribe that will...
please, please, please take your asacol...i did the same thing many times. I'm paying for it now... Now I can't even take my 9 asacol a day...I'm beyond that and they switched me to all these...
I've been on Humira for 2 months and have gained 6 pounds despite more agressive workouts at the gym and a decrease in calorie intake. I keep telling myself its because I'm getting better and I'm...
well, I was on a trip for 10 days to Italy with my boyfriend. Packed all my meds, careful about how much I ate and drank, and stopped at every bathroom I could to make sure I was all set to go...
My symptoms were always worse in the morning - that's also when I'd have the greatest chance of an accident. I always attributed it to stress - my commute to work is an hour long....a whole hour away...
Hi hukleberrie, I'm so sorry to hear you are in pain. I know how you feel - my first stint with Prednizone i had to wait a whole 10 days for even the slightest amount of releif. My GI said 10 days -...
I have that all the time... My doctor knows about it and doesnt really say much about it so I guess it's okay......
I like matches...tiny, easy to carry, and works for me. I also have travel size hand lotion - Its a real strong one and its easy to carry - plus, nobody would wonder why I have it in there. Rubbing...
I went into a remission in my early Crohn's years, and went off my meds without telling my doctor - figuring I was fine and they were keeping me on meds to make money. I've never been in remission...
My doctor had diagnosed me with UC about 8 years ago, and only 1 year ago changed the diagnosis to CD. Even though she originally pegged it wrong, I understand Crohn's can be hard to diagnose since...
Hello lil-momma, Reading your posts and everyone else's, it seems to me she should be in the ER (just my opinion, based on how my doctors handle my case). I've also had Crohn's for many years (but...
My hair started falling out after a taper of Prednizone. Quite a bit came out. I told my doctor, and she had me start taking Centrum and referred me to a dermatologist to make sure it wasn't...
Hi CrohnsDaddy, Thanks for the info!!! Benadryl sounds like a good idea...I'll try that. A simple solution like benadryl is rare thing for us, eh? a welcome change... Good luck to you with your...
I just had my first shots of Humira last wednesday, and had a slight headache for 2 days afterward, and a Migraine Saturday night. Waaa! Hey, since we're on the topic, anyone know when this Humira...
wow, surprised this tiopic is on the board today - ironic to say the least since I just had a breakdown last night at my bf's house and I was crying for all through dinner. I cant help but be...
HI Everyone! Thanks so much for your posts! I'm glad to hear that its not the inevitable course I thought it was. I was getting really sad and frustrated at how this is affecting my work, but I guess...
I am about to start Humira, and my doctor said that if I suspect I have any sort of infection or I'm exposed to anything I'm worried about, I'm supposed to call her right away. I think its good...
Hi Everyone, I'm supposed to start Humira on in a week. I'm excited cause I hear a lot of good feedback on the effects, but I have to admit at the same time I'm skeptical. I have switched meds...
Hi Everyone, I have a pr opensity toward UTI's (Urinary Tract Infections). My back is killing me. Since Flagyl is an anti-biotic, can I take it to fix the UTI? I have some left over since my doc is...
Hearing your story was hard for me. I feel for you - to be in a constant flare is so humiliating and painful. I am in the same boat - I've been in a flare now for over a year. Sometimes I think I'm...
I think that we all have this in our genes. That what my doc says. But I've always beleived it 'sprang up' because of some other factor - an illness, eating too many chemicals, or something else. For...
Hi Climbs, That's a great article; and I'm glad that you took the time to get the word out there about this disease. Everyone's experiences with CD will differ, but just letting people know what some...
I agree with PB4 - keep away from anything ending in 'ol (malitol included, they put this in 'diet' chocolate and boy does that hurt). I once chewed 4 peices of gum with sorbitol in a row cause I...
I am so sorry to hear you are sick in Vietnam. Its bad enough when we get ill in private, let alone when there's noplace to go. I just had this happen to me on a trip to Italy last month - I was in...
my GI wont give them to me at all :( Said it would do more harm than good but looking at everyone elses post I think I need to ask another doctor....
Its really hard to lose the weight I find, regardless of whether I gain it on steroids or because i just have to have that extra sleeve of cookies. I go up and down a lot because of crohns and my...
That's happened to me before, I always thought it was a flare, just not a very painful one. Running to the b-room every time I eat (sometimes after the first bite of food) is usually how I know...
Hi! Glad you're off the pred. I just did my first pred taper and it wasn't too bad. After about a month I was just about back to normal. Still trying to lose the weight I packed on, and also now I am...